Knowledge, attitudes, and practice toward epilepsy (KAPE): A survey of Chinese and Vietnamese adults in the United States

Ivey, Susan L.; Guo, Wenting; Chung, Kevin Kien Hoa; Nguyen, Charles; Nguyen, Christine; Chung, Corina; Tseng, Winston

doi:10.1016/j.yebeh.2009.11.023

Cited by 34 publications

(23 citation statements)

References 54 publications

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“…This is more worrisome when viewed against the backdrop of better appreciation of the causes and effects of epilepsy espoused by these respondents. Though similar findings have been reported both in developed and other developing countries [11,15,18,22], it may indicate that these attitudes are widespread, cutting across different socio-cultural regions. A communitybased study to critically examine the core factors responsible for these negative attitudes might be illuminating.…”

Section: Discussionsupporting

confidence: 82%

“…These myths and prejudice that have surrounded epilepsy have persisted for thousands of years and are major factors that compel people with the disorder to hide the disease [1,[8][9][10]. Most of the negative attitudes documented in people with epilepsy are in relation to marriage, job employment, education, and social acceptance [11][12][13][14]; hence, the person with epilepsy is most likely to drop out of school, lose his or her job, and find it difficult to make friends.…”

Section: Introductionmentioning

confidence: 99%

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Perception of epilepsy among public workers: Perspectives from a developing country

Ekenze

Ndukuba

2013

Epilepsy & Behavior

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Section: Discussionsupporting

confidence: 82%

Section: Introductionmentioning

confidence: 99%

Perception of epilepsy among public workers: Perspectives from a developing country

Ekenze

Ndukuba

2013

Epilepsy & Behavior

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“…Respondents noted they would conceal a diagnosis of epilepsy because of those concerns. 19; 22; 40; 46 In a study 24 of healthy people visiting medical centers in Greece, when asked “If a person close to you was to have a disease which one would you “prefer” it to be?” and given a choice of five chronic conditions, respondents ranked epilepsy fourth out of five, behind diabetes and chronic respiratory or cardiac problems. Only psychiatric problems ranked below epilepsy.…”

Section: Resultsmentioning

confidence: 99%

“…19; 24; 40; 60; 61 Individuals at the more extreme younger or older age ranges also had more misconceptions. 19; 22; 60 …”

Section: Resultsmentioning

confidence: 99%

Epilepsy misconceptions and stigma reduction: Current status in Western countries

Herrmann

Welter

Berg

et al. 2016

Epilepsy & Behavior

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Objective: This systematized literature review identified reports describing epilepsy misconceptions in the developed Western countries and research interventions focused on reducing these misconceptions. Materials and Methods: English language publications from January 2004 to January 2015 that described original research conducted in Europe, North/Central/South America or Australia on misconceptions about epilepsy among the general public. Results: 81 publications were selected. Most studies were conducted in the Americas (N=30) and Europe (N=31). Misconceptions and attitudes about epilepsy were assessed among clinical providers (N= 9), family members of people with epilepsy (PWE, N=5), teachers (N= 11), students (N=22), and the general public (N= 25). Most studies used structured questionnaires, sometimes adding open-ended questions. Misconceptions reflected socially exclusionary attitudes directed at PWE, ignorance about treatment, and over-generalizations that are stigmatizing when applied to all PWE. Misconceptions were more prevalent in those with less education, lower socioeconomic status, and no exposure to PWE. There were only 12 intervention studies. While intervention studies were generally effective in improving attitudes, many were targeted to healthcare and education settings, were time intensive, and impractical for broad general population implementation. None incorporated newer technology-based strategies regarding effective health communication approaches. Conclusions: Types of epilepsy misconceptions were similar in reports published over the last decade, although most referred to misconceptions that have already been previously described. Existing questionnaires may fail to identify more subtle forms of current misconceptions and negative attitudes. Few interventional studies specifically target epilepsy stigma. Practical and broad scalable approaches to de-stigmatize epilepsy may help reduce misconceptions.

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“…The aim was to identify misperceptions that interfere with integration of PWE. To the best of our knowledge, it is the first such study in sub-Saharan Africa; all previous researchers considered the undifferentiated general public [17][18][19], employers [20], the armed forces [21], students [13,22,23], health professionals [24,25], or teachers [10][11][12], offering only partial explorations of barriers to the integration of PWE.…”

Section: Discussionmentioning

confidence: 99%

Knowledge, attitudes, and behavior among key people involved in the employment of people with epilepsy in southern Benin

Hounsossou¹,

Queneuille²,

Ibinga³

et al. 2015

Epilepsy & Behavior

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Knowledge, attitudes, and practice toward epilepsy (KAPE): A survey of Chinese and Vietnamese adults in the United States

Cited by 34 publications

References 54 publications

Perception of epilepsy among public workers: Perspectives from a developing country

Perception of epilepsy among public workers: Perspectives from a developing country

Epilepsy misconceptions and stigma reduction: Current status in Western countries

Knowledge, attitudes, and behavior among key people involved in the employment of people with epilepsy in southern Benin

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