“It's Kind of Complicated”: A Qualitative Exploration of Perceived Social Support in Young Adult and Young Adult Lesbian, Gay, Bisexual, Transgender, and/or Queer Cancer Survivors

Ketcher, Dana; Reblin, Maija; Mansfield, Kelly J.; McCormick, Rachael; Skinner, Amber; Otto, Amy K.; Tennant, Karrin E.; Wawrzynski, Sarah E; Reed, Damon R.; Cloyes, Kristin G.

doi:10.1089/jayao.2021.0210

Cited by 10 publications

(9 citation statements)

References 41 publications

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“…Support for TGD cancer survivors and their carers may also be improved through greater availability of LGBTQ+‐inclusive information materials and LGBTQ+‐specific support groups. Our study findings are corroborated by others describing that LGBTQ+ people often feel out of place in mainstream cancer support groups, 11 , 16 leaving TGD survivors potentially missing out on the benefits of peer support. Having up‐to‐date knowledge of existing LGBTQ+ supportive resources that HCPs may suggest to TGD survivors may provide these patients with more appropriate options.…”

Section: Discussionsupporting

confidence: 89%

“…To begin to mitigate this issue, of immediate importance is the implementation of strategies which aim to improve the experience of TGD people when accessing cancer services (and more broadly health services in general). There was a strong emphasis on experiences of transphobia, discrimination, and lack of gender‐affirming care in this study, and other research similarly indicates that LGBTQ+ people with cancer feel unsupported within the health system 16 . Misgendering patients in health‐care settings was commonly raised, and may cause patients to feel that their provider is either not interested in them or their health, is uncomfortable with their TGD identity, or is unwilling to provide care 17 .…”

Section: Discussionmentioning

confidence: 59%

“…There was a strong emphasis on experiences of transphobia, discrimination, and lack of gender‐affirming care in this study, and other research similarly indicates that LGBTQ+ people with cancer feel unsupported within the health system. 16 Misgendering patients in health‐care settings was commonly raised, and may cause patients to feel that their provider is either not interested in them or their health, is uncomfortable with their TGD identity, or is unwilling to provide care. 17 Including a more complete range of gender identities within administrative processes, as well as enquiring about and respecting individuals' preferred pronouns, are relatively simple yet crucial steps which enhance TGD visibility in health settings and may provide a sense of safety for TGD patients.…”

Section: Discussionmentioning

confidence: 99%

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“Everything's a fight”: A qualitative study of the cancer survivorship experiences of transgender and gender diverse Australians

et al. 2023

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Background: There is widespread recognition of the need to achieve equitable outcomes for all cancer survivors. This requires understanding of the experiences and outcomes of vulnerable groups. People who identify as sexually or gender diverse are known to be at risk of inferior cancer and survivorship outcomes, however, the posttreatment survivorship experiences of transgender and gender diverse (TGD) people have not been well studied. This study explored the survivorship experiences of people who identify as TGD, focusing on the physical and psychological aspects of the posttreatment survivorship phase and their experiences of follow-up cancer care.Methods: A qualitative study of 10 TGD cancer survivors. Interviews were transcribed verbatim and data were analyzed by thematic analysis.Results: Six themes were generated from the data. TGD people reported (1) anxiety when attending appointments and avoidance of necessary follow-up care, (2) experiences of transphobia and discrimination within oncology care settings and(3) lack of consideration of TGD identity by providers. Themes further describe (4) physical aspects of being both TGD and a cancer survivor, (5) absence of inclusive and diverse supportive care resources, as well as (6) positive growth after cancer. Conclusion:Approaches to mitigate these issues are urgently called for. These include training in TGD health for health-care providers, inclusion of TGD health in medical and nursing curricula, processes to collect and use gender identity and preferred pronoun data in clinical settings, and development of TGD-inclusive information and peer-support resources. K E Y W O R D Shealth Services for transgender persons gender identity, healthcare disparities, neoplasms, survivorship, transgender persons How to cite this article: Lisy K, Kerr L, Jefford M, Fisher C. "Everything's a fight": A qualitative study of the cancer survivorship experiences of transgender and gender diverse Australians.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionmentioning

