‘It takes two to tango …’ revisited: a qualitative study on integration and participation of people living with spinal cord injury in Switzerland

Reinhardt, Jan D.; Ruoranen, Kaisa Reetta; Graf, Sibylle; Horsewell, Jane; Leiulfsrud, Annelie Schedin; Post, Marcel W M

doi:10.1080/09687599.2012.732536

Cited by 12 publications

(29 citation statements)

References 21 publications

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“…Friends were described as stabilisers and important supporters to maintain psychosocial wellbeing. Strong wishes to be independent, findings which are in line with several studies [ 29 – 33 ], and contribute within the family, socially and vocationally and at the same time not being a burden to family members or friends was expressed.…”

Section: Discussionsupporting

confidence: 71%

“…A study investigated applied strategies used by persons with SCI to function autonomously, such as planning and organizing, being assertive and asking for help and learning from peers with SCI [ 29 ]. Four studies explored how persons with disabilities in general [ 30 , 31 ] and SCI in particularly [ 32 , 33 ] conceptualized participation and integration, and found that key elements were accessibility, social support and social connection, experiencing personal growth and feeling validated. But a major challenge was barriers in society.…”

Section: Introductionmentioning

confidence: 99%

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Exploring narratives of resilience among seven males living with spinal cord injury: a qualitative study

et al. 2018

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BackgroundIt is a challenge for both individuals and families when an illness or traumatic injury results in a severe spinal cord injury. The on-going physical impairments experienced by persons with spinal cord injury play themselves out over time. Few qualitative studies have explored how health, resilience and wellbeing interplay across time among persons living with the consequences of severe physical injuries. Thus, the aim of this study was to obtain a deeper understanding of how individuals with spinal cord injury reflect upon the efforts, strategies and agency they perform to sustain long term resilience and wellbeing.MethodsIn this exploratory qualitative study, we conducted a thematic analysis of in-depth interviews with seven men who had lived with spinal cord injury for 2–32 years and who previously had undergone medical rehabilitation.ResultsThe efforts revealed by the participants in normalising life with a spinal cord injury required continued flexibility, persistency and solution-focused adjustment, interpreted as processes documenting resilience. The participants were marshalling personal resources to handle challenges over time. They explained that they succeeded in maintaining health and wellbeing by manoeuvring between different strategies such as being self-protective and flexible as well as staying active and maintaining a positive attitude. Further, support from relational resources were of utmost importance emotionally, socially and when in need of practical assistance. When harnessing relational resources when needed, the participants underlined that balancing dependence and autonomy to remain a part of ordinary life was essential in staying emotionally stable.ConclusionsThe findings of the present study show similarities to those of previous studies with regard to the participants’ attribution of their resilience and wellbeing to their innate personal abilities and strong connection to their family and friends. In addition, the current participants provide enlightening nuances and depth that expand our understanding of the construct of resilience by highlighting the importance of continuously exerting agency, willpower and strength through rational cognitive strategies to adjust and adapt to chronic and new challenges.Electronic supplementary materialThe online version of this article (10.1186/s40359-017-0211-2) contains supplementary material, which is available to authorized users.

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Section: Discussionsupporting

confidence: 71%

Section: Introductionmentioning

confidence: 99%

Exploring narratives of resilience among seven males living with spinal cord injury: a qualitative study

et al. 2018

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“…In response to these difficulties, we suggest a new theoretical framework outlining the influence of EFs on participation, which can better address the complex interplay between EFs and disability. As an extension of the ICF framework (2), we hypothesize that experienced participation may impact on the intention to participate and on avoiding and overcoming behaviours (12). Our proposed new framework is illustrated in Fig.…”

Section: Development and Cognitive Testing Of The Nottwil Environmentmentioning

confidence: 99%

Development and cognitive testing of the Nottwil Environmental Factors Inventory in Canada, Switzerland, and the USA

Juvalta¹,

Post²,

Charlifue³

et al. 2015

J Rehabil Med

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“…-Self-efficacy -belief in own ability 36 -Mental health and higher life satisfaction 41 -Client-centered rehabilitation 69,70,49 -Physical exercise enhances mental strength 42 -Lack of motivation, dissatisfaction, and depression after transition to home 18,39,47,49,58,70,71 -Lack of advanced intervention for depression, neuroticism, feeling of grief 41…”

Section: Resultsmentioning

confidence: 99%

Factors Influencing Participation in Daily Activities by Persons With Spinal Cord Injury: Lessons Learned From an International Scoping Review

Alve

Bontje

2019

Topics in Spinal Cord Injury Rehabilitation

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Background: It is important to develop further understanding regarding the facilitating and constraining factors that influence participation in daily activities, including social and human rights issues faced by persons with spinal cord injury (SCI) that affect their opportunities to lead full social lives. Objectives: To identify, describe, and compare factors that influence participation in daily activities by persons with SCI living in high-income countries (HICs) and in low-and middle-income countries (LMICs). Method: We performed a scoping review of 2,406 articles published between 2001 and 2016 that were identified from electronic databases. From these, 58 remained after checking inclusion and exclusion criteria. Analyses included (a) identifying factors that facilitate and constrain participation in daily activities; (b) categorizing the identified factors as issues related to medical, social, and human rights models; and (c) comparing determinants between LMICs and HICs. Results: The medical model factors pertained to long-term physical health and functional capacities, self-efficacy and adjustment skills, relearning capacities for performing daily activities, and availability of cost-effective adaptive equipment. The social model factors pertained to developing accommodating communities (accessible environments and mutual understanding). The factors of the human rights model pertained to autonomy (empowerment) and development of social justice (application of policies, advocacy, and negotiation). Conclusion: Eight lessons are proposed to enhance health and functional abilities, ensure disability friendly environments, develop social justice, and provide empowerment to enhance participation in daily activities among person with SCI living in LMICs.

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‘It takes two to tango …’ revisited: a qualitative study on integration and participation of people living with spinal cord injury in Switzerland

Cited by 12 publications

References 21 publications

Exploring narratives of resilience among seven males living with spinal cord injury: a qualitative study

Exploring narratives of resilience among seven males living with spinal cord injury: a qualitative study

Development and cognitive testing of the Nottwil Environmental Factors Inventory in Canada, Switzerland, and the USA

Factors Influencing Participation in Daily Activities by Persons With Spinal Cord Injury: Lessons Learned From an International Scoping Review

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