Iterative Development of a Tailored mHealth Intervention for Adolescent and Young Adult Survivors of Childhood Cancer

Schwartz, Lisa A.; Psihogios, Alexandra M.; Henry‐Moss, Dare; Daniel, Lauren C.; Hoeve, Elizabeth S. Ver; Velázquez-Martin, Blanca; Butler, Eliana; Hobbie, Wendy L.; Lunsford, Natasha Buchanan; Sabatino, Susan A.; Barakat, Lamia P.; Ginsberg, Jill P.; Fleisher, Linda; Deatrick, Janet A.; Jacobs, Linda A.; O’Hagan, Bridget; Anderson, Lindsay; Fredericks, Emily M.; Amaral, Sandra; Dowshen, Nadia; Houston, Keisha A.; Vachani, Carolyn; Hampshire, Margaret K.; Metz, James M.; Hill‐Kayser, Christine; Szalda, Dava

doi:10.1037/cpp0000272

Cited by 22 publications

(24 citation statements)

References 27 publications

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“…It is also possible that multicomponent interventions, incorporating texting with other platforms such as mobile apps, combined with behavioral economic incentives and self‐monitoring could further increase acceptability and efficacy. A RCT is underway that addresses some of these next steps . In sum, tailored text messaging is well‐received by AYA and may impact outcomes such as health knowledge, well‐being, and engagement in healthy behaviors, especially for AYA survivors that may be asymptomatic yet have increasing health vulnerabilities.…”

Section: Discussionmentioning

confidence: 99%

Feasibility and acceptability of a pilot tailored text messaging intervention for adolescents and young adults completing cancer treatment

Schwartz

Daniel²,

Henry‐Moss

et al. 2019

Psycho-Oncology

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Purpose: Despite cure, adolescents and young adults (AYA) who complete cancer treatment remain at risk for numerous physical and psychological late effects. However, engagement in recommended follow-up care, knowledge of cancer treatment history and risks, and adoption of health promoting behaviors are often suboptimal. The pilot randomized controlled trial assessed the feasibility and acceptability of a text messaging intervention (THRIVE; Texting Health Resources to Inform, motiVate, and Engage) designed to promote well-being, and health knowledge and behaviors. Methods: Sixty-one AYA who recently completed cancer therapy enrolled and were randomized to receive THRIVE (n = 31) or an AYA survivor handbook (n = 30). Participants from both groups completed baseline measures and follow-up surveys 16 weeks later. AYA randomized to THRIVE received one to two health-related text messages per day over 16 weeks.Results: THRIVE demonstrated a high level of acceptability and feasibility. Exploratory analyses highlighted promising improvements in knowledge, fruit/vegetable intake, and perceptions of health vulnerability. Conclusions:Text messaging is an acceptable and feasible intervention approach for improving well-being and health of AYA survivors. Future research is needed to test the impact of text messaging in a larger trial, including whether or not such an intervention can improve clinical outcomes, such as survivors' engagement in follow-up care.

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Section: Discussionmentioning

confidence: 99%

Feasibility and acceptability of a pilot tailored text messaging intervention for adolescents and young adults completing cancer treatment

Schwartz

Daniel²,

Henry‐Moss

et al. 2019

Psycho-Oncology

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“…The second wave of this intervention is described in a separate publication [49] and is currently being tested in a randomized controlled trial.…”

Section: Discussionmentioning

confidence: 99%

Text Message Responsivity in a 2-Way Short Message Service Pilot Intervention With Adolescent and Young Adult Survivors of Cancer