confidence: 59%

Section: Discussionmentioning

confidence: 99%

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“Everything's a fight”: A qualitative study of the cancer survivorship experiences of transgender and gender diverse Australians

et al. 2023

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“…Unmet support needs were also reported for young adult SGD cancer patients who face an even more unique situation [15]. In semi-structured interviews young adult SGD patients identified family, peers, and HCPs/institutions as their sources of support; however, the amount of support from these sources varied greatly depending on the acceptance of their sexual orientation and gender identity by family, the ability of peers to relate to the cancer care experience and make young adult SGD patients feel less alienated, as well as the degree of HCP support maintained over time [15].…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Sexual and gender diversity in cancer care and survivorship

Schulz-Quach

Kennedy

Lyver

2023

Current Opinion in Supportive &Amp; Palliative Care

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Purpose of the review Sexual and gender diverse (SGD) cancer patients possess unique identities and needs that must be considered during their cancer care. This narrative review explores the current literature on sexual and gender diversity in cancer care and survivorship, in addition to providing recommendations encouraged by the current literature. Recent findings We performed a literature search for articles published in English between January 2021 and June 2022 in Medline ALL and Embase. Fifty-two studies were included in this review. The many identities encapsulated in 2SLGBTQIA+ (2 Spirited, Lesbian, Gay, Bisexual, Transgender, Queer, Intersexual, Asexual, Agender, Aromantic and all gender identities and sexual orientations that are not listed) communities each have their own unique backgrounds, needs and disparities in cancer care and survivorship. However, we also identified specific protective factors in the cancer experience of SGD patients such as reports of higher resiliency and stronger support networks. Much of the recent research features recommendations on improving cancer care by creating inclusive patient questionnaires, improving in-person and online resources, and educating healthcare providers and patient-facing staff on inclusive care. Summary SGD patients have their own specific challenges during and following their cancer care. As the research continues to grow, we gain a better understanding of the needs of these patients and future steps to take to improve SGD patients’ cancer experience.

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Disparities in cancer care among sexual and gender minority adolescent and young adult patients: A scoping review

et al. 2023

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Background: Adolescent and young adult cancer patients (AYAs) who are sexual and gender minorities (SGM) are a rapidly increasing population that experiences unmet cancer-related needs. Despite emerging awareness, little is known about cancer care and outcomes for this vulnerable population. The purpose of this scoping review was to explore current knowledge and gaps in the literature on cancer care and outcomes for AYAs who identify as SGM. Methods:We reviewed empirical knowledge on SGM AYAs by identifying, describing, and critically appraising the literature to date. We conducted a comprehensive search on OVID MEDLINE, PsycINFO, and CINAHL in February 2022.Additionally, we developed and piloted a conceptual framework for appraising SGM AYA research.Results: A total of 37 articles were included in the final review. Most studies focused exclusively on SGM-related outcomes as the primary aim of the study (81.1%, n = 30), whereas others included some focus on SGM-related outcomes (18.9%, n = 7). The majority of studies included AYAs as part of a broader age range (86.0%, n = 32), and only a few studies examined exclusively AYA samples (14.0%, n = 5). Gaps in scientific evidence on SGM AYAs were seen across the cancer care continuum. Conclusion:Numerous gaps in knowledge of cancer care and outcomes exist for SGM AYAs diagnosed with cancer. Future efforts should fill this void with highquality empirical studies that reveal unknown disparities in care and outcomes and are inclusive of the intersectionality of SGM AYAs with other minoritized experiences, thereby advancing health equity in meaningful ways.

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“It's Kind of Complicated”: A Qualitative Exploration of Perceived Social Support in Young Adult and Young Adult Lesbian, Gay, Bisexual, Transgender, and/or Queer Cancer Survivors

Cited by 10 publications

References 41 publications

“Everything's a fight”: A qualitative study of the cancer survivorship experiences of transgender and gender diverse Australians

“Everything's a fight”: A qualitative study of the cancer survivorship experiences of transgender and gender diverse Australians

Sexual and gender diversity in cancer care and survivorship

Disparities in cancer care among sexual and gender minority adolescent and young adult patients: A scoping review

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