Lessons Learned in Developing a Patient-Centered Website to Support Stroke Patients and Caregivers During Transitions of Care

Fritz, Michele C.; Swierenga, Sarah J.; Freddolino, Paul P.; Coursaris, Constantinos K.; Woodward, Amanda Toler; Reeves, Matthew J.

doi:10.1007/978-3-030-78224-5_31

Lecture Notes in Computer Science

2021

DOI: 10.1007/978-3-030-78224-5_31

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Lessons Learned in Developing a Patient-Centered Website to Support Stroke Patients and Caregivers During Transitions of Care

Michele C. Fritz

Sarah J. Swierenga

Paul P. Freddolino

et al.

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2024

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Development of a patient-centered transition program for stroke survivors and their informal caregivers, combining case-management and access to an online information platform: A user-centered design approach

Delvallée,

Marchal,

Termoz

et al. 2024

DIGITAL HEALTH

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Background During the hospital-to-home transition, stroke survivors and their caregivers face a significant lack of support and information which impacts their psychosocial recovery. We aimed to co-design a program combining individual support by a trained case-manager (dedicated professional providing individual support) and an online information platform to address needs of stroke survivors and caregivers. Methods A two-step methodology was used. The first step followed a “user-centered design” approach during four workshops with stroke survivors, caregivers, and healthcare professionals to develop the platform and define the case-manager profile. The second step was a usability test of the platform following a Think Aloud method with patients and caregivers. The workshops and interviews were analyzed following a qualitative thematic analysis. The analysis of Think Aloud interviews was based on User Experience Honeycomb framework by Morville. Results Eight participants attended the workshops: two patients, two caregivers, three nurses, and a general practitioner. Activities, training, and skills of the case-manager were defined according to stroke survivors and caregivers needs. Name, graphics, navigation, and content of the platform were developed with the participants, a developer and a graphic designer. The usability of the platform was tested with 5 patients and 5 caregivers. The Think Aloud confirmed satisfaction with graphics and content but a need for improvement regarding the navigability. An update of the platform was conducted in order to answer the needs expressed by participants. Conclusion We developed, with a participatory approach, a patient-centered transition program, which will be evaluated in a randomized controlled trial.

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Development of a patient-centered transition program for stroke survivors and their informal caregivers, combining case-management and access to an online information platform: A user-centered design approach

Delvallée,

Marchal,

Termoz

et al. 2024

DIGITAL HEALTH

View full text Add to dashboard Cite

show abstract

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Lessons Learned in Developing a Patient-Centered Website to Support Stroke Patients and Caregivers During Transitions of Care

Cited by 1 publication

References 29 publications

Development of a patient-centered transition program for stroke survivors and their informal caregivers, combining case-management and access to an online information platform: A user-centered design approach

Development of a patient-centered transition program for stroke survivors and their informal caregivers, combining case-management and access to an online information platform: A user-centered design approach

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