Knowledge of diagnosis, treatment history, and risk of late effects among childhood cancer survivors and parents: The impact of a survivorship clinic

Lindell, Robert B.; Koh, Shannon J.; Alvarez, JoAnn; Koyama, Tatsuki; Esbenshade, Adam J.; Simmons, Jill H.; Friedman, Debra L.

doi:10.1002/pbc.25509

Cited by 46 publications

(52 citation statements)

References 35 publications

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“…Several lines of evidence suggest the efficacy of FUS, although no study has provided any comparative data regarding its feasibility or benefit. Our intervention study on the feasibility and accessibility of GP‐led care demonstrates for the first time prospectively the validity of this model and, as suggested by others, the positive impact that communication education programs may have. The survivors’ response rate was much higher than that of subjects in the control group.…”

Section: Discussionsupporting

confidence: 73%

“…However, as survivors’ independence is generally encouraged as well as taking responsibility for their own health and empowerment, a theoretical issue to be considered is whether our incentive program might impair their autonomy. Recent papers have demonstrated the efficacy of patient education in improving the awareness of personal risk and proactive compliance with FU . In our experience, such autonomy could be achieved after a proper FU education program has been offered with well‐organized age‐appropriate access and support for obtaining appointments.…”

Section: Discussionmentioning

confidence: 80%

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Impact of shared care program in follow‐up of childhood cancer survivors: An intervention study

Ducassou¹,

Chipi²,

Pouyade³

et al. 2017

Pediatric Blood & Cancer

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In this shared care program, survivors overcame distrust in their GP's knowledge and entered the FU program after their GPs had been involved in patient-centered education. Personalized and incentive-based guidance was very useful in helping survivors to adhere to FU. Support of a dedicated long-term FU team was very useful. A nationwide organization, consideration of special needs in subgroups of survivors and sustained funding are needed to adjust the program in the very long term.

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Section: Discussionsupporting

confidence: 73%

Section: Discussionmentioning

confidence: 80%

Impact of shared care program in follow‐up of childhood cancer survivors: An intervention study

Ducassou¹,

Chipi²,

Pouyade³

et al. 2017

Pediatric Blood & Cancer

View full text Add to dashboard Cite

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“…Many adult survivors of childhood cancer lack detailed knowledge of their treatment history and risk for late effects. [16, 17] Survivorship clinics can improve this knowledge; [27] therefore, identifying those at risk for poor engagement and intervening to increase their engagement in care is critical. Many hospitals are working on survivorship care plan interventions [28] to improve survivor knowledge and survivorship care coordination.…”

Section: Discussionmentioning

confidence: 99%

Factors Associated With Noncompliance With Long-term Follow-up Care Among Pediatric Cancer Survivors

Devine

Viola

Capucilli

et al. 2017

Journal of Pediatric Hematology/Oncology

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Most childhood cancer survivors do not receive risk-based care through a survivorship program, but factors associated with dropping out of care are unclear. This study aimed to identify characteristics of pediatric cancer survivors who do not return to a cancer center survivorship program for recommended care after at least one visit compared with those who continue to attend. Patient characteristics (demographics, school functioning, psychiatric history) and treatment characteristics (diagnosis, treatment) were abstracted from medical records for all eligible patients. Unadjusted and multivariable logistic regression analyses examined the associations among patient and treatment characteristics and non-attendance. The charts of 400 eligible patients (children < 18, n = 123, adults, n = 277) were reviewed. Of these, 60.3% of patients had not been seen in clinic within one year of their last recommended follow-up appointment. Adult-aged survivors were less likely to return to clinic than child-aged survivors (p < 0.001). For child survivors, longer time off treatment was associated with non-compliance with follow-up. For adult survivors, current age, non-white race, and longer time off treatment were associated with non-compliance. Additional methods to identify survivors at risk for non-compliance with follow-up and interventions for at-risk survivors are needed to improve survivorship care.

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“…However, the majority of CCS treated in the United States do not receive survivor‐focused care . Survivor‐focused medical care has been linked to higher levels of screening behavior and knowledge about late effects risk . Thus, the rates of skin cancer surveillance observed among study participants may overestimate rates of the general CCS population.…”

Section: Discussionmentioning

confidence: 99%

Skin Cancer Surveillance Behaviors Among Childhood Cancer Survivors

Stapleton

Tatum

Devine

et al. 2015

Pediatr Blood Cancer

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The risk of developing skin cancer is elevated among childhood cancer survivors (CCS), particularly among those treated with radiation. This survey study examined the skin cancer surveillance behaviors of 94 CCS. Approximately 48% of CCS had ever conducted skin self-examination and 31% had ever received a physician skin examination. Rates of physician skin examination were 2.5 times higher among CCS treated with radiation compared to those without radiation. However, rates of skin self-examinations did not differ based on treatment history. These findings highlight the need to promote skin cancer surveillance as an important aspect of CCS survivorship care.

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Knowledge of diagnosis, treatment history, and risk of late effects among childhood cancer survivors and parents: The impact of a survivorship clinic

Abstract: Survivorship care was associated with increased knowledge of diagnosis, treatment history, and risk of late effects in both cohorts. Knowledge of late effects decreases with time, suggesting the need for additional educational strategies.

Cited by 46 publications

References 35 publications

Impact of shared care program in follow‐up of childhood cancer survivors: An intervention study

Impact of shared care program in follow‐up of childhood cancer survivors: An intervention study

Factors Associated With Noncompliance With Long-term Follow-up Care Among Pediatric Cancer Survivors

Skin Cancer Surveillance Behaviors Among Childhood Cancer Survivors

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