Leisure satisfaction and psychiatric morbidity among informal carers of people with spinal cord injury

Raj, Jitin; Manigandan, C.; Jacob, K. S.

doi:10.1038/sj.sc.3101899

Cited by 31 publications

(28 citation statements)

References 16 publications

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“…Contrary to previous research on caregiving among adults with SCI 5,6 and among youth with spina bifida 2 , caregiver education, marital status and current child age were not associated with caregiver psychological outcomes. It could be that for parents of youth with SCI, past education is not as important as current education/resources related to their child's injury, and marital status may not be as important as having other types of social support.…”

Section: Discussioncontrasting

confidence: 54%

“…1,2 Similarly, caregivers of adults with SCI report experiencing a low quality of life, 3,4 burden 5 and psychological distress. 6 Factors associated with poorer caregiver outcomes include less education, 6 not having a partner, 2 being female, 5,6 having a child of older age 2 and caring for a person/child with behavioral/ emotional problems. 2 The impact of injury severity and injury duration is unclear, as some researchers 5 have found that these factors predict poor caregiver outcomes, whereas others 6 have found no such relationship.…”

Section: Introductionmentioning

confidence: 99%

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Relationships between the psychological characteristics of youth with spinal cord injury and their primary caregivers

et al. 2010

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Study design: Cross-sectional survey. Objectives: To describe anxiety and depression among caregivers of youth with spinal cord injury (SCI), examine predictors of caregiver psychological functioning and evaluate relationships between caregiver and child psychological outcomes. The protective factor of youth social relationships was also included to examine its impact on relationships between caregiver and child psychological functioning. Setting: Families received services at one of three pediatric specialty hospitals within a single hospital system in the United States. Methods: The study included English-speaking youth with SCI, aged between 7 and 17 years, who had been injured at least one year before, and their self-identified primary caregivers. Participants completed surveys assessing their anxiety, depression and youth's perceived social relationships. Results: The study included 203 youth with an average age of 12.70 years (s.d. ¼ 3.15), and among them 70% had paraplegia. Seventy-eight percent of caregivers were mothers, 14% fathers and 8% other family members. In all, 16 and 21% of caregivers scored in the range of moderate/severe anxiety and depression, respectively. Being female and having a child with mental health problems predicted caregiver anxiety and depression. In addition, having a child who was older at the time of injury predicted caregiver depression. Poor social relationships, having a caregiver with mental health problems and having a caregiver with less education predicted both child anxiety and depression. Conclusion: Caregiver sex, child age at injury and child mental health were related to caregiver outcomes; caregiver education, marital status and child age were not. Caregiver mental health and education and child social relationships predicted child outcomes. Neither injury level nor injury severity was related to caregiver or child outcomes.

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Section: Discussioncontrasting

confidence: 54%

Section: Introductionmentioning

confidence: 99%

Relationships between the psychological characteristics of youth with spinal cord injury and their primary caregivers

et al. 2010

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“…Caregiver burden was not influenced by the gender (z ¼ À0. 13 Functional abilities of the care recipients Analysis of BI scores is listed in Table 3. Majority of the care recipients (n ¼ 27) had moderate-to-very severe disability.…”

Section: Assessment Of Caregiver Burdenmentioning

confidence: 99%

“…13 The family caregivers who willingly accept the role of caregiving may also experience certain level of distress and burden when they realize they have little support once they have taken over the role. 1,12 The purpose of this study was to determine the psychological impact and examine the burden of caregiving for caregivers of persons with SCI living in Fiji.…”

Section: Introductionmentioning

confidence: 99%

Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Gajraj-Singh

2011

Spinal Cord

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Study design: This study was designed as a cross-sectional one. A set of structured questionnaires was administered. Objectives: The purpose of the study was to explore the psychological response of the caregivers of people with spinal cord injury (SCI) and to assess the burden of caregiving for SCI persons living in the community in Fiji. Setting: Fiji, South Pacific. Methods: A total of 30 primary caregivers of persons with SCI. The Index of Psychological Well-Being (IPWB) was used to assess the psychological impact of care giving, and Caregiver Burden Inventory (CBI) was used to evaluate the burden associated with caregiving for persons with SCI. Barthel Index (BI) scale was used to measure the functional abilities of the care recipients. Results: The majority of the participants (n ¼ 20) were women, who had an ethnic Fijian background (n ¼ 18) and were married (n ¼ 18), and were spouses (n ¼ 13). Mean BI of the persons with SCI was 7.1 (s.d. ¼ 5.23) on a 0-20 scale, with 90% (n ¼ 27) suffering from moderate-to-very severe disability (BIo15). The mean duration of caregiving was 6.1 years (s.d. ¼ 4.23). On average, the caregivers provided 6.1 h (s.d. ¼ 2.19) of caregiving per day. The experiences of caregiving adversely affected the caregiver psychological well-being. Participants demonstrated high levels of time-dependent and development burden. Caregiving was significantly related to the number of hours spent providing care (r s ¼ 0.35, Po0.05), and the older caregiver age (r s ¼ 0.46, Po0.01). Conclusion: Being a primary caregiver of a SCI person contributes to caregiver burden and psychological distress. The findings indicate that the contributions of these people should be recognized and interventions should be tailored not only toward the needs of the care recipients but also to the needs of the caregivers.

