Lack of validity of self-reported mammography data

Levine, Robert S.; Kilbourne, Barbara; Sanderson, Maureen; Fadden, Mary Kay; Pisu, Maria; Salemi, Jason L.; Grubb, Maria C. Mejia de; O’Hara, Heather; Husaini, Baqar A.; Zoorob, Roger; Hennekens, Charles H.

doi:10.1136/fmch-2018-000096

Cited by 3 publications

(2 citation statements)

References 43 publications

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“…Qualitative interviews allowed for in-depth exploration of unanticipated topics. Recall bias may be a limitation; overestimation of self-reported mammography completion has been reported previously [ 28 ]. Study participants had greater educational attainment and were more likely to be privately insured than the national population.…”

Section: Discussionmentioning

confidence: 99%

Cancer Screening Experiences of Black Breast and Ovarian Cancer Patients and Family Members

et al. 2023

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Black women experience disproportionate rates of advanced breast cancer diagnoses and mortality. Mammography is a proven and effective tool in early breast cancer detection and impacts patient outcomes. We interviewed Black women with a personal or family history of breast and/or ovarian cancer to understand their screening experiences and views. N = 61 individuals completed an interview. Interview transcripts were qualitatively analyzed for themes regarding clinical experiences, guideline adherence, and family sharing specific to Black women and their families. Most participants were college educated with active health insurance. Women in this cohort were knowledgeable about the benefits of mammography and described few barriers to adhering to annual mammogram guidelines. Some with first-degree family history were frustrated at insurance barriers to mammography before the age of 40. Participants were generally comfortable encouraging family and friends to receive mammograms and expressed a desire for a similar screening tool for ovarian cancer. However, they expressed concern that factors such as screening awareness and education, lack of insurance coverage, and other systematic barriers might prevent other Black women from receiving regular screening. Black women in this cohort reported high adherence to mammography guidelines, but expressed concern about cultural and financial barriers that may impact cancer screening access in the population more generally and contribute to disparities. Participants noted the importance of frank and open discussions of breast cancer screening in their families and community as a means of improving awareness.

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Section: Discussionmentioning

confidence: 99%

Cancer Screening Experiences of Black Breast and Ovarian Cancer Patients and Family Members

et al. 2023

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“…In a similar systematic review, though in this case focused specifically on mammography from 1990 through 2017, Levine, et al (2019) state that their “review of the totality of published evidence suggests a lack of validity of self-reports of mammography [ 29 ].”…”

Section: Introductionmentioning

confidence: 99%

Protocol to measure validity and reliability of colorectal, breast, cervical and lung cancer screening questions from the 2021 National Health Interview Survey: Methodology and design

Kessler,

Comstock,

Aiello Bowles

et al. 2024

PLoS ONE

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Previous studies demonstrate that self-reports of mammography screening for breast cancer and colonoscopy screening for colorectal cancer demonstrate concordance, based on adherence to screening guidelines, with electronic medical records (EMRs) in over 90% of those interviewed, as well as high sensitivity and specificity, and can be used for monitoring our Healthy People goals. However, for screening tests for cervical and lung cancers, and for various sub-populations, concordance between self-report and EMRs has been noticeably lower with poor sensitivity or specificity. This study aims to test the validity and reliability of lung, colorectal, cervical, and breast cancer screening questions from the 2021 and 2022 National Health Interview Survey (NHIS). We present the protocol for a study designed to measure the validity and reliability of the NHIS cancer screening questions compared to EMRs from four US-based healthcare systems. We planned a randomized trial of a phone- vs web-based survey with NHIS questions that were previously revised based on extensive cognitive interviewing. Our planned sample size will be 1576 validity interviews, and 1260 interviews randomly assigned at 1 or 3 months after the initial interview. We are enrolling people eligible for cancer screening based on age, sex, and smoking history per US Preventive Services Task Force recommendations. We will evaluate question validity using concordance, sensitivity, specificity, positive predictive value, negative predictive value, and report-to-records ratio. We further are randomizing participants to complete a second survey 1 vs 3 months later to assess question reliability. We suggest that typical measures of concordance may need to be reconsidered in evaluating cancer screening questions.

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Sexual Orientation Identity Disparities in Mammography Among White, Black, and Latina U.S. Women

et al. 2020

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Lack of validity of self-reported mammography data

Cited by 3 publications

References 43 publications

Cancer Screening Experiences of Black Breast and Ovarian Cancer Patients and Family Members

Cancer Screening Experiences of Black Breast and Ovarian Cancer Patients and Family Members

Protocol to measure validity and reliability of colorectal, breast, cervical and lung cancer screening questions from the 2021 National Health Interview Survey: Methodology and design

Sexual Orientation Identity Disparities in Mammography Among White, Black, and Latina U.S. Women

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