"It's Better to be Grounded in Reality": a Speculative Exploration of Patient-Centered Digital Phenotyping for Neurological Conditions

So, Jianna; Yang, Faye X.; Gupta, Anoopum S.; Gajos, Krzysztof Z.

doi:10.1145/3663548.3688486

The 26th International ACM SIGACCESS Conference on Computers and Accessibility 2024

DOI: 10.1145/3663548.3688486

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"It's Better to be Grounded in Reality": a Speculative Exploration of Patient-Centered Digital Phenotyping for Neurological Conditions

Jianna So,

Faye X. Yang,

Anoopum S. Gupta

et al.

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Cited by 1 publication

References 27 publications

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Hevelius Report: Visualizing Web-Based Mobility Test Data For Clinical Decision and Learning Support

Lin,

Han,

Gajos

et al. 2024

The 26th International ACM SIGACCESS Conference on Computers and Accessibility

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Hevelius, a web-based computer mouse test, measures arm movement and has been shown to accurately evaluate severity for patients with Parkinson's disease and ataxias. A Hevelius session produces 32 numeric features, which may be hard to interpret, especially in time-constrained clinical settings. This work aims to support clinicians (and other stakeholders) in interpreting and connecting Hevelius features to clinical concepts. Through an iterative design process, we developed a visualization tool (Hevelius Report) that (1) abstracts six clinically relevant concepts from 32 features, (2) visualizes patient test results, and compares them to results from healthy controls and other patients, and ( 3) is an interactive app to meet the specific needs in different usage scenarios. Then, we conducted a preliminary user study through an online interview with three clinicians who were not involved in the project. They expressed interest in using Hevelius Report, especially for identifying subtle changes in their patients' mobility that are hard to capture with existing clinical tests. Future work will integrate the visualization tool into the current clinical workflow of a neurology team and conduct systematic evaluations of the tool's usefulness, usability, and effectiveness. Hevelius Report represents a promising solution for analyzing fine-motor test results and monitoring patients' conditions and progressions. CCS Concepts• Human-centered computing → Interactive systems and tools; Visualization systems and tools.

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Hevelius Report: Visualizing Web-Based Mobility Test Data For Clinical Decision and Learning Support

Lin,

Han,

Gajos

et al. 2024

The 26th International ACM SIGACCESS Conference on Computers and Accessibility

View full text Add to dashboard Cite

show abstract

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"It's Better to be Grounded in Reality": a Speculative Exploration of Patient-Centered Digital Phenotyping for Neurological Conditions

Cited by 1 publication

References 27 publications

Hevelius Report: Visualizing Web-Based Mobility Test Data For Clinical Decision and Learning Support

Hevelius Report: Visualizing Web-Based Mobility Test Data For Clinical Decision and Learning Support

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