Lessons from participatory design with adolescents on the autism spectrum

Madsen, Miriam; Kaliouby, Rana el; Eckhardt, Micah; Hoque, Mohammed Ehsan; Goodwin, Matthew S.; Picard, Rosalind W.

doi:10.1145/1520340.1520580

Cited by 39 publications

(38 citation statements)

References 6 publications

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“…The majority of existing design research is concerned with children living with autism and only a few projects focus on adults (Brand 2010, Brand andGaudion and McGinley 2012Madsen et al 2009;Parsons et al 2000;Ahrentzen and Steele 2009;Decker 2014). As most people living with autism will spend the majority of their lifetime as an adult, this lack of design research is of concern.…”

Section: Existing Design Researchmentioning

confidence: 99%

A designer's approach: how can autistic adults with learning disabilities be involved in the design process?

et al. 2015

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Section: Existing Design Researchmentioning

confidence: 99%

A designer's approach: how can autistic adults with learning disabilities be involved in the design process?

et al. 2015

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“…Madsen et al [8] state that PD 'is an important part of developing technologies that address the specific needs of under-represented groups, such as those on the autism spectrum'. However, the communication and social difficulties of this group, could explain the lack of research in this area and the use of teachers or parents as proxies, e.g.…”

Section: Related Literaturementioning

confidence: 99%

“…Many PD methods exist, including some specifically aimed at children [1,5,10,12]. Although there are a few examples of minority groups being involved in PD [4,8,11] there are no PD methods specifically developed for use with the ASD population.…”

Section: Introductionmentioning

confidence: 99%

Ideas

Benton

Johnson

Brosnan

et al. 2011

CHI '11 Extended Abstracts on Human Factors in Computing Systems

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Designing products and services to meet the specific requirements of children with Autism Spectrum Disorder (ASD) can be difficult due to their wide ranging and individual needs. Participatory Design (PD) is a design method that could be used to better meet these needs, by giving this population an opportunity to directly contribute to software designed for their use. Researchers have begun to involve children with ASD in the design process, but there is not yet a design method specifically adapted to support the potential difficulties this group may experience during PD sessions. This paper presents a new design method, IDEAS, which attempts to fulfill this need. The development of this method is described along with an initial pilot undertaken to determine the feasibility of using this method with an ASD population. The results indicate that the majority of children with ASD were able to produce a successful final design using this method, and have the potential to be involved in PD sessions as part of a design team.

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“…Authors describe a system enabling support for caregivers of autistic children. Furthermore, work in [14] has investigated technology to aid autistic adolescents learn to recognize facial expressions. In the same area, work in [5] has investigated the link between the use of interactive robots and increased social activity in children with autism spectrum disorder.…”

Section: Introductionmentioning

confidence: 99%

UbiHealth 2010

Arnrich

Osmani

Riva

et al. 2010

Proceedings of the 12th ACM International Conference Adjunct Papers on Ubiquitous Computing - Adjunct

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This workshop continues the series of UbiHealth workshops organized at the Ubicomp conferences. So far, the majority of work presented in earlier workshops and in the field of ubiquitous healthcare has focused on supporting people affected by somatic diseases. This year we call special attention on emerging research towards ubiquitous technologies for mental health and wellbeing. It is known that mental disorders are common diseases affecting all countries and societies. In recent years there have been various studies on correlating mental disease symptoms to objective physiological and behavioral measures in clinical settings. However, the current standard for diagnosis is still based on subjective clinical rating scales developed in the early 1960s. We see a new opportunity to exploit ubiquitous technology to provide the therapist with objective physiological and behavioral measures from the patient's daily life. The workshop will bring together researchers from ubiquitous computing and mental health professionals to present and discuss the latest work, focusing on how ubiquitous computing technology can be employed to design and support diagnosis and treatment of mental disorders and maintenance of mental wellness.

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Lessons from participatory design with adolescents on the autism spectrum

Cited by 39 publications

References 6 publications

A designer's approach: how can autistic adults with learning disabilities be involved in the design process?

A designer's approach: how can autistic adults with learning disabilities be involved in the design process?

Ideas

UbiHealth 2010

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