Learner Developed Materials: An Empowering Product

Rudd, Rima E.; Comings, John P.

doi:10.1177/109019819402100304

Cited by 98 publications

(68 citation statements)

References 9 publications

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“…It contains concrete language presented in an organized layout, and includes culturally diverse, text-enhancing graphics. (15)(16)(17)(18)(19) It contains the same advance care planning topics as the aforementioned standard form. However, it also contains broader treatment choices, such as providing more options than just to prolong or not to prolong life (the options available in the standard form), but also the options of wanting to prolong life but only for a period of time, being able to refuse certain treatments such as blood transfusions, and having the option of letting the health care agent decide.…”

Section: Interventionmentioning

confidence: 99%

“…midprimary educational level. We also incorporated input from the target population (15) and used a clear layout, large 14 point font, appropriate line spacing and margins, and graphics that helped to explain the text. (14,(16)(17)(18)(19) These techniques have been shown to improve acceptability (16,17), activate patients to initiate discussions with providers (17) and, in some cases, enhance understanding.…”

Section: Introductionmentioning

confidence: 99%

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An advance directive redesigned to meet the literacy level of most adults: A randomized trial

Sudore

Landefeld

Barnes

et al. 2007

Patient Education and Counseling

123

183

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Objective-To determine whether an advance directive redesigned to meet most adults' literacy needs (5 th grade reading level with graphics) was more useful for advance care planning than a standard form (>12 th grade level).Methods-We enrolled 205 English and Spanish-speaking patients, aged ≥ 50 years from an urban, general medicine clinic. We randomized participants to review either form. Main outcomes included acceptability and usefulness in advance care planning. Participants then reviewed the alternate form; we assessed form preference and six-month completion rates.Results-40% of enrolled participants had limited literacy. Compared to the standard form, the redesigned form was rated higher for acceptability and usefulness in care planning, P≤0.03, particularly for limited literacy participants (P for interaction ≤ 0.07). The redesigned form was preferred by 73% of participants. More participants randomized to the redesigned form completed an advance directive at six months (19% vs. 8%, P=0.03); of these, 95% completed the redesigned form.Conclusions-The redesigned advance directive was rated more acceptable and useful for advance care planning and was preferred over a standard form. It also resulted in higher six month completion rates.Practice Implications-An advance directive redesigned to meet most adults' literacy needs may better enable patients to engage in advance care planning.

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Section: Interventionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

An advance directive redesigned to meet the literacy level of most adults: A randomized trial

Sudore

Landefeld

Barnes

et al. 2007

Patient Education and Counseling

123

183

View full text Add to dashboard Cite

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“…Cultural barriers to screening are also important for black women as suggested by the effectiveness of culturally tailored videos and classroom instruction on screening mammography rates. Previous research has shown that patient involvement in developing health education materials ensures that the content of the materials is relevant to the patients' situation and is presented from their point of view (Rudd and Comings 1994).…”

Section: Screeningmentioning

confidence: 99%

Interventions to Enhance Breast Cancer Screening, Diagnosis, and Treatment among Racial and Ethnic Minority Women

