Just dance with me: an authentic partnership approach to understanding leisure in the dementia context

“To be, or not to be”: experiencing deterioration among people with young-onset dementia living alone

“…The diagnosis of dementia, its signs and symptoms, place the person within the biomedical model, thus transforming the person into a patient. With the intention to change the culture of care, different concepts are introduced as person-centred care (Edvardsson, Winblad, & Sandman, 2008; Kitwood, 1997), person-directed care (Fox, Norton, Rashap, Angelelli, & Tellis-Nayak et al, 2005), relationship-centred care (Suchman, 2006) and authentic partnerships in care (Dupuis et al, 2012). It is vital that intentions of transforming public care to be person-orientated, supporting the identities of the persons with dementia, do not underrate the influences of the cultural and organizational/economic context (McCormack et al, 2002).…”

Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences

“…day trips and daily leisure) and holidays (Tedrick 1999). Genoe and Dupuis (2011) epitomise one strand of an evolving interest in leisure and dementia that demonstrate the benefits of leisure for people with dementia such as enabling people to 'be me, to be with others, the pursuit of freedom, finding balance, making a difference, growing and developing and having fun' (Dupuis et al 2012). The critical role of daily leisure activities create the opportunity for mental stimulation from the various environmental stimuli and therefore out of home leisure (daily leisure pursuits such as walking in the park or open spaces or gardens, or less regular day trips and holidays) contribute to the stimulus of new and sometimes familiar environments out of the daily routine.…”

Sharing the Journey: Exploring a Social Leisure Program for Persons with Dementia and Their Spouses

“…It was through leisure that persons with dementia could sustain valued aspects of themselves and emphasize their abilities. In examining what leisure means for persons with dementia in both community and LTC settings, Dupuis et al (2012) discovered that during leisure persons with dementia find opportunities for self-expression, social connection, fun and playfulness, making a contribution, breaking from routine, finding balance, and growing and developing.…”

“…While an increasing number of leisure researchers have focused their attention toward examining social injustices and inequities taking place in leisure contexts and practices (e.g., Mowatt & Schmalz, 2014;Parry, Johnson, & Stewart, 2013;Stewart, 2014), there remains limited leisure scholarship exploring the marginalization and exclusion persons with dementia face in leisure practices and spaces (for exceptions see Dupuis et al, 2012;Genoe, 2010) and even less research has explored this issue with spousal couples. Given that dementia impacts both members of a spousal couple individually as well as together as a couple (Daniels, Lamson, & Hodgson, 2007), we contend more attention needs to be directed toward the types of leisure practices and spaces that provide spousal couples with the opportunity to feel connected to others and help liberate them from the exclusion they experience in their leisure lives.…”