Keeping the person with dementia and the informal caregiver together: a systematic review of psychosocial interventions

Rausch, Annemarie; Caljouw, Monique A. A.; Ploeg, Eva Simone van der

doi:10.1017/s1041610216002106

Cited by 31 publications

(31 citation statements)

References 30 publications

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“…Despite the impacts of dementia spanning individuals and their families, there is limited existing research investigating the effects of psychosocial interventions for people with dementia and their caregivers together (Wadham et al, 2016;Rausch et al, 2017). While dyad-based group music therapy programs demonstrate promise, to date, this research has focused on the effects of therapeutic singing (Clark et al, 2018;Tamplin et al, 2018).…”

Section: Group Therapeutic Songwriting With People With Dementia and mentioning

confidence: 99%

“…A group approach was used based on positive findings from previous music therapy research including meaningful individual, shared, and social experiences from group interventions where dyads participated together (Unadkat et al, 2017;Clark et al, 2018;Tamplin et al, 2018), as well as from systematic reviews which suggest that these benefits may enhance feelings of mutuality (Wadham et al, 2016;Rausch et al, 2017). A protocol was developed to guide facilitation of the TSW sessions and meet the diverse needs of each participant as an individual and the group as a whole.…”

Section: Group Therapeutic Songwriting Interventionmentioning

confidence: 99%

“…Further, reviewers noted that a majority of programs were attended separately by either informal caregivers (n = 147) or people with dementia (n = 43), and no studies investigated psychosocial interventions with dyads where the person with dementia was living in residential care (Rausch et al, 2017). Evidently, there is a strong need for meaningful psychosocial interventions in both community and residential care contexts that are tailored for dyads comprising people with dementia and their family caregivers attending together (Van Bruggen et al, 2016;Rausch et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

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“It’s Feasible to Write a Song”: A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers

et al. 2020

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Background: Psychosocial interventions for people with dementia and their family caregivers together may sustain relationship quality and social connection. No previous music therapy research has examined the effects of group therapeutic songwriting (TSW) attended by people with dementia/family caregiver dyads. Methods: This pre-post feasibility study aimed to examine the acceptability of a group TSW intervention for people with dementia/family caregiver dyads and test the sensitivity of the following outcomes: Quality of the Caregiver-Patient Relationship (QCPR, primary); Cornell Scale for Depression in Dementia (CSDD) and Quality of Life-Alzheimer's Dementia for people with dementia, Patient Health Questionnaire-9, Assessment of Quality of Life-8 Dimensions (AQoL-8D); and Zarit Burden Interview for family caregivers. Six weekly 1 h sessions guided participants to identify preferred music, brainstorm ideas, create lyrics, and record songs. Qualitative interviews were conducted with dyads who completed the intervention. Results: Fourteen dyads were recruited and completed baseline assessments. Participants with dementia were aged 62-92 years (M = 77, SD = 11). Caregiver participants (11 spouses, two daughters, one son) were aged 54-92 years (M = 67, SD = 10.1). Four dyads withdrew owing to declining health or inconvenience before the program commenced (n = 2) and after attending 1-2 sessions (n = 2). Ten dyads formed four homogeneous TSW groups (71% completion). No statistically significant changes were detected for any measure. High QCPR ratings at baseline (M = 57.1) and follow-up (M = 57.4) demonstrated sustained relationship quality. For participants with dementia, large effect sizes for the CSDD suggested trends toward decreased depression (d =-0.83) and improved mood (d =-0.88). For family caregivers, a large effect size suggested a trend toward improvement for the AQoL-8D sub-domain examining independent living (d =-0.93). Qualitative data indicated that session design and delivery were acceptable, and TSW was a positive shared experience with personal benefits, which supported rather than changed relationship quality.

