Keeping Users at the Center: Developing a Multimedia Interface for Informed Consent

Kim, Loel; Young, Amanda; Neimeyer, Robert A.; Baker, Justin N.; Barfield, Raymond

doi:10.1080/10572250802100451

Cited by 25 publications

(16 citation statements)

References 48 publications

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“…As noted by Kim, Young, Neimeyer, Baker, and Barfield (2008), a recurring challenge in any rhetorical situation concerning treatment research is that patients are often new to the world of medicine and to research in general. Exposed to a new world of unfamiliar words, they may become mired in a state of confusion and unfounded assumptions.…”

Section: Linguistic and Rhetorical Issuesmentioning

confidence: 98%

Redesigning Informed Consent Tools for Specific Research

Wright

2012

Technical Communication Quarterly

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Section: Linguistic and Rhetorical Issuesmentioning

confidence: 98%

Redesigning Informed Consent Tools for Specific Research

Wright

2012

Technical Communication Quarterly

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“…. Forms (Kim, Young, Neimeyer, Baker, & Barfield, 2008;Lavid & Taboada, 2004;Tebeaux, 2000;Varpio et al, 2007) This list is not meant to be exhaustive-more so, representative of articles that have invoked design in their abstracts published since 1999 in the Journal of Technical Writing and Communication, the Journal of Business and Technical Communication, and Technical Communication Quarterly. With such diversity in the artifacts that researchers study, it makes sense that multiple avenues to study these artifacts would make themselves available.…”

Section: Situating Design Researchmentioning

confidence: 99%

The Roles of Technical Communication Researchers in Design Scholarship

Sánchez

2016

Journal of Technical Writing and Communication

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Design has come to be understood as an essential aspect of the work that technical communicators claim. As a result, research in the field of technical communication has approached studies of design in numerous ways. This article showcases how technical communication researchers assume the roles of observers, testers, critics, creators, and consultants in their handling of design artifacts. Such a model regarding these roles may help us to better understand the design relationships researchers presume as they further knowledge of design within our field. This article offers a framework to leverage into a comprehensive and integrated model for explaining our work on design to others outside of technical communication. Keywords research in technical communication, design research, design, disciplinarityWithin the last few decades, visual design has become a commonplace skill that technical communicators have explicitly been expected to understand and implement in their work. As a result, technical communication researchers have devoted much attention to the study of design and its elements. In fact, in her review of the literature from over 10 years ago, Portewig (2004) noted that the technical communication scholarship on design at the time argued, in part, that we should pay attention to visuals and visualization in order to respond to their ascendance and to teach our students how to expand their role from authors to

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“… [5] Clinical investigators should be aware that the informed consent document alone does not assure the subject's full understanding of their participation. [6] Therefore, before the subject makes a decision, the research team should discuss the study purpose and procedures, risks and benefits, and the rights and obligations of the participant. [7] If the subject decides to participate, they will then sign the consent form.…”

Section: Introductionmentioning

confidence: 99%

Informed Consent: How Much Awareness Is There?

et al. 2014

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Improving the informed consent process in clinical research is of constant concern to regulatory authorities in the field and presents a challenge for both the specialists and patients involved. Informed consent is a process that should adequately match the complexity of clinical research. In analyzing the behaviour of 68 patients during the informed consent process related to the clinical research performed at Neomed Clinical Center in Brasov, we found that many patients do not ask any questions (35.3%). From those who do, part of the questions (20,6%) referred to general aspects (addressed the form but not the gist) of the clinical trial, some (72,8%) referred to specific aspects of the clinical trial they will attend and others (6,6%) unrelated to the clinical trial. These results suggest a lack of interest, awareness, and understanding of the information presented in the informed consent form. The possible underlying causes of this attitude and its bureaucratic, ethic, and legal implications are discussed.

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Keeping Users at the Center: Developing a Multimedia Interface for Informed Consent

Cited by 25 publications

References 48 publications

Redesigning Informed Consent Tools for Specific Research

Redesigning Informed Consent Tools for Specific Research

The Roles of Technical Communication Researchers in Design Scholarship

Informed Consent: How Much Awareness Is There?

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