Psihogios¹,

Li²,

Butler³

et al. 2019

JMIR Mhealth Uhealth

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B ackground: Text message interventions hold promise for adolescents and young adults (AYAs) with chronic health conditions, including childhood cancer survivors; however, engagement is often suboptimal. Limited research has studied mobile health intervention outcomes beyond efficacy. Understanding responsivity to different types of text messages (ie, when a participant texts back) can provide practical, actionable information to optimize engagement in future projects. Objective Within a 2-way text messaging study in AYAs who recently completed treatment for cancer, we sought to evaluate text message responsivity across different types of text messages. Methods AYAs who recently completed treatment for cancer (n=26; mean age=16 years; 62% female, 16/26 participants) received 2-way text messages about survivorship health topics over a 16-week period. Using participants’ text message log data, we coded responsivity to text messages and evaluated trends in responsivity to unprompted text messages and prompted text messages of varying content (eg, medication reminders, appointment reminders, and texts about personal experiences as a cancer survivor). Results Across prompted and unprompted text messages, responsivity rapidly decreased ( P ≤.001 and =.01, respectively) and plateaued by the third week of the intervention. However, participants were more responsive to prompted text messages (mean responsivity=46% by week 16) than unprompted messages (mean responsivity=10% by week 16). They also demonstrated stable responsivity to certain prompted content: medication reminders, appointment reminders, goal motivation, goal progress, and patient experience texts. Conclusions Our methodology of evaluating text message responsivity revealed important patterns of engagement in a 2-way text message intervention for AYA cancer survivors.

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“…The study was IRB‐approved from the two study sites—a pediatric cancer center and the partnering adult academic cancer center—and was registered at clinicaltrials.gov (NCT03363711). Details of the intervention development were previously reported 2 . Informed consent was obtained from AYA or from parent/guardian (for AYA <18 years old).…”

Section: Methodsmentioning

confidence: 99%

“…The goal of this efficacy trial was to test the impact of the app and the SCP on self‐management versus delivery of an SCP alone, via a randomized controlled trial (RCT) known as AYA self‐management via texting, education & plans for survivors (AYA STEPS). While we previously reported on the intervention development, 2 and with longer term efficacy outcomes pending, we aim to provide generalizable knowledge on feasibility and acceptability of this digital health RCT to improve self‐management of AYA survivors.…”

Section: Introductionmentioning

confidence: 99%

Acceptability and feasibility of survivorship care plans and an accompanying mobile health intervention for adolescent and young adult survivors of childhood cancer

King‐Dowling

Psihogios

Hill‐Kayser

et al. 2021

Pediatric Blood & Cancer

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Background: Self-management interventions for adolescent and young adult (AYA) survivors of childhood cancer are needed. The present study reports on the acceptability and feasibility of delivering survivorship care plans (SCPs) and an accompanying app to AYA. Procedure: AYA (n = 224) ages 15-29 who completed treatment for cancer were randomized and received a digital SCP only or an SCP plus a mobile app intended to enhance self-management. For 16 weeks, the app delivered one to two daily messages complementing information in their SCP and tailored based on age, treatment, and health goal. Data are presented on feasibility, self-reported acceptability (including satisfaction and perceived benefits) and its relationship to app engagement (for those in app group), and feedback from qualitative interviews conducted with 10 AYA. Results: The SCP and app proved feasible as evidenced by high recruitment and retention, access to technology, time analysis, moderate app engagement, and minimal technical issues. However, 12% reported never reading the SCP and 8% never used the app. The app and SCP were acceptable to AYA, and SCP acceptability ratings did not differ between groups. For those with the app, acceptability was positively related to message engagement. AYA recommended enhanced individualization and design features of the SCP and app.

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Iterative Development of a Tailored mHealth Intervention for Adolescent and Young Adult Survivors of Childhood Cancer

Cited by 22 publications

References 27 publications

Feasibility and acceptability of a pilot tailored text messaging intervention for adolescents and young adults completing cancer treatment

Feasibility and acceptability of a pilot tailored text messaging intervention for adolescents and young adults completing cancer treatment

Text Message Responsivity in a 2-Way Short Message Service Pilot Intervention With Adolescent and Young Adult Survivors of Cancer

Acceptability and feasibility of survivorship care plans and an accompanying mobile health intervention for adolescent and young adult survivors of childhood cancer

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