Language Matters in Diabetes and in Diabetes Science and Research

Lewis, Dana

doi:10.1177/19322968221085028

Cited by 5 publications

(2 citation statements)

References 6 publications

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“…Research about the language of diabetes has been examined in patient-provider communication (Polonsky et al 2017), electronic health record documentation (Himmelstein, Bates, and Zhou 2022), and diabetes-specific media (Beeney and Fynes-Clinton 2019), as well as the terminology used in science and research (Lewis 2022;Portillo 2022). To date, however, no published studies have applied language guidelines to online PEMs.…”

Section: Online Patient Education and Type 1 Diabetes: The Impact Of ...mentioning

confidence: 99%

The Language of Type 1 Diabetes: Why It Matters in Online Patient Education

Acuff

Wolfe

Bowler-Hill

2023

Journal of Consumer Health on the Internet

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This article discusses online patient education materials (PEMs) in the context of type 1 diabetes and the language used to describe the disease. The role of healthcare providers and health information professionals in the delivery of online PEMs is described. Relevant theories regarding the impact of language are discussed. A theoretical framework for understanding and assessing PEMs is presented, along with the introduction of in-progress research on the use of empowering language in online PEMs for adults with type 1 diabetes.

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Section: Online Patient Education and Type 1 Diabetes: The Impact Of ...mentioning

confidence: 99%

The Language of Type 1 Diabetes: Why It Matters in Online Patient Education

Acuff

Wolfe

Bowler-Hill

2023

Journal of Consumer Health on the Internet

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“…The focus on language to support health literacy is now accepted as good practice worldwide [61][62][63]. In addition, extensive evidence shows that the words used concerning diabetes affect the physical and emotional health and wellbeing of people living with diabetes, impacting their engagement in healthcare [49].…”

Section: Person-centred Languagementioning

confidence: 99%

Shifts in Diabetes Health Literacy Policy and Practice in Australia—Promoting Organisational Health Literacy

Murfet,

Lin,

Ridd

et al. 2023

IJERPH

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Improving organisational health literacy ensures people can navigate, understand and use essential health information and services. However, systematic reviews have identified limited evidence for practical approaches to implementing such organisational change, particularly at a national level. This study aimed to (a) investigate the approach taken by an Australian national diabetes organisation—Diabetes Australia, as the administrator of the National Diabetes Services Scheme (NDSS)—to improve organisational health literacy over a 15-year-period and (b) examine the impact of organisational changes on the health literacy demands of health information. We performed an environmental scan, examining the websites of the NDSS, Diabetes Australia and the Australian government for reports and position statements describing organisational health literacy policies and practices between 2006 and 2021. The Patient Education Materials Assessment Tool (PEMAT) was applied to consecutively published NDSS diabetes self-care fact sheets (n = 20) to assess changes in the health literacy demands (understandability and actionability) of these fact sheets over the same period. We identified nine policies resulting in 24 health literacy practice changes or projects between 2006 and 2021, applied using a streamlined incremental approach and group reflexivity. The incremental approach focused on (1) increasing audience reach, (2) consistency and branding, (3) person-centred language and (4) the understandability and actionability of health information. The PEMAT scores of fact sheets improved between 2006 and 2021 for understandability (53% to 79%) and actionability (43% to 82%). Diabetes Australia’s information development process leveraging national policies, employing an incremental approach and group reflexivity has improved the health literacy demands of diabetes information and serves as a template for other organisations seeking to improve their organisational health literacy.

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