‘It’s a nice place, a nice place to be’. The story of a practice development programme to further develop person-centred cultures in palliative and end-of-life care

McCormack, Brendan; Dickson, Caroline; Smith, Tracy; Ford, Hilary; Ludwig, Steffi; Moyes, Rhona; Lee, Laura; Adam, Elaine; Paton, Tracy; Lydon, Brigid; Spiller, Juliet

doi:10.19043/ipdj81.002

Cited by 6 publications

(29 citation statements)

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“…All articles were published after 2011, with 12 (44.4%) published between 2011–2016 and 15 (55.6%) between 2017–2022. More than half of the included articles were published in the United States (n = 14, 51.9%) [ 20 , 36 , 37 , 39 , 40 , 42 , 44 – 48 , 51 , 52 , 57 ] and adopted a qualitative study design (n = 15, 55.6%) [ 20 , 35 , 37 – 39 , 41 , 44 , 49 , 52 , 54 – 59 ]. Other types of articles included descriptive reports (n = 5, 18.5%) [ 42 , 45 , 46 , 50 , 51 ], evidence syntheses (n = 2, 7.4%) [ 43 , 47 ], quantitative study designs (n = 2, 7.4%) [ 48 , 53 ], commentaries (n = 2, 7.4%) [ 36 , 40 ], and mixed methods study (n = 1, 3.7%) [ 60 ].…”

Section: Resultsmentioning

confidence: 99%

“…Specifically, leaders played a critical role in goal communication by clarifying how each employee and team contributed to hospital goals [ 46 , 58 ] and how they may benefit from implementing PE in their work [ 50 ]. Goals were communicated through verbal and non-verbal strategies for communicating PE goals, such as displaying goals in the reception area, using computer screen savers and hospital websites, and using email signatures [ 37 , 41 – 43 ]. However, none of the articles examined whether communicating hospital goals made a difference in implementing PE practices.…”

Section: Resultsmentioning

confidence: 99%

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Understanding the connection between hospital goals and patient and family engagement: A scoping review

Majid,

Steele Gray,

Saragosa

et al. 2023

PLoS ONE

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The person-centered care movement has influenced hospitals to make patient and family engagement (PE) an explicit commitment in their strategic plans. This is often reflected in mission, vision, and value (MVV) statements, which are organizational artifacts intended to influence the attitudes, beliefs, and actions of hospital teams and employees because of their saliency in organizational documents and communications. Previous research has found that organizational goals for PE, like those articulated in MVV statements, can lead to effective and meaningful PE. However, a deeper understanding of how and under which circumstances MVV statements encourage and promote PE practices is needed. A scoping review was conducted to understand the connection between hospital PE goals (such as MVV statements) and PE processes and practices. The research question was: what is known about how hospital MVV statements relate to PE processes and activities? Following Arksey and O’Malley’s scoping review approach, 27 articles were identified as relevant to the research question. These articles revealed five strategies that help realize hospital PE goals: communicating organizational goals; aligning documents that convey organizational goals; aligning organizational processes to support PE; providing employees with resources and support; and motivating and empowering employees to integrate PE into their work. We discuss the implications of misalignment between hospital goals and practices, which reduce team and individual motivation toward hospital PE goals.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Understanding the connection between hospital goals and patient and family engagement: A scoping review

Majid,

Steele Gray,

Saragosa

et al. 2023

PLoS ONE

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“…Emancipatory and transformational practice development methodologies [ 5 ], however, have played a significant role in demonstrating the need for continuous facilitated meaningful engagement to develop healthful cultures. Evidence from practice development programmes illustrate how clarity of beliefs and values acts as a foundation for culture change, leadership development, team effectiveness and consistency in patient care [ 30 , 31 ]. Notably, such programmes also depend on long-term engagement for the development and embedding of culture change in healthcare settings—it is not a quick-fix solution.…”

Section: Discussionmentioning

confidence: 99%

Examining the Theoretical Relationship between Constructs in the Person-Centred Practice Framework: A Structural Equation Model

McCance

McCormack

Slater

et al. 2021

IJERPH

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Research relating to person-centred practice continues to expand and currently there is a dearth of statistical evidence that tests the validity of an accepted model for person-centred practice. The Person-centred Practice Framework is a midrange theory that is used globally, across a range of diverse settings. The aim of this study was to statistically examine the relationships within the Person-centred Practice Framework. A cross sectional survey design using a standardized tool was used to assess a purposive sample (n = 1283, 31.8%) of multi-disciplinary health professionals across Ireland. Survey construct scores were included in a structural model to examine the theoretical model of person-centred practice. The results were drawn from a multi-disciplinary sample, and represented a broad range of clinical settings. The model explains 60.5% of the total variance. Factor loadings on the second order latent construct, along with fit statistics, confirm the acceptability of the measurement model. Statistically significant factor loadings were also acceptable. A positive, statistically significant relationship was observed between components of the Person-centred Practice Framework confirming it’s theoretical propositions. The study provides statistical evidence to support the Person-centred Practice Framework, with a multidisciplinary sample. The findings help confirm the effectiveness of the Person-Centred Practice Index for-Staff as an instrument that is theoretically aligned to an internationally recognised model for person-centred practice.

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“…DH's experiences suggest that achieving a good death was difficult, and in the care setting her mother lost her past identities. McCormack et al (2018,) recognised the importance of knowing the person if person-centred relationships are to exist. Kennedy (2016) suggested a way of getting to know a person is through life storytelling; this will help health care professionals view the patient receiving the end of life care as a person.…”

Section: Discussionmentioning

confidence: 99%

Making her end of life her own: further reflections on supporting a loved one with motor neurone disease

2019

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Background: People can live for many months without knowing why their body is failing prematurely before being diagnosed with motor neurone disease (MND); a terminal neurodegenerative disease which can be experienced as ‘devastating’ for the person and their family. Aim: This study aimed to explore the meaning of supporting a loved one with MND to die. Methods: This study uses reflection and autobiographical story to connect with broader cultural, political and social meaning and understandings of dying. Findings: Four themes were identified relating to the end-of-life trajectory of MND. Loss of person (lived body experienced in silence); loss of relationships (lived relations are challenged); loss of home and loss of time (lived space and lived time take on new meaning); loss of future (dying—facing it alone). Conclusion: Dying with MND is a complex phenomenon. When a person can no longer move and communicate, relationships between those involved in end-of-life care are challenging. A person with MND needs the support from those acting as power of attorney to make their end of life their own, and they themselves need support to find meaning in their suffering. This autoethnographic reflection provides vicarious experiences for nurses and other healthcare professionals working with people with MND and similar conditions.

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‘It’s a nice place, a nice place to be’. The story of a practice development programme to further develop person-centred cultures in palliative and end-of-life care

Cited by 6 publications

References 0 publications

Understanding the connection between hospital goals and patient and family engagement: A scoping review

Understanding the connection between hospital goals and patient and family engagement: A scoping review

Examining the Theoretical Relationship between Constructs in the Person-Centred Practice Framework: A Structural Equation Model

Making her end of life her own: further reflections on supporting a loved one with motor neurone disease

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