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Section: Group Therapeutic Songwriting With People With Dementia and mentioning

confidence: 99%

Section: Group Therapeutic Songwriting Interventionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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“It’s Feasible to Write a Song”: A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers

et al. 2020

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“…Así, Cheng y su equipo (2017) demuestran los efectos positivos que las intervenciones basadas en la reevaluación cognitiva generan en los cuidadores, Van Knippenberg et al (2016) confirman que la intervenciones basadas en la metodología de muestreo conllevan a emociones positivas y sentimientos de competencia en el proceso de cuidados o Rausch, Caljouw & Van (2017), los cuales llevan a cabo una revisión sistemática con el objetivo de explorar los diferentes tipos de intervenciones existentes y los resultados que generan.…”

Section: Modelo De Ecuaciones Estructuralesunclassified

La influencia del apoyo social en cuidadores de personas con deterioro cognitivo o demencia.

Antelo

Espinosa²

2017

R Est Inv Psico y Educ

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La influencia del apoyo social en cuidadores de personas con deterioro cognitivo o demencia.The influence of social support on caregivers of people with cognitive impairment or dementia.Paula Antelo *, Pablo Espinosa * *Universidad de A Coruña, ResumenEl apoyo social se define como un conjunto de transacciones que implican ayuda, afecto y afirmación. Así, el objetivo de la investigación ha sido desarrollar un modelo que explique como la frecuencia de cuidados influye en la satisfacción de los cuidadores de personas con deterioro cognitivo o demencia a través de variables como el apoyo social o la sobrecarga. Los resultados obtenidos confirman que la frecuencia de cuidados predice la satisfacción. Asimismo, se demuestra que están mediados por el apoyo social y la sobrecarga, conllevando el primero a una mayor satisfacción y la sobrecarga a una disminución de la misma. Palabras clave: apoyo social, cuidadores, deterioro cognitivo, sobrecarga AbstractSocial support is defined as a set of transactions that involve help, affection, and affirmation. The objective of the research has been to develop a model that explains how the frequency of care influences the satisfaction of caregivers of people with cognitive impairment or dementia through such variables as social support or overload. The results confirm that the frequency of care predicts satisfaction. Likewise, it is shown that they are mediated by social support and overload, leading to the first to greater satisfaction and the overload to a decrease in it.

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“…While disease-modifying treatments for dementia remain elusive (Baskys & Hou, 2007;Winblad et al, 2016), the interim focus must be on maintaining the health and well-being of both members of the dyad living in the community (Rausch, Caljouw, & van der Ploeg, 2017). Policy makers must therefore enact appropriate supports that maximise potential for CRs to remain at home while also reducing the negative impacts on carers (Brodaty & Cumming, 2010).…”

mentioning

confidence: 99%

Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities

Harkin¹,

O'Connor

Birch³

et al. 2020

Health Soc Care Community

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The majority of people living with dementia reside in the community and are often reliant on the support of informal carers to do so. Family carers face many challenges in supporting the person with dementia to remain at home, and short‐term respite care is a valued service that offers a temporary break from the role. Respite cottages provide short‐term care in a residential home‐like setting with a limited number of clients and is a more flexible approach to accessing the service. Disproportionate use of cottage respite in Australia suggests this model is preferred over traditional respite within residential aged care facility (RACF) settings, yet limited research exists to compare these models. This study sought to understand the perceptions of carers who had used cottage respite in comparison to other models, and explore the contribution of cottage respite for supporting carers to continue in their role and maintain their care recipient (CR) living at home. Semi‐structured interviews were conducted with 126 family carers who had used one of two New South Wales‐based respite cottages within a 2‐year period; 67 of whom had also used RACF respite. Thematic analysis revealed four main themes around the benefits of cottage respite: (a) an effective essential service, (b) flexibility, (c) familiarity and (d) appropriateness, especially for early stage or younger onset dementia. Carers indicated that the more homely, familiar and intimate cottage model of respite care was preferential to that of the larger, institutional‐style RACF respite setting. Carers credited the cottage model of respite service with delaying their need for permanent residential placement by over 12 months. The cottage respite model provides an important avenue to supporting the individual needs of dementia dyads, with potential to delay permanent placement, and should be offered more broadly to provide people with more choice about their care.

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Keeping the person with dementia and the informal caregiver together: a systematic review of psychosocial interventions

Cited by 31 publications

References 30 publications

“It’s Feasible to Write a Song”: A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers

“It’s Feasible to Write a Song”: A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers

La influencia del apoyo social en cuidadores de personas con deterioro cognitivo o demencia.

Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities

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