Labeled as lucky: contradictions between what women and healthcare professionals experience regarding the need for help after the early stages of gynecological cancer

Thisted, Lise Bjerrum; Zoffmann, Vibeke; Olesen, Mikkel Runge

doi:10.1007/s00520-019-04882-2

Cited by 11 publications

(36 citation statements)

References 31 publications

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“…The women describe many examples of newly developed skills such as, being able to prioritise between problems, gaining the ability to communicate difficult feelings, increasing acceptance and developing their problem-solving skills. The latter was also an important outcome of GSD targeted women with gynaecological cancer (26).…”

Section: Discussionmentioning

confidence: 99%

“…Qualitative evaluations in the diabetes and dialysis settings have shown GSD to be a useful person‐centred problem‐solving tool that facilitates the development of life skills 18,25. In a nurse‐led stepped‐care intervention, GSD improved physical QOL 22 and the development of relational competencies and problem‐solving skills in gynaecological cancer survivors 26.…”

Section: Introductionmentioning

confidence: 99%

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About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

Simonsen

Strømberg

Zoffmann

et al. 2019

Scandinavian Caring Sciences

Self Cite

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About me as a person not only the diseasepiloting Guided Self-Determination in an outpatient endometriosis setting Introduction: Endometriosis is a chronic disease affecting 5-10% of women in the reproductive age. Despite surgical and medical treatment, many women struggle with pain, infertility, sexual dysfunction, depression, distress and reduced workability, affecting their overall quality of life. The usual follow-up procedures may not support the women's self-management of this condition. Therefore, person-centred empowerment-based approaches are needed. Aim: To assess if the implementation of the Guided Self-Determination method targeted women with complex endometriosis appeared feasible and supported selfmanagement. Methods: Guided Self-Determination was offered to 10 outpatients with complex endometriosis. Each of the women had five conversations based on prefilled diseasespecific reflection sheets. A qualitative evaluation was conducted in 2016-2017 covering semi-structured, telephone interviews and focus group interviews, which were analysed using thematic analysis. Additionally, we assessed if the women changed the self-reported questionnaires, Endometriosis Health Profile 30 and the Patient Activation Measure from before and after the conversations. Results: We identified four themes: feeling alone with the disease; establishing a meaningful relationship with healthcare professionals in a traditional hospital setting; person-specific knowledge facilitated new behaviours and; accepting a chronic conditionthe beginning of a process. All dimensions of the Endometriosis Health Profile 30 and the Patient Activation Measure appeared to improve at two weeks and so did almost all the dimensions of Endometriosis Health Profile 30 after 1 year. Conclusions: The implementation of the Guided Self-Determination method appeared feasible and the women developed self-management skills in relation to endometriosis and its symptoms. This was achieved by increasing insight into their needs and behaviours and gaining new knowledge about the disease itself. The before-and-after assessment suggested benefit of the intervention, but this should be further tested in a randomised trial.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

Simonsen

Strømberg

Zoffmann

et al. 2019

Scandinavian Caring Sciences

Self Cite

View full text Add to dashboard Cite

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“…More nurses applied for the GSD programme than required. GSD is offered to patients by three different teams covering gynaecological cancer (10,11), complex endometriosis (12) and sexual abuse. The first two teams offer patients individualised follow-up, and GSD represents supplementary nurse-led support for women who were screened or deemed to be distressed or in special need of PCC.…”

Section: Clinical Gsd Settingsmentioning

confidence: 99%

“…Consequently, it is important not only to investigate how they experience PCC and to gain insight into potential barriers but also to identify circumstances that prevent or facilitate its implementation. The person-centred method called guided self-determination (GSD) (Table 1) was developed through participatory research to support patients in developing life skills to cope with diabetes (4-8) but has also been used with gynaecological conditions such as cancer (9)(10)(11) and endometriosis (12).…”

Section: Introductionmentioning

confidence: 99%

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The patient's agenda: nurses’ experience of learning and using guided self‐determination

Dehn

Strømberg

Olesen

2021

Scandinavian Caring Sciences

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Objectives: Health care has seen a shift towards person-centred care to encompass the entirety of a person's needs and preferences, but research is sparse on healthcare professionals learning and using person-centred care. Aim: To investigate nurses' experiences of learning and using the person-centred method guided self-determination (GSD) in three different gynaecological settings and to determine whether, and potentially, how new tasks introduced by the GSD method influence their professional identity. Design: A qualitative interview study conducted between January 2019 and January 2020. Method: We conducted 16 semi-structured interviews with nurses educated in using GSD. Applying inductive and deductive reasoning, we analysed the interviews using thematic analysis. The study was registered with the Danish Data Protection Agency (file no.: VD-2018-445, I-Suite no.: 6700). Results: The analysis generated three main themes with two subthemes each: (a) prerequisites and barriers to learning and using GSD in terms of personal factors and organisational and method-related factors; (b) new knowledge and understanding of illness with the subthemes expanded understanding of illness and a different relationship; and (c) nursing undergoing change with the subthemes, a new role and a professional self shaped through interaction with other professions. Conclusions: Although other professionals may have either supported or challenged the use of GSD, most nurses indicated that it supplemented their professional role and identity as they gained new knowledge about person-centred challenges and felt more confident. When introducing GSD in nursing, the organisation must not only consider individual characteristics, multidisciplinary collaboration and communication but also plan individual education and supervision. This is necessary because all these factors affect how a new professional role is constructed and adopted, not to mention how it influences the nurses' perception of their professional identity and use of GSD. Establishing a helpful person-centred environment must also be considered.

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The needs of gynecological cancer survivors at the end of primary treatment: A scoping review and proposed model to guide clinical discussions

Galica

Saunders

Romkey-Sinasac

et al. 2022

Patient Education and Counseling

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Labeled as lucky: contradictions between what women and healthcare professionals experience regarding the need for help after the early stages of gynecological cancer

Cited by 11 publications

References 31 publications

About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

About me as a person not only the disease – piloting Guided Self‐Determination in an outpatient endometriosis setting

The patient's agenda: nurses’ experience of learning and using guided self‐determination

The needs of gynecological cancer survivors at the end of primary treatment: A scoping review and proposed model to guide clinical discussions

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