KIDSCREEN-52 quality-of-life measure for children and adolescents

Ravens‐Sieberer, Ulrike; Gosch, Angela; Rajmil, Luís; Erhart, Michael; Bruil, J.; Duer, Wolfgang; Auquier, Pascal; Power, Michael; Abel, Thomas; Czemy, Ladislav; Mazur, James E.; Czimbalmos, Agnes; Tountas, Yannis; Hagquist, Curt; Kilroe, Jean

doi:10.1586/14737167.5.3.353

Cited by 644 publications

(643 citation statements)

References 23 publications

Supporting

Mentioning

572

Contrasting

Unclassified

Order By: Relevance

“…The translation and validation of KIDSCREEN 52 provided clinicians and researchers with a validated Portuguese version that allowed not only establishing the state of art in Portugal, but also allowed for cross country comparisons (The KIDSCREEN Group Europe, 2006;Ravens-Sieberer et al, 2005). Now the KIDSCREEN 10 provided not only clinicians and researchers but also general practitioners and researchers with a sound instrument to estimate HRQOL in children and adolescents.…”

Section: Discussionmentioning

confidence: 99%

“…Before the project KIDSCREEN there were no standardized cross-cultural relevant instruments for application with equivalence in paediatric populations in different European populations from different countries (Rajmil et al, 2004;RavensSieberer et al, 2001;Ravens-Sieberer et al, 2005). Apart from that, the subjective health has been considered of utmost importance to consider the state of health in national samples in international studies and regarding the measurement of perceptual indicators of health, namely the collaborative study of the World Health Organization (WHO), Health Behaviour in School Aged Children ([HBSC], Currie, Hurrelmann, Settertobulte, Smith, & Todd, 2000;Currie et al, 2004;Currie, Samdal, Boyce, & Smith, 2001;Matos et al, 2000Matos et al, , 2003Ravens-Sieberer et al, 2009).…”

mentioning

confidence: 99%

See 1 more Smart Citation

Health-related quality of life in portuguese children and adolescents

Matos¹,

Gaspar²,

Simões³

2012

Psicol. Reflex. Crit.

View full text Add to dashboard Cite

The KIDSCREEN is a European cross-cultural and standardized instrument that assesses ten quality of life dimensions in children, adolescents and their parents. This instrument is used to validate evidences to support general inferences on quality-of-life measures obtained by the Portuguese version of KIDSCREEN-10 for children and adolescents, in the context of a survey research carried on in Portugal. The present study focuses only on the KIDSCREEN children and adolescents' versions. A sample of 8072 Portuguese children and adolescents attending the 5 th grade (19.3%), 6 th grade (19.2%), 7 th grade (20.3%), 8 th (21.6%) and 10 th grade (19.7%) in Portuguese schools were inquired, with a mean age of 13.2; SD 2.06, randomly distributed regarding gender. The Portuguese version of KIDSCREEN-10 instrument showed a good Internal Consistency of .78. Chosen fit indexes indicate good fit to the data. Specifically in the final solution the RMSEA was lower than .03 and the upper limit of 90% confidence interval was lower than .05, and CFI was higher than .95. Results indicated that the current 10-item structure is invariant across age groups, nationality and socio-economic level. The KIDSCREEN-10 questionnaire is a reliable instrument to estimate the perception of quality of life in children and adolescents. Psychometric guidelines are presented for the Portuguese population aged 10 to 16 years old. Keywords: Assessment, health-related quality of life, children and adolescents. ResumoO KIDSCREEN é um instrumento europeu transcultural e padronizado que avalia dez dimensões da qualidade de vida de crianças, adolescentes e seus pais. Este instrumento é usado para validar evidências a fim de apoiar inferências gerais sobre medidas de qualidade de vida obtidas pela versão portuguesa do KIDSCREEN-10 para crianças e adolescentes, no contexto de uma pesquisa de investigação feita em Portugal. O presente estudo centra-se apenas na versão KIDSCREEN para adolescentes e crianças. Uma amostra de 8.072 crianças e adolescentes portugueses frequentando a 5ª série (19,3%), 6ª série (19,2%), 7ª série (20,3%), 8ª série (21,6%) e 10ª série (19,7%) em escolas do país foram intrevistadas, com uma idade média de 13,2; DP 2,06, distribuídos aleatoriamente em relação ao sexo. A versão portuguesa do instrumento KIDSCREEN-10 mostrou uma boa consistência interna de 0,78. Os índices de ajuste escolhidos indicam bom ajuste aos dados. Especificamente na solução final o RMSEA foi inferior a 0,03, o limite superior do intervalo de confiança de 90% foi inferior a 0,05 e CFI foi superior a 0,95. Resultados indicaram que a estrutura atual do item 10 é invariável entre grupos de idade, nacionalidade e nível socio-econômico. O questionário KIDSCREEN-10 é um instrumento confiável para estimar a percepção da qualidade de vida em crianças e adolescentes. Orientações psicométricas são apresentadas para a população portuguesa entre 10 e 16 anos de idade. Palavras-chave: Avaliação, qualidade de vida relacionada à saúde, crianças e adolescentes.Children and ...

show abstract

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

Health-related quality of life in portuguese children and adolescents

Matos¹,

Gaspar²,

Simões³

2012

Psicol. Reflex. Crit.

