Knowledge about cochlear implantation: A parental perspective

Aloqaili, Yazeed; Arafat, Abdullah; Almarzoug, Alanoud; Alalula, Lama S.; Hakami, Alanoud; Almalki, Malak; Alhuwaimel, Lamya

doi:10.1080/14670100.2018.1548076

Cited by 15 publications

(4 citation statements)

References 8 publications

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“…In line with existing research [ 41 , 42 , 43 ], implant wearers had to adjust to the device and the “new” hearing experience with the implant, which required great effort. Furthermore, for successfully navigating through the healthcare system, implant wearers need to be able to understand and evaluate the importance of certain technical choices (e.g., the brand of the implant), make informed decisions on surgery or to decide among different health services and providers [ 32 , 44 , 45 , 46 , 47 ]. As outlined in the previous ( Section 4.1 ) cochlear-implant wearers need information on technical and acoustics-related information.…”

Section: Discussionmentioning

confidence: 99%

Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

Hübner

Lorke

Buchholz

et al. 2022

IJERPH

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The continuous development of medical implants offers various benefits for persons with chronic conditions but also challenges an individual’s, and the healthcare system’s, ability to deal with technical innovation. Accessing and understanding new information, navigating healthcare, and appraising the role of the implant in body perceptions and everyday life requires health literacy (HL) of those affected as well as an HL-responsive healthcare system. The interconnectedness of these aspects to ethically relevant values such as health, dependence, responsibility and self-determination reinforces the need to address HL in implant care. Following a qualitative approach, we conducted group discussions and a diary study among wearers of a cochlear, glaucoma or cardiovascular implant (or their parents). Data were analysed using the documentary method and grounded theory. The data reveal the perceptions of implant wearers regarding the implant on (1) the ability to handle technical and ambiguous information; (2) dependence and responsibility within the healthcare system; and (3) the ethical aspects of HL. Knowing more about the experiences and values of implant wearers is highly beneficial to develop HL from an ethical perspective. Respective interventions need to initially address ethically relevant values in counselling processes and implant care.

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Section: Discussionmentioning

confidence: 99%

Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

Hübner

Lorke

Buchholz

et al. 2022

IJERPH

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“…Satisfaction with the provided information may depends on which process step of implantation the implant recipient was [ 55 ] and opportunities for peer group exchange [ 49 ]. The following sources of information were perceived as reliable: media [ 56 ], lip reading class [ 51 ], other implant-wearers [ 54 , 57 , 58 ], peers [ 49 – 51 , 53 , 57 – 59 ], family/ friends [ 51 , 56 ], internet [ 49 , 51 , 53 , 57 , 59 ], online forums [ 51 ] or Deaf organizations [ 53 ], health and implant professionals (e.g. implantation center, manufacturers) [ 49 – 53 , 55 , 57 – 59 ].…”

Section: Resultsmentioning

confidence: 99%

“…The following sources of information were perceived as reliable: media [ 56 ], lip reading class [ 51 ], other implant-wearers [ 54 , 57 , 58 ], peers [ 49 – 51 , 53 , 57 – 59 ], family/ friends [ 51 , 56 ], internet [ 49 , 51 , 53 , 57 , 59 ], online forums [ 51 ] or Deaf organizations [ 53 ], health and implant professionals (e.g. implantation center, manufacturers) [ 49 – 53 , 55 , 57 – 59 ]. With regards to shared decision-making (SDM) , professional advice was perceived mostly positive [ 53 , 59 ].…”

Section: Resultsmentioning

confidence: 99%

“…implantation center, manufacturers) [ 49 – 53 , 55 , 57 – 59 ]. With regards to shared decision-making (SDM) , professional advice was perceived mostly positive [ 53 , 59 ]. However, some deaf parents opting for CI for their deaf child perceived advice given by professionals to be one-sided and incomplete with an exclusive focus on the medical approach (implantation) and felt pressured to implant as early as possible [ 53 ].…”

Section: Resultsmentioning

confidence: 99%

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Patient-centered empirical research on ethically relevant psychosocial and cultural aspects of cochlear, glaucoma and cardiovascular implants – a scoping review

