“It’s very humbling”: The Effect Experienced by Those Who Facilitate a Legacy Project Session Within Palliative Care

Collins, Andrew

doi:10.1177/1049909118787772

Cited by 7 publications

(9 citation statements)

References 44 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Examples include the work of chaplains or occupational therapists with patients in palliative care settings. 58–63 Creative activities such as “legacy projects,” “life reviews,” and “illness narratives” notably share some common elements with the review topic. The arts complement occupational therapy aims like “creative occupation” or a chaplaincy aim of “meaning construction.” 59,62–64 Studies examining the role of the arts to enhance nursing or medical education, 64,65 to prevent health care provider burnout, 66,67 or to enhance the healthcare environment 68 bear future exploration in an effort to map the extent of the range and reach of the arts in palliative care.…”

Section: Discussionmentioning

confidence: 99%

Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature

2021

View full text Add to dashboard Cite

Background: Living with life-limiting illness significantly impacts quality of life. A growing body of evidence suggests that arts engagement facilitated by artists promotes well-being. However, no synthesis of the literature exists to describe arts engagement delivered by artists with individuals receiving palliative care. Aim: To systematically review and synthesize evidence to identify outcomes and key knowledge gaps to inform future research and practice. Design: A systematic integrative literature review was conducted using a pre-defined search strategy and reported using PRISMA guidelines. Analysis was conducted iteratively and synthesis achieved using constant comparison to generate themes. Data sources: PubMed/MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, and Embase were searched for studies published between database inception and August 2020. Search terms included variations on arts/artists; patients/service users; and palliative or end-of-life care. Eligibility criteria was applied and study quality assessed. Results: Seven reviewed studies explored literary, performing, and visual arts engagement in hospitals, hospice and community settings in England, the United States, France, and Canada. Study designs, interventions and findings were discussed. Themes identified across studies associated arts engagement with (1) a sense of well-being, (2) a newly discovered, or re-framed, sense of self, (3) connection with others, and (4) challenges associated with practice. Conclusion: Recommendations for future research were offered in order to maximize benefits, minimize risks and address complexity of artists’ engagement in palliative care including: (1) consistency in methods and reporting; (2) inclusion of wider perspectives; and (3) key considerations for adapting the arts by health condition and art form.

show abstract

Section: Discussionmentioning

confidence: 99%

Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature

2021

View full text Add to dashboard Cite

show abstract

“…Examples included the work of chaplains or occupational therapists (OTs) with patients in palliative care settings. [61][62][63][64][65][66] Activities that incorporate creative elements such as "legacy projects", "life reviews", and "illness narratives" notably share some common elements with the review topic. For example, arts engagement complements an occupational therapy aim such as "creative occupation" or a chaplaincy aim of "meaning construction'.…”

Section: Recommendations For Future Research and Practicementioning

confidence: 99%

“…For example, arts engagement complements an occupational therapy aim such as "creative occupation" or a chaplaincy aim of "meaning construction'. [62,[65][66] Studies authored by allied health professionals using arts engagement in their work with patients in palliative care should be aggregated and reviewed to reveal knowledge and pro ciencies that might complement existing services in palliative care. Studies examining the role of the arts to enhance nursing or medical education, [67][68] to prevent health care provider burnout, [69][70] or to enhance the design in the environment of care [71] were not included in this review as they do not feature arts engagement with patients, yet such activities bear exploration in an effort to map the range and reach of the arts in palliative and EOL care.…”

Section: Recommendations For Future Research and Practicementioning

confidence: 99%

Arts Engagement Facilitated by Artists With Individuals With Life-limiting Illness: An Integrative Review of the Literature