2007

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The authors conduct a systematic review of the literature to identify interventions designed to enhance breast cancer screening, diagnosis, and treatment among minority women. Most trials in this area have focused on breast cancer screening, while relatively few have addressed diagnostic testing or breast cancer treatment. Among patient-targeted screening interventions, those that are culturally tailored or addressed financial or logistical barriers are generally more effective than reminder-based interventions, especially among women with fewer financial resources and those without previous mammography. Chart-based reminders increase physician adherence to mammography guidelines but are less effective at increasing clinical breast examination. Several trials demonstrate that case management is an effective strategy for expediting diagnostic testing after screening abnormalities have been found. Additional support for these and other proven health care organization-based interventions appears justified and may be necessary to eliminate racial and ethnic breast cancer disparities. Keywords breast cancer; screening; diagnosis; treatment; race; ethnicity; interventionBreast cancer is the most common noncutaneous malignancy and the second most common cause of cancer death among U.S. women (Ries et al. 2005). With over 200,000 cases diagnosed each year, the lifetime risk of breast cancer among U.S. women is 1 in 8 (American Cancer Society 2005). Although breast cancer mortality declined by 2.3% per year between 1990 and 2002, racial and ethnic disparities increased during that time, primarily due to a greater decline in breast cancer mortality among white women compared to minority women (Jemal et al. 2004;Ries et al. 2005). Five-year female breast cancer survival is currently 87.5% among whites, 75.0% among blacks, 83.0% among Hispanics/Latinos, 89.4% among Asians/Pacific Islanders, and 79.6% among American Indians/Alaska Natives (Jemal et al. 2004).Disparities in breast cancer survival may be related to racial and ethnic differences at each stage of detection and management, including screening, timeliness of diagnostic testing after abnormal screening, quality of care during breast cancer treatment, and follow-up upon completion of breast cancer therapy (Aziz and Rowland 2002;McWhorter and Mayer 1987). No single element of care explains all of the mortality disparities. For example, breast cancer mortality remains higher among black women compared to white women despite evidence that screening mammography rates have been similar in these two groups since about 1993 ( Figure 1). In addition, compared to white women, Hispanic/Latino women have lower mammography rates and lower 5-year breast cancer survival, while Asian/Pacific Islander women have lower mammography rates and higher 5-year breast cancer survival (National Center for Health Statistics 2005;Jemal et al. 2004 (McPhee et al. 2002), these results suggest that screening mammography is only one of several factors important to racial/ethnic differen...

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“…This reinforces the finding of Rudd and Comings that patient involvement in developing health education materials ensures that the content is relevant to the patients' situation and is presented from their viewpoint. 19 Women in our focus groups 15 helped write and acted in the video; in addition, a woman in one focus group was hired as the peer educator. The effectiveness of our woman-to-woman program and video supports findings of focus groups of older African American women in the North Carolina Save Our Sisters Project that women turn to women they know with their health concerns.…”

Section: Discussionmentioning

confidence: 99%

Intervention to increase mammography utilization in a public hospital

1998

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OBJECTIVE:To study the effects of three approaches to increasing utilization of screening mammography in a public hospital setting in Northwest Louisiana. DESIGN: Randomized intervention study.POPULATION: Four hundred forty-five women aged 40 years and over, predominantly low-income and with low literacy skills, who had not had a mammogram in the preceding year. INTERVENTION:All interventions were chosen to motivate women to get a mammogram. Group 1 received a personal recommendation from one of the investigators. Group 2 received the recommendation plus an easy-to-read National Cancer Institute (NCI) brochure. Group 3 received the recommendation, the brochure, and a 12-minute interactive educational and motivational program, including a soap-operastyle video, developed in collaboration with women from the target population. MEASUREMENTS AND MAIN RESULTS:Mammography utilization was determined at 6 months and 2 years after intervention. A significant increase ( p ‫؍‬ .05) in mammography utilization was observed after the intervention designed in collaboration with patients (29%) as compared with recommendation alone (21%) or recommendation with brochure (18%) at 6 months. However, at 2 years the difference favoring the custom-made intervention was no longer significant. CONCLUSIONS: At 6 months there was at least a 30% increase in the mammography utilization rate in the group receiving the intervention designed in collaboration with patients as compared with those receiving the recommendation alone or recommendation with brochure. Giving patients an easy-to-read NCI brochure and a personal recommendation was no more effective than giving them a recommendation alone, suggesting that simply providing women in a public hospital with a low-literacy-level, culturally appropriate brochure is not sufficient to increase screening mammography rates. In a multivariate analysis, the only significant predictor of mammography use at 6 months was the custom-made intervention.

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Learner Developed Materials: An Empowering Product

Cited by 98 publications

References 9 publications

An advance directive redesigned to meet the literacy level of most adults: A randomized trial

An advance directive redesigned to meet the literacy level of most adults: A randomized trial

Interventions to Enhance Breast Cancer Screening, Diagnosis, and Treatment among Racial and Ethnic Minority Women

Intervention to increase mammography utilization in a public hospital

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