Schulz,

Harzheim,

Hübner

et al. 2023

BMC Med Ethics

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Background The significance of medical implants goes beyond technical functioning and reaches into everyday life, with consequences for individuals as well as society. Ethical aspects associated with the everyday use of implants are relevant for individuals’ lifeworlds and need to be considered in implant care and in the course of technical developments. Methods This scoping review aimed to provide a synthesis of the existing evidence regarding ethically relevant psychosocial and cultural aspects in cochlear, glaucoma and cardiovascular implants in patient-centered empirical research. Systematic literature searches were conducted in EBSCOhost, Philpapers, PsycNET, Pubmed, Web of Science and BELIT databases. Eligible studies were articles in German or English language published since 2000 dealing with ethically relevant aspects of cochlear, glaucoma and passive cardiovascular implants based on empirical findings from the perspective of (prospective) implant-wearers and their significant others. Following a descriptive-analytical approach, a data extraction form was developed and relevant data were extracted accordingly. We combined a basic numerical analysis of study characteristics with a thematically organized narrative synthesis of the data. Results Sixty-nine studies were included in the present analysis. Fifty were in the field of cochlear implants, sixteen in the field of passive cardiovascular implants and three in the field of glaucoma implants. Implant-related aspects were mainly found in connection with autonomy, freedom, identity, participation and justice, whereas little to no data was found with regards to ethical principles of privacy, safety or sustainability. Conclusions Empirical research on ethical aspects of implant use in everyday life is highly relevant, but marked by ambiguity and unclarity in the operationalization of ethical terms and contextualization. A transparent orientation framework for the exploration and acknowledgment of ethical aspects in “lived experiences” may contribute to the improvement of individual care, healthcare programs and research quality in this area. Ethics-sensitive care requires creating awareness for cultural and identity-related issues, promoting health literacy to strengthen patient autonomy as well as adjusting healthcare programs accordingly. More consideration needs to be given to sustainability issues in implant development and care according to an approach of ethics-by-design.

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Social Media Utilization in Otolaryngology: A Scoping Review

et al. 2023

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ObjectiveSocial media (SM) is an increasingly popular medium for the medical community to engage with patients, trainees, and colleagues. This review aimed to identify reported uses of SM in otolaryngology‐head and neck surgery (OHNS), assess the quality of evidence supporting these uses, and identify gaps in the literature. With the relative lack of regulatory guidelines for the development of SM content, we hypothesized that the quality of content available on SM would be highly variable.Data Sources and MethodsA scoping review was performed of English‐language peer‐reviewed studies published to date discussing SM use in any form within OHNS. Three reviewers independently screened all abstracts. Two reviewers independently extracted data of interest from the full text of articles identified from the preliminary abstract screen.Results171 studies were included, with 94 (54.9%) studies published between 2020 and 2022. 104 (60.8%) studies were conducted in the US. 135 (78.9%) used cross‐sectional or survey‐based methodology; only 7 (4.1%) were controlled studies. SM was most commonly employed for professional networking (n = 37 [21%]), and within subspecialties of otology (n = 38 [22%]) and rhinology/allergy (n = 25 [15%]). Facebook was most frequently used for study recruitment (n = 23 [13.5%]), YouTube for patient education (n = 15 [14.6%]), and Twitter for professional networking (n = 16 [9.4%]).ConclusionSM use within OHNS is increasing rapidly, with applications including patient education, professional networking, and study recruitment. Despite myriad articles, there remains a paucity of well‐controlled studies. As SM becomes integrated into healthcare, particularly for applications directly impacting patient care, higher levels of evidence are needed to understand its true impact. Laryngoscope, 133:2447–2456, 2023

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Knowledge about cochlear implantation: A parental perspective

Cited by 15 publications

References 8 publications

Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

Patient-centered empirical research on ethically relevant psychosocial and cultural aspects of cochlear, glaucoma and cardiovascular implants – a scoping review

Social Media Utilization in Otolaryngology: A Scoping Review

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