2005
DOI: 10.1200/jco.2005.12.107
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Late Referrals to Specialized Palliative Care Service in Japan

Abstract: In Japan, the timing of referrals to palliative care units was late or very late from the families' perspectives. The independent determinants of family-perceived late referrals were: family misconception about palliative care, inadequate communication with physicians, and families' insufficient preparation for deterioration of patients' conditions. Systematic strategies to overcome these barriers would contribute to providing appropriate palliative care at all stages of cancer.

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Cited by 203 publications
(153 citation statements)
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References 20 publications
(22 reference statements)
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“…Despite the generally positive perception among oncology practitioners, late referral to palliative care remains a significant barrier for optimal patient care. [21][22][23] Our recent data show that patients with advanced solid tumors were referred a median of 48 days before death, and those with hematologic malignancies were referred a median of 14 days before death. In contrast, the median time from advanced cancer diagnosis to death is 200 days, suggesting a significant delay in referral.…”
mentioning
confidence: 99%
“…Despite the generally positive perception among oncology practitioners, late referral to palliative care remains a significant barrier for optimal patient care. [21][22][23] Our recent data show that patients with advanced solid tumors were referred a median of 48 days before death, and those with hematologic malignancies were referred a median of 14 days before death. In contrast, the median time from advanced cancer diagnosis to death is 200 days, suggesting a significant delay in referral.…”
mentioning
confidence: 99%
“…A potential list of symptoms was compiled onto a chart review instrument (appendix 1) basing on available research reports on symptom burden in similar settings [9,24,31] and clinical experience. From available literature and clinical experience, an initial list of 54 symptoms inclusive of symptom groups like urinary symptoms that included dysuria, frequency and urgency and body swelling inclusive of facial, upper and lower limb swelling were used as in other studies of symptom prevalence [27].…”
Section: Data Collectionmentioning
confidence: 99%
“…Studies suggest that late referrals to palliative care are inadequate to alter the quality and delivery of care provided to patients with cancer. 2,3 Previous research demonstrated that introducing PC soon after diagnosis of metastatic NSCLC was feasible and acceptable among patients. 4 However, less is known of the effect early integration of palliative care would have on patients' quality of life and end-of-life care.…”
Section: What Is Already Known?mentioning
confidence: 99%