Kidney organ donation: developing family practice initiatives to reverse inertia

Symvoulakis, Emmanouil K.; Stavroulaki, Emily; Morgan, Myfanwy; Jones, Roger

doi:10.1186/1472-6963-10-127

Cited by 10 publications

(9 citation statements)

References 41 publications

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“…Additional ideas in the literature that have not yet been tested but may offer an acceptable safety margin include offering other benefits such as paying for education, performing donor surgery during an elective surgical procedure such as cholecystectomy, engaging primary care providers as educators for their healthy patients who might consider living donation, and providing health insurance benefits to donors for life [29,34]. Not only have these ideas not been tested for their impact on donation, but they also have not been assessed as to their impact on donor survival or development of kidney disease.…”

Section: Introductionmentioning

confidence: 99%

How to increase living donation

Davis¹

2011

Transplant International

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Summary Living donation is the key to increasing access to successful solid organ transplantation worldwide. However, the means to expanding the number of living donors on a global scale are not known. Although there have been many suggestions for the best approach, cultural issues may limit the effectiveness of some strategies. Only a few ideas have been studied, and one in particular– outright payment to donors – may raise ethical issues that are difficult to surmount and might negatively alter altruistic behavior. With respect to the present environment, this article will describe some of the approaches that are being discussed to increase the number of living donors, with a particular focus on kidney transplantation.

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Section: Introductionmentioning

confidence: 99%

How to increase living donation

Davis¹

2011

Transplant International

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“…Patients suffering from chronic kidney disease who stand to benefit from transplantation have steadily risen over the last two decades and renal transplantation has long been considered an acceptable and popular operation as the "last" option for someone who is suffering from end-stage organ failure (Iglesia-Marquez, et al, 2001;Waterman, et al, 2004;Wright, Richardson & Grant, 2004;Stothers, Gourlay & Liu, 2005;Taylor & McMullen, 2007;Symvoulakis, Stavroulaki, Morgan & Jones, 2010). The numbers of transplants derived from living kidney donors is rising steadily (Horvat, 2009;VanGelder, et al, 2009;Excell, 2010;Transplant Living, 2010), but the thorny issue remains and it is unclear whether the conflict of benefiting one patient by potentially harming another has been fully rectified.…”

Section: Primum Non Nocere: First Do No Harmmentioning

confidence: 99%

The living donor study: the concepts and frames of living kidney donors

Cunningham¹,

Leach²,

Fawcett³

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This thesis explores the concepts and frames of living kidney donors through the use of recorded and transcribed conversations between living kidney donor patients and their transplant team. It offers insight into the expectations of living kidney donors as they prepare themselves to gift a kidney to someone they know.Living kidney donor frames are represented as particularly resilient and well-defined, shielding them from messages delivered by their transplant team. Those frames incorporate their acceptance as living kidney donors, the risk to themselves and their own personal definitions of autonomy and choice.With the intention of using phenomenological discourse analysis to examine the recorded and transcribed data, ten potential living kidney donors and their recipients were invited to take part in a PhD project entitled the Living Donor Study at the Princess Alexandra Hospital, in Queensland Australia. Transcriptions were analysed using line-by-line and axial coding and living donor transcripts were repeatedly compared with one another in order to reach an appropriate level of saturation and provide evidence of re-emerging concepts and frames.Data for the Living Donor Study were obtained during the living kidney donor's initial transplant assessment clinic visit. The purpose of this project was to examine prospective accounts of the living donation experience using conversations with their transplant team as opposed to using retrospective questionnaires and interviewing methods. By eliminating much of the subjectivity that is common in ex post facto interviews, I was able to identify many of the concepts that assist living kidney donors in framing their experience and how those frames impact upon their expectations of the transplant assessment clinic and their upcoming donation.

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“…The key role that general and family practitioners (GPs/FPs) can play in reaching out to their communities to dispel organ donation myths and reinforce positive attitudes has been the subject of a recent debate 11. This brief communication aims to explore awareness, specific concerns and intentions about the new organ donation framework among patients attending Greek general practices in a rural and urban setting.…”

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confidence: 99%

“…However, hasty implementation of this model at a time of great economic and societal pressure is more likely to conflict with peoples' spontaneous intention for solidarity, resulting in strong sentiments. Social negativism within the wider context of national hardships, reinforced by limited information on organ donation, can seriously hinder the transition to a reformed transplantation system 9,11. The disruption and strong reactions caused by social negativism or uncertainty can be seen in the undergoing initiative by the Greek Federation of Consumers (INKA) against the new law with calls to opt-out and by planning to appeal its implementation in a court of law 16.…”

mentioning

confidence: 99%

Shifting towards an Opt-Out System in Greece: A General Practice Based Pilot Study

Symvoulakis¹,

Markaki²,

Galanakis³

et al. 2013

Int. J. Med. Sci.

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New legislation in Greece towards presumed consent for organ donation, effective as of June 2013, has come at a critical moment. This pilot study aims to explore awareness, specific concerns and intentions about the new organ donation framework among patients attending Greek general practices in a rural and urban setting. Only 2.6% of respondents had a donor card, a mere 9.6% was aware of new legislation, whereas only 3.8% considered that the public had been adequately informed. Higher income respondents were more likely to be aware that they would be considered organ donors upon death, unless declared differently. Urban practice respondents were less likely to have previously discussed with a significant other their intentions in regards to presumed consent. One quarter of all respondents (22.4%) intended to carry out their right to prohibit organ removal upon death. Survey results reveal that organ donation reform has yet to be disseminated by the Greek society, underscoring the urgency for targeted information campaigns.

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Kidney organ donation: developing family practice initiatives to reverse inertia

Cited by 10 publications

References 41 publications

How to increase living donation

How to increase living donation

The living donor study: the concepts and frames of living kidney donors

Shifting towards an Opt-Out System in Greece: A General Practice Based Pilot Study

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