View full text Add to dashboard Cite

show abstract

“…Normal values of the Kidscreen and the NeuroQoL were provided by the investigators,32, 33 and results are expressed as standard deviations (SDs) from the mean.…”

Section: Methodsmentioning

confidence: 99%

Facioscapulohumeral Dystrophy in Childhood: A Nationwide Natural History Study

Goselink

Schreuder

Alfen

et al. 2018

Annals of Neurology

View full text Add to dashboard Cite

ObjectiveFacioscapulohumeral dystrophy (FSHD) is one of the most frequent heritable muscular dystrophies, with a large variety in age at onset and disease severity. The natural history and molecular characteristics of FSHD in childhood are incompletely understood. Our objective is to clinically and genetically characterize FSHD in childhood.MethodsWe performed a nationwide, single‐investigator, natural history study on FSHD in childhood.ResultsMultiple‐source recruitment resulted in 32 patients with FSHD (0–17 years), leading to an estimated prevalence of 1 in 100,000 children in The Netherlands. This series of 32 children with FSHD revealed a heterogeneous phenotype and genotype in childhood. The phenotypic hallmarks of FSHD in childhood are: facial weakness with normal or only mildly affected motor performance, decreased functional exercise capacity (6‐minute walk test), lumbar hyperlordosis, and increased echo intensity on muscle ultrasonography. In addition, pain and fatigue were frequent and patients experienced a lower quality of life compared to healthy peers. In contrast to the literature on early‐onset FSHD, systemic features such as hearing loss and retinal and cardiac abnormalities were infrequent and subclinical, and epilepsy and intellectual disability were absent. Genotypically, patients had a mean D4Z4 repeat array of 5 units (range, 2–9), and 14% of the mutations were de novo.InterpretationFSHD in childhood is more prevalent than previously known and the genotype resembles classic FSHD. Importantly, FSHD mainly affects functional exercise capacity and quality of life in children. As such, these results are paramount for counseling, clinical management, and stratification in clinical research. Ann Neurol 2018;84:635–645

show abstract

“…It has a Cronbach's Alpha of above 0.7 11 . Furthermore, it was used and tested in several prospective and epidemiologic studies which involved over 5,000 healthy and chronically ill children 12 .…”

Section: Introductionmentioning

confidence: 99%

Adaptação cultural e validação do Questionário KINDL no Brasil para adolescentes entre 12 e 16 anos

Teixeira

Novais

Pinto

et al. 2012

Rev. bras. epidemiol.

View full text Add to dashboard Cite

Objective: Obtain a Portuguese version of the Kiddo-KINDL questionnaire that is semantic and culturally equivalent to the original version. Methods: For the adaptation, the methodology of direct and inverse translation was used. The questionnaire was applied to groups from three schools in Uberlândia, MG -Brazil, and comprised of 378 children and adolescents aged between 12 and 16. 16% of the students were randomly selected to repeat the test. In the statistical analysis, the following aspects were appraised and analyzed such as: lost data, floor and ceiling effect, internal consistence of the item and reliability of the internal consistence of the scales. Results:The percentage of lost data in the scales was low varying between 1.6% to 2.57%, which indicates good acceptability of the questionnaire. The rates of floor and ceiling effect were lower than 12% suggesting that the instrument is sensitive to detect differences in quality of life related to the health of the children and adolescents ranked within the extreme ends. The Kiddo-KINDL as a whole has shown high reliability (Alpha Cronbach = 0.79). Conclusion: The Kiddo-KINDL is a reliable tool to be used with children and adolescents in Brazil, and has provided important data of multidimensional nature. Keywords ResumoObjetivo: Obter uma versão em português do questionário Kiddo-KINDL que seja semântica e culturalmente equivalente à versão original. Métodos: Para a adaptação, utilizou-se a metodologia de tradução direta e inversa. O questionário foi aplicado nas salas de aula em três escolas de Uberlândia, MG, em 378 crianças/adolescentes com idade entre 12 e 16 anos completos, dentre os quais 16% foram selecionados aleatoriamente para fazer o reteste. Na análise estatística foram avaliados os dados perdidos, efeito piso e teto, consistência interna do item e confiabilidade da consistência interna das escalas. Resultados: A porcentagem de dados perdidos nas escalas foi baixa, variando de 1,6% a 2,57%, indicando uma boa aceitabilidade do questionário. As taxas de efeito piso e teto encontradas sugerem a possibilidade de o instrumento ser sensível para detectar diferenças na qualidade de vida relacionada à saúde entre as crianças/ adolescentes situadas nos extremos. A confiabilidade do Kiddo-KINDL mostrou-se adequada em geral, exceto na escala bem--estar físico. Conclusão: O Kiddo-KINDL é um instrumento confiável para ser utilizado em crianças e adolescentes no Brasil, fornecendo dados importantes de natureza multidimensional. Palavras

show abstract

KIDSCREEN-52 quality-of-life measure for children and adolescents

Cited by 644 publications

References 23 publications

Health-related quality of life in portuguese children and adolescents

Health-related quality of life in portuguese children and adolescents

Facioscapulohumeral Dystrophy in Childhood: A Nationwide Natural History Study

Adaptação cultural e validação do Questionário KINDL no Brasil para adolescentes entre 12 e 16 anos

Contact Info

Product

Resources

About