It’s like balancing on a slackline—A description of how adults with congenital heart disease describe themselves in relation to physical activity

Bay, Annika; Lämås, Kristina; Berghammer, Malin; Sandberg, Camilla; Johansson, Bengt

doi:10.1111/jocn.14507

Cited by 6 publications

(6 citation statements)

References 34 publications

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“…They also found appropriate levels to be physically active. A recent study showed that adults with CHD described themselves as 'being a realist -adapting to physical ability', 19 and the present study shows that attitudes towards oneself might be an aspect of that statement. On the contrary, selfconfidence could also be seen as a barrier as some had set unrealistic goals that led to not being able to finalise the activity.…”

Section: Discussionsupporting

confidence: 62%

“…Even if the description of the analysis process seems linear, there has been movement back and forth between the whole and the part of the text including subcategories and categories. 19…”

Section: Discussionmentioning

confidence: 99%

“…18 A previous study showed how adults with complex CHD describe themselves in relation to physical activity. 19 Descriptions were over a wide range from being very physically active to not being active at all. 19 Nevertheless, knowledge is lacking about what adults with complex CHD experience as enablers and barriers to being physically active.…”

Section: Introductionmentioning

confidence: 99%

“…19 Descriptions were over a wide range from being very physically active to not being active at all. 19 Nevertheless, knowledge is lacking about what adults with complex CHD experience as enablers and barriers to being physically active. The aim of the present study was to describe what adults with CHD consider as physical activity, and what they experience as enablers and barriers for physical activity.…”

Section: Introductionmentioning

confidence: 99%

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Enablers and barriers for being physically active: experiences from adults with congenital heart disease

Bay

Lämås

Berghammer

et al. 2020

European Journal of Cardiovascular Nursing

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Background: In general, adults with congenital heart disease have reduced exercise capacity and many do not reach the recommended level of physical activity. A physically active lifestyle is essential to maintain health and to counteract acquired cardiovascular disease, therefore enablers and barriers for being physically active are important to identify. Aim: To describe what adults with complex congenital heart diseases consider as physical activity, and what they experience as enablers and barriers for being physically active. Methods: A qualitative study using semi-structured interviews in which 14 adults with complex congenital heart disease (seven women) participated. The interviews were analysed using qualitative content analysis. Results: The analysis revealed four categories considered enablers and barriers – encouragement, energy level, approach and environment. The following is exemplified by the category encouragement as an enabler: if one had experienced support and encouragement to be physically active as a child, they were more positive to be physically active as an adult. In contrast, as a barrier, if the child lacked support and encouragement from others, they had never had the opportunity to learn to be physically active. Conclusion: It is important for adults with congenital heart disease to have the opportunity to identify barriers and enablers for being physically active. They need knowledge about their own exercise capacity and need to feel safe that physical activity is not harmful. This knowledge can be used by healthcare professionals to promote, support and eliminate misconceptions about physical activity. Barriers can potentially be transformed into enablers through increased knowledge about attitudes and prerequisites.

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Section: Discussionsupporting

confidence: 62%

“…Even if the description of the analysis process seems linear, there has been movement back and forth between the whole and the part of the text including subcategories and categories. 19…”

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Enablers and barriers for being physically active: experiences from adults with congenital heart disease

Bay

Lämås

Berghammer

et al. 2020

European Journal of Cardiovascular Nursing

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“…4,[30][31][32] This reduced physical activity may be due in part to restrictions imposed by the child's cardiologist, parents, teachers/coaches, and/or themselves, [33][34][35] as well as numerous perceived barriers by the youth themselves. 5,[36][37][38] Fortunately, clinical recommendations have shifted from one of activity restriction to activity promotion in the CHD population. 39 Importantly, youth with CHD often have poor self-efficacy towards physical activity, 40 which itself is an important predictor of physical activity participation.…”

Section: Discussionmentioning

confidence: 99%

Cardiac rehabilitation in the paediatric Fontan population: development of a home-based high-intensity interval training programme

et al. 2020

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Introduction: We evaluated the safety and feasibility of high-intensity interval training via a novel telemedicine ergometer (MedBIKE™) in children with Fontan physiology. Methods: The MedBIKE™ is a custom telemedicine ergometer, incorporating a video game platform and live feed of patient video/audio, electrocardiography, pulse oximetry, and power output, for remote medical supervision and modulation of work. There were three study phases: (I) exercise workload comparison between the MedBIKE™ and a standard cardiopulmonary exercise ergometer in 10 healthy adults. (II) In-hospital safety, feasibility, and user experience (via questionnaire) assessment of a MedBIKE™ high-intensity interval training protocol in children with Fontan physiology. (III) Eight-week home-based high-intensity interval trial programme in two participants with Fontan physiology. Results: There was good agreement in oxygen consumption during graded exercise at matched work rates between the cardiopulmonary exercise ergometer and MedBIKE™ (1.1 ± 0.5 L/minute versus 1.1 ± 0.5 L/minute, p = 0.44). Ten youth with Fontan physiology (11.5 ± 1.8 years old) completed a MedBIKE™ high-intensity interval training session with no adverse events. The participants found the MedBIKE™ to be enjoyable and easy to navigate. In two participants, the 8-week home-based protocol was tolerated well with completion of 23/24 (96%) and 24/24 (100%) of sessions, respectively, and no adverse events across the 47 sessions in total. Conclusion: The MedBIKE™ resulted in similar physiological responses as compared to a cardiopulmonary exercise test ergometer and the high-intensity interval training protocol was safe, feasible, and enjoyable in youth with Fontan physiology. A randomised-controlled trial of a home-based high-intensity interval training exercise intervention using the MedBIKE™ will next be undertaken.

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Exploring the Promise of Telemedicine Exercise Interventions in Children and Adolescents With Congenital Heart Disease

Spence,

Khoo,

Mackie

et al. 2023

Canadian Journal of Cardiology

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It’s like balancing on a slackline—A description of how adults with congenital heart disease describe themselves in relation to physical activity

Cited by 6 publications

References 34 publications

Enablers and barriers for being physically active: experiences from adults with congenital heart disease

Enablers and barriers for being physically active: experiences from adults with congenital heart disease

Cardiac rehabilitation in the paediatric Fontan population: development of a home-based high-intensity interval training programme

Exploring the Promise of Telemedicine Exercise Interventions in Children and Adolescents With Congenital Heart Disease

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