Lack of Any Caregiving for Those with Dementia

Khan, Noreen; Garcia, Nelda; Mehdipanah, Roshanak; Briceño, Emily M.; Heeringa, Steven G.; Levine, Deborah A.; Gonzales, Xavier; Langa, Kenneth M.; Longoria, Ruth; Morgenstern, Lewis B.

doi:10.3233/jad-215418

Cited by 3 publications

(1 citation statement)

References 20 publications

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“…The proportion of PLWD who have functional limitations but do not receive corresponding care is not well understood, and the absence of care may lead to avoidable hospitalization, early institutionalization, heightened mortality risk, increased societal healthcare costs, lowered quality of life. 14–17 Furthermore, there may be considerable variations over time and across countries in both the need for and the receipt of care among PLWD, making it challenging to generalize existing evidence. Therefore, it is imperative to identify common and differential trends in the absence of care for this especially vulnerable population to inform more effective public policy and interventions.…”

Section: Introductionmentioning

confidence: 99%

Absence of Care Among Community-Living Older Persons with Dementia and Functional Limitations: A Cross-National Analysis of Population Survey from 22 Countries

Lin,

Qian,

Gill

et al. 2023

Preprint

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BackgroundThe provision of long-term care for persons living with dementia (PLWD) who have functional limitations is a significant global public health challenge. However, there is limited evidence on the patterns of care received by PLWD across countries and regions. This study aimed to examine the global trends in the absence of care for PLWD with functional limitations and identify potential sociodemographic disparities.MethodsWe used harmonized longitudinal survey data from four Health and Retirement Global Family of Studies that surveyed community-living persons aged 50 and older in the United States, England, 18 European countries and Israel, and China. The analysis focused on persons who reported functional limitations and developed dementia during the study periods (2012-2018). Functional limitations were assessed using activities of daily living (ADL) and instrumental activities of daily living (IADL). Absence of care was evaluated as the proportion of PLWD receiving no care for their ADL/IADL limitations.ResultsAt least 20% of PLWD in both developed and developing countries received no care for their functional limitations, and this absence of care remained stable over time. The absence of care was notable for both ADL and IADL limitations, as well as for informal and formal care. Moreover, substantial disparities were observed, with less-educated individuals and those living alone experiencing greater absence of formal and informal care, respectively. These patterns and trends were consistent across all countries and regions studied.Discussion and ImplicationsThe findings underscore the pressing need to ensure basic care provision for persons with dementia and functional limitations, especially for those who are less educated or living alone. Policymakers should prioritize addressing these disparities and improving care provision for this population worldwide.

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Section: Introductionmentioning

confidence: 99%

Absence of Care Among Community-Living Older Persons with Dementia and Functional Limitations: A Cross-National Analysis of Population Survey from 22 Countries

Lin,

Qian,

Gill

et al. 2023

Preprint

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A community-based study of reporting demographic and clinical information concordance between informants and cognitively impaired participants

et al. 2023

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A Community-Based Study of Dementia in Mexican American and Non-Hispanic White Individuals

Morgenstern,

Briceño,

Mehdipanah

et al. 2024

JAD

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Background: Little information is available on the prevalence of cognitive impairment in Mexican American persons. Objective: To determine the prevalence of mild cognitive impairment (MCI) and dementia in those 65 years and older among Mexican American and non-Hispanic white individuals in a community. Methods: This was a population-based cohort study in Nueces County, Texas, USA. Participants were recruited using a random housing sample. The Harmonized Cognitive Assessment (HCAP) participant and informant protocol was performed after Montreal Cognitive Assessment (MoCA) screening. An algorithm was used to sort participants into diagnostic categories: no cognitive impairment, MCI, or dementia. Logistic regression determined the association of ethnicity with MCI and dementia controlling for age, gender, and education. Results: 1,901 participants completed the MoCA and 547 the HCAP. Mexican Americans were younger and had less educational attainment than non-Hispanic whites. Overall, dementia prevalence was 11.6% (95% CI 9.2–14.0) and MCI prevalence was 21.2% (95% CI 17.5–24.8). After adjusting for age, gender, and education level, there was no significant ethnic difference in the odds of dementia or MCI. Those with ≤11 compared with ≥16 years of education had much higher dementia [OR = 4.9 (95% CI 2.2–11.1)] and MCI risk [OR = 3.5 (95% CI 1.6–7.5)]. Conclusions: Dementia and MCI prevalence were high in both Mexican American and non-Hispanic white populations. Mexican American persons had double the odds of mild cognitive impairment and this was attenuated when age and educational attainment were considered. Educational attainment was a potent predictor of cognitive impairment.

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Lack of Any Caregiving for Those with Dementia

Cited by 3 publications

References 20 publications

Absence of Care Among Community-Living Older Persons with Dementia and Functional Limitations: A Cross-National Analysis of Population Survey from 22 Countries

Absence of Care Among Community-Living Older Persons with Dementia and Functional Limitations: A Cross-National Analysis of Population Survey from 22 Countries

A community-based study of reporting demographic and clinical information concordance between informants and cognitively impaired participants

A Community-Based Study of Dementia in Mexican American and Non-Hispanic White Individuals

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