Key Population Health Outcomes for Children with Medical Complexity: A Systematic Review

Impact of telemedicine on health outcomes in children with medical complexity: an integrative review

“…The 17 papers included in this integrative review offer a summary of the impact of TM on the use of healthcare services, unplanned and healthcare visits, family satisfaction, family wellbeing, child’s HRQOL, and costs. These are the main outcome measures recommended for monitoring the health conditions of CMC at home [ 47 ]. We found evidence of the impact of TM on the reduction of unplanned hospitalizations, family satisfaction, and reduction of healthcare and travel costs for CMC.…”

“…Family satisfaction is an essential indicator of family perception of care, family involvement, well-being, and care coordination. Currently available instruments used to measure CMC caregivers’ satisfaction [ 47 ] do not include specific items related to CMC’s experience of care. [ 64 ] such as time of travel to the hospital and stress related to the complexity of moving CMC’s technological devices [ 55 ].…”

“…Child and family quality of life was not found to be significantly affected by TM [ 51 , 61 , 62 ]. Child mental health, health promotion, and family quality of life are poorly studied in CMC despite the relevant role of the family and the burden of caring for these children on their caregivers [ 47 ]. A study suggests that in CMC and their families, quality of life is not correlated with healthcare satisfaction, or with the shift from inpatient to outpatient care [ 65 ].…”

“…A narrative synthesis for qualitative and quantitative studies was performed. Extracted data were compared item by item; similar data were compared, categorized, and grouped together according to Barnert’s classification of CMC outcome domains [ 44 , 47 ]. We reported numerical data from quantitative papers as well as point and interval estimates when available.…”

A National Mental Health Profile of Parents of Children With Medical Complexity

“…[7][8][9] Parents' mental health and wellness are linked to family well-being, but the association of child medical complexity with parent mental health and community support has not been well described. 10 To address this gap, we aimed to test the hypothesis that parents of CMC in a large national data set would have the highest odds of poor or fair mental health compared with parents of other noncomplex children with special health care needs (CSHCN) and children without special health care needs (non-CSHCN). In addition, because community support is key to the functioning of parents and the family unit, we sought to compare knowledge of community help and sources of emotional support among these 3 groups of parents.…”