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“…Caregiving for an individual with SCI has been found to be exceedingly time consuming, stressful, and associated with deleterious effects on mental health and overall quality of life for the caregiver (Blanes, Carmagnani, & Ferreira, 2007;Boschen, Tonack, & Gargaro, 2005;Chen & Boore, 2008;Raj, Manigandan, & Jacob, 2006;Shewchuk, Richards, & Elliott, 1998). In a cross sectional study conducted in Brazil, it was found that SCI caregivers reported lower overall health-related quality of life and greater burden (Blanes et al, 2007).…”

Section: Introductiónmentioning

confidence: 99%

Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a Colombian Sample: An Exploratory Study

Wiese¹,

Leibach²,

Perrin³

et al. 2015

psdc

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psicología desde el caribe issn 0123-417x (impreso) issn 2011-7485 (on line) Vol. 32, n.° 3, septiembre-diciembre 2015 http://dx.doi.org/10.14482/psdc.32.3.6593 Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a colombian sample: An exploratory study Deficiencias funcionales en pacientes con lesiones de la médula espinal y la salud mental del cuidador: un estudio exploratorio en una muestra colombiana AbstractLimited literature has examined the connections between caregiver mental health and the physical and psychosocial functioning of individuals with spinal cord injury (SCI) in Latin America, despite the dearth of services and unique needs of this population. The purpose of the current study was to examine the relationships between caregiver mental health (anxiety, burden, depression, satisfaction with life, and self-esteem) and SCI physical and psychosocial functional impairments in a Colombian sample. Forty SCI caregivers were recruited from Neiva, Colombia, and completed measures of SCI impairments and their own mental health. Greater SCI impairments, and caregiver stress due to those impairments, were associated with higher caregiver depression and anxiety, although only patient psychosocial functional impairments and related caregiver stress were uniquely associated with caregiver depression. Due to the collectivist nature of and the importance of family in many Latino cultures, mental health interventions for family members who provide care for an individual with SCI having greater psychosocial impairments may be particularly important. Palabras clave: SCI impairment, caregivers, mental health. ResumenPoca literatura ha examinado las relaciones entre salud mental del cuidador y funcionamiento físico y psicosocial de las personas con traumatismo de médula espinal en América Latina, a pesar de la escasez de servicios y necesidades únicas de esta población. El propósito del presente estudio fue examinar las relaciones entre la salud mental del cuidador (ansiedad, sobrecarga, depresión, satisfacción con la vida y autoestima) y las discapacidades físicas y psicosociales de personas con traumatismo de médula espinal en una muestra colombiana. Cuarenta cuidadores de personas con traumatismo de médula espinal fueron reclutados en Neiva, Colombia, quienes completaron medidas de discapacidad del traumatismo de mé-dula espinal y de su propia salud mental. Mayores niveles de discapacidad en personas con traumatismo de médula espinal y niveles de estrés del cuidador debido a esas discapacidades, fueron asociadas con mayores niveles de depresión y ansiedad en el cuidador, aunque sólo las discapacidades psicosociales de los pacientes y el estrés relacionado con el cuidador fueron asociados con la depresión en el cuidador. Debido a la naturaleza colectivista y la importancia de la familia en la mayoría de las culturas latinas, las intervenciones centradas en la salud mental de los familiares que cuidan de personas con traumatismo de la medula espinal pueden ser particularmente importantes.

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Leisure satisfaction and psychiatric morbidity among informal carers of people with spinal cord injury

Cited by 31 publications

References 16 publications

Relationships between the psychological characteristics of youth with spinal cord injury and their primary caregivers

Relationships between the psychological characteristics of youth with spinal cord injury and their primary caregivers

Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a Colombian Sample: An Exploratory Study

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