Knowledge and attitudes survey in bleeding disorders providers regarding pain

Abstract

Continued research in the area of haemophilia pain as well as treatment is needed. In addition, continuing pain education is recommended for HTC provider's at the local, regional and national levels so providers could remain up to date in the changes and progress of pain management theory.

U.K. hemophilia treaters’ knowledge of risk assessment for prolonged bleeding associated with dental procedures

“…The response rate was low at 37%, despite the researchers’ efforts to maximize responses with 3 mailings. It is, however, consistent with other published literature using online surveys to collect data from hemophilia teams and health care workers in the United Kingdom . In the present study, it was difficult to produce an accurate sample for all individual hematologists and nurses operating in the United Kingdom.…”

“…It is, however, consistent with other published literature using online surveys to collect data from hemophilia teams and health care workers in the United Kingdom. [15][16][17] In the present study, it was difficult to produce an accurate sample for all individual hematologists and nurses operating in the United Kingdom. This may indicate that not all UKHCDO members were contacted or received the questionnaire and may have introduced additional source of bias in the final sample.…”

Pain assessment and management in haemophilia: A survey among Italian patients and specialist physicians

“…This first Italian survey revealed discrepancies in the awareness of pain issues in haemophilia among patients and clinicians, highlighting the need for systematically and accurately addressing this clinical challenge through standardized procedures for pain assessment and management. Despite these uncertainties, the role for a multidisciplinary and individualized approach, including the consultancy of pain specialists, is well recognized, together with the importance of specific educational programmes on the topic . Interestingly, the results of this survey stimulated an educational project carried out in 2016 at the University Hospital of Parma.…”

“…In the EHTSB survey, 2 out of 22 haemophilia centres arranged regular consultations with pain specialists, while in the BETSH study haemophilia specialists collaborated with general practitioner, orthopaedists and physiotherapists but not with pain specialists . A survey among HTC US providers, revealing specific knowledge deficits in pharmacology, emphasized the need for recognizing these limitations, achieving adequate training in this area and consulting with pain specialists when appropriate . In the absence of evidence‐based guidelines, the pain specialist may help to set up an individualized, multimodal approach of pain management, specifically designed according to pain intensity, ongoing response to therapy and the risk of adverse effects.…”

Patient, caregiver, and provider perceptions of pain and pain management in adolescents and young adults with bleeding disorders

“…Chronicity also affects pain miscalibration among providers, with chronic pain viewed as being less severe than acute pain . Additionally, the manner in which patients display their pain influences provider assessment and pain medication dosing . Thus, the level of pain reported may be influenced by many factors and often varies between patients, caregivers and providers.…”