Kidney and liver living donors: a comparison of experiences

Rudow, Dianne LaPointe; Charlton, Marian; Sanchez, Carla; Chang, Sara; Serur, David; Brown, Robert S.

doi:10.7182/prtr.15.2.yu362nq68181l738

Cited by 25 publications

(21 citation statements)

References 10 publications

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“…Clarity of research question (nϭ20) (11-14, 16, 17, 19, 20, 22-27, 29-33, 35) Methodology Sampling technique (nϭ6) (11,14,15,22,24,26) Inclusion criteria (nϭ9) (13-15, 20, 21, 24, 27, 32, 35) Exclusion criteria (nϭ4) (11,16,17,33) Recruitment approach (nϭ16) (11-14, 16, 17, 19, 21-28, 30) Setting (nϭ19) (11-14, 19-27, 30-33, 35) Population (nϭ24) (11)(12)(13)(14)(15)(16)(17)(19)(20)(21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(31)(32)(33)(34)(35) Sample size (nϭ24) (11)(12)(13)(14)(15)(16)(17)(19)(20)(21)(22)(23)…”

Section: Research Questionmentioning

confidence: 99%

“…Seven studies were conducted in the United States, whereas 17 were based in other countries. Two (8%) used a comparison group (30,33). Most studies were cross-sectional (83%) (11-17, 19 -31); only two collected data at two time points (32,33).…”

Section: Study Qualitymentioning

confidence: 99%

“…All quantitative studies described the survey tools and scoring approach. Three (25%) described the process of survey development (11,17,30), and two (16%) reported pilot-testing survey instruments (11,17). Three (25%) described the process of survey development (11,17,30), and two (16%) reported pilot-testing survey instruments (11,17).…”

Section: Quality Of Quantitative Studiesmentioning

confidence: 99%

“…The primary reasons for donating across most studies was to save the life of the recipient (United States [13,24,29,30], Asian [15,17,27,28], Europe [25,33]), along with love for the recipient and fear of losing the recipient (15-17, 20, 27, 28, 33). Reasons for donating varied by culture, whereas European donors emphasized feeling inescapable necessity, (16,20,25) and trust in the medical team (25,26), Asian donors reported feelings of familial duty, religious beliefs, the desire to comply with doctors' recommendations, relieve a recipient's suffering, and to avoid the guilt and criticism of others (15,17,20,27,28).…”

Section: Reasons For Donationmentioning

confidence: 99%

“…By contrast, donors in Asian studies decided to donate after discussing the option with family members, prior donors, and physicians (15)(16)(17), when test results demonstrated that they were the most suitable candidate, or when the patient's condition further deteriorated (15,17). Most donors (55% [30] to 71% [17]) found it easy to decide to donate, whereas a large minority (14%-23%) reported hesitation or doubt (16,17,20,26). Most donors (55% [30] to 71% [17]) found it easy to decide to donate, whereas a large minority (14%-23%) reported hesitation or doubt (16,17,20,26).…”

Section: Decision-making Processmentioning

confidence: 99%

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Informed Consent and Decision-Making About Adult-to-Adult Living Donor Liver Transplantation: A Systematic Review of Empirical Research

et al. 2011

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Adult-to-adult living donor liver transplantation (LDLT) is a complex procedure that poses serious health risks to and provides no direct health benefit for the donor. Because of this uneven risk-benefit ratio, ensuring donor autonomy through informed consent is critical. To assess the current knowledge pertaining to informed consent for LDLT, we conducted a systematic review of the empirical literature on donors' decision-making process, comprehension about risks and outcomes, and information needs for LDLT. Of the 1423 identified articles, 24 met final review criteria, representing the perspective of approximately 2789 potential and actual donors. As donors' decisions to donate often occur before evaluation, they often make uninformed decisions. The review found that 88% to 95% of donors reported understanding information clinicians disclosed about risks and benefits. However, donors reported unmet information needs, knowledge gaps regarding risks, and unanticipated complications. Few donors reported feeling pressure to donate. Most studies were limited by cultural differences, small sample sizes, inconsistent measures, and poor methodological approaches. This systematic review suggests that informed consent for LDLT is sub-optimal as donors do not adequately appreciate disclosed information during the informed consent process, despite United Network for Organ Sharing/CMS regulations requiring formal psychological evaluation of donor candidates. Interventions are needed to improve donor-clinician communication during the LDLT informed consent process such as through the use of comprehension assessment tools and e-health educational tools that leverage adult learning theory to effectively convey LDLT outcome data.

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Section: Research Questionmentioning

confidence: 99%

Section: Study Qualitymentioning

confidence: 99%

Section: Quality Of Quantitative Studiesmentioning

confidence: 99%

Section: Reasons For Donationmentioning

confidence: 99%

Section: Decision-making Processmentioning

confidence: 99%

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Informed Consent and Decision-Making About Adult-to-Adult Living Donor Liver Transplantation: A Systematic Review of Empirical Research

et al. 2011

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Survey of medical students about attitudes toward organ donation

Topić

Brkljačić

Grahovac

2006

Dialysis & Transplantation

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Objective. The aim of this study was to assess and explore medical students' attitudes toward tissue and organ donation and their willingness to donate their own organs or those of a deceased relative in a setting without well-organized organ donation programs and education. Methods. Medical students from all 6 years of medical studies were surveyed using a questionnaire that included attitude and willingness measures. We also asked the medical students about the feelings they would expect to experience if they had the responsibility of asking family members of a recently deceased patient about donating the patient's organs. Results. Participants had highly positive attitudes toward tissue and organ donation and a great willingness to donate tissues and organs. Students in this study were more willing to donate if the purpose was helping others than if the purpose was to help the development of science, and they were more willing to donate their own organs than those of a deceased family member. Although students were willing to donate all organs, the organ they were most willingness to donate after death was the kidney. Participants who had signed donor cards held more positive attitudes about organ donation and were more willing to donate organs than were participants who had not signed donor cards. More than half the medical students said they would feel uncomfortable if in a situation of asking others for organ donation. Conclusions. These findings suggest there is a constant need for structured education of medical students in the practical, legal, and ethical aspects of organ and tissue donation.

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The Psychosocial and Independent Living Donor Advocate Evaluation and Post-surgery Care of Living Donors

Rudow

Swartz

Phillips

et al. 2015

J Clin Psychol Med Settings

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Kidney and liver living donors: a comparison of experiences

Abstract: Donors in both groups reported favorable outcomes. A greater concern for risk of death, bleeding, altered appearance, and infection existed among liver donors compared to kidney donors. The actual outcomes were better than the perceived risks.

Cited by 25 publications

References 10 publications

Informed Consent and Decision-Making About Adult-to-Adult Living Donor Liver Transplantation: A Systematic Review of Empirical Research

Informed Consent and Decision-Making About Adult-to-Adult Living Donor Liver Transplantation: A Systematic Review of Empirical Research

Survey of medical students about attitudes toward organ donation

The Psychosocial and Independent Living Donor Advocate Evaluation and Post-surgery Care of Living Donors

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