Lee

McIlfatrick

Fitzpatrick

2021

Preprint

View full text Add to dashboard Cite

BackgroundLiving with life-limiting illness significantly impacts quality of life. A growing body of evidence suggests that arts engagement, facilitated by artists, promotes a sense of well-being and connection with others. However, much of the evidence is drawn from the use of the arts in broad health contexts or from creative arts therapies’ literature. This review aimed to systematically identify and synthesize existing evidence in order to reveal key knowledge gaps and to inform future research and practice. MethodsAn integrative review of the literature was conducted using a pre-defined, comprehensive search strategy. Databases searched included: PubMed inclusive of MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, and Embase. Search terms included variations on visual arts, literary arts, and performing arts; service users or patients; and palliative care or end-of-life care. The quality and rigor of articles were scored using Hawker and colleagues’ tool designed to systematically appraise disparate studies. Synthesis was conducted using a constant comparison method as outlined in the integrative review framework.ResultsEight reviewed studies explored literary, performing, and visual arts engagement in residential hospice, day hospice, and hospitals in England, the United States, France, and Canada. Seven of eight studies used qualitative methods and one study engaged in mixed methods. Patient perspectives were most commonly represented followed by health care professionals and family members. Creative writing, music, and visual art were predominant modalities whilst dance and theatre were underrepresented. Themes identified across studies associated arts engagement with 1) a sense of well-being, 2) a newly discovered, or re-framed, sense of self, 3) connection with others, 4) challenges associated with practice. ConclusionThis review synthesized current evidence and key knowledge gaps regarding artists' facilitation of arts engagement in palliative and end-of-life (EOL) care. It serves as a starting point in the consideration of next steps in standardizing professional practice and preparation for artists working in palliative and EOL care settings specifically. Recommendations for future research include exploring the value of collaboration between artists and palliative care teams when engaging with individuals living with life-limiting illness.

show abstract

“…Examples include the work of chaplains or occupational therapists with patients in palliative care settings. [58][59][60][61][62][63] Creative activities such as "legacy projects", "life reviews", and "illness narratives" notably share some common elements with the review topic. The arts complement occupational therapy aims like "creative occupation" or a chaplaincy aim of "meaning construction'.…”

Section: Recommendation 2: Exploring a Wider Range Of Perspectivesmentioning

confidence: 99%

“…The arts complement occupational therapy aims like "creative occupation" or a chaplaincy aim of "meaning construction'. [59,[62][63][64] Studies examining the role of the arts to enhance nursing or medical education, [64][65] to prevent health care provider burnout, [66][67] or to enhance the healthcare environment [68] bear future exploration in an effort to map the extent of the range and reach of the arts in palliative care.…”

Section: Recommendation 2: Exploring a Wider Range Of Perspectivesmentioning

confidence: 99%

Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature

Lee

McIlfatrick

Fitzpatrick

2021

Preprint

View full text Add to dashboard Cite

Background: Living with life-limiting illness significantly impacts quality of life. A growing body of evidence suggests that arts engagement facilitated by artists promotes well-being. However, no synthesis of the literature exists to describe arts engagement delivered by artists with individuals receiving palliative care. Aim: to systematically review and synthesize evidence to identify outcomes and key knowledge gaps to inform future research and practiceDesign: A systematic integrative literature review was conducted using a pre-defined search strategy and reported using PRISMA guidelines. Analysis was conducted iteratively and synthesis achieved using constant comparison to generate themes.Data sources: PubMed/MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, and Embase were searched for studies published between database inception and August 2020. Search terms included variations on arts/artists; patients/service users; and palliative or end-of-life care. Eligibility criteria was applied and study quality assessed. Results: Seven reviewed studies explored literary, performing, and visual arts engagement in hospitals, hospice and community settings in England, the United States, France, and Canada. Study designs, interventions and findings were discussed. Themes identified across studies associated arts engagement with 1) a sense of well-being, 2) a newly discovered, or re-framed, sense of self, 3) connection with others, and 4) challenges associated with practice. Conclusion: Recommendations for future research were offered in order to maximize benefits, minimize risks and address complexity of artists’ engagement in palliative care including: 1) consistency in methods and reporting; 2) inclusion of wider perspectives; and 3) key considerations for adapting the arts by health condition and art form.

show abstract

“It’s very humbling”: The Effect Experienced by Those Who Facilitate a Legacy Project Session Within Palliative Care

Abstract: This study provides confirmation that facilitators do not report any negative experiences while assisting a palliative care client in creating a legacy project. These activities can provide meaning while working in the field of palliative care.

Cited by 7 publications

References 44 publications

Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature

Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature

Arts Engagement Facilitated by Artists With Individuals With Life-limiting Illness: An Integrative Review of the Literature

Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature

Contact Info

Product

Resources

About