Lessons of self-help for Indian women with breast cancer

David, Alice Jane; Roul, R K; Kuruvilla, Joseph

doi:10.1097/00002820-198810000-00003

Cited by 5 publications

(4 citation statements)

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“…Some 39 empirical and 18 other-type studies were retrieved. Among the empirical studies, 12 were qualitative (Bottorff et al, 2007; David et al, 1988; Elsner et al, 2012; Francis, 1986; Gurm et al, 2008; Howard et al, 2007; Majumdar, 2004; Selman & Higginson, 2010; Shanmugasundaram & O'Connor, 2009; Simha et al, 2013; Singh-Carlson et al, 2013; Patel et al, 2014), 21 quantitative (Banerjee et al, 2007; Bele et al, 2012; Chandra et al, 1998; 2006; 2009; Chaturvedi, 1991; 2003; Kandasamy et al, 2011; Lewis et al, 2013; Mahalakshmy et al, 2011; Marashi et al, 2009; Pakseresht et al, 2011; Pandey et al, 2003; 2005; Skevington, 2012; Talukdar et al, 2013; Thomas et al, 2002; Vidhubala et al, 2005; WHOQoL HIV Group, 2004; Lewis et al, 2014; Peter et al, 2014; Arora & Shukla, 2014), and 6 mixed-methods studies (Jagannathan & Juvva, 2009; Mishra et al, 2010; Pahwa et al, 2005; Ramanakumar et al, 2005; Wright et al, 2004; Chacko et al, 2014). There was a duplicate publication of one of the quantitative studies (Chaturvedi, 1991; 2003).…”

Section: Resultsmentioning

confidence: 99%

“…It has most often been studied as an aspect or domain of quality of life (Chandra et al, 1998; 2006; 2009; Chaturvedi, 1991; 2003; WHOQoL HIV Group, 2004; Mahalakshmy et al, 2011; Marashi et al, 2009; Kandasamy et al, 2011; Bele et al, 2012; Pakseresht et al, 2011; Pandey et al, 2005; Skevington, 2012; Talukdar et al, 2013; Vidhubala et al, 2005; Peter et al, 2014; Arora & Shukla, 2014), as one of the coping mechanisms used by patients (Jagannathan & Juvva, 2009; Ramanakumar et al, 2005), or as part of the set of psychosocial problems faced by patients (Mishra et al, 2010; Pahwa et al, 2005; Thomas et al, 2002; Lewis et al, 2013). In 10 qualitative studies, spirituality was not even purposively operationalized but came up in response to certain probes by the interviewer (Bottorff et al, 2007; David et al, 1988; Elsner et al, 2012; Francis, 1986; Gurm et al, 2008; Howard et al, 2007; Majumdar, 2004; Shanmugasundaram & O'Connor, 2009; Singh-Carlson et al, 2013; Patel et al, 2014).…”

Section: Resultsmentioning

confidence: 99%

“…The authors of the retrieved review articles reflected upon particular aspects of spirituality, using a selection of the relevant literature. Assessment of the quality of the empirical studies and the risk of bias often turned out to be difficult or even impossible because the information regarding the methods in several publications was unclear or incomplete (David et al, 1988;Jagannathan & Juvva, 2009;Lewis et al, 2013;Ramanakumar et al, 2005;Chacko et al, 2014). Some of the studies clearly suffered from poor research design or small sample size.…”

Section: Resultsmentioning

confidence: 99%

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Spirituality as an ethical challenge in Indian palliative care: A systematic review

2015

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Objective:Spiritual care is recognized as an essential component of palliative care (PC). However, patients' experience of spirituality is heavily context dependent. In addition, Western definitions and findings regarding spirituality may not be applicable to patients of non-Western origin, such as Indian PC patients. Given the particular sociocultural, religious, and economic conditions in which PC programs in India operate, we decided to undertake a systematic review of the literature on spirituality among Indian PC patients. We intended to assess how spirituality has been interpreted and operationalized in studies of this population, to determine which dimensions of spirituality are important for patients, and to analyze its ethical implications.Method:In January of 2015, we searched five databases (ATLA, CINAHL, EMBASE, PsycINFO, and PubMed) using a combination of controlled and noncontrolled vocabulary. A content analysis of all selected reports was undertaken to assess the interpretation and dimensions of spirituality. Data extraction from empirical studies was done using a data-extraction sheet.Results:A total of 39 empirical studies (12 qualitative, 21 quantitative, and 6 mixed-methods) and 18 others (10 reviews, 4 opinion articles, and 4 case studies) were retrieved. To date, no systematic review on spirituality in Indian PC has been published. Spirituality was the main focus of only six empirical studies. The content analysis revealed three dimensions of spirituality: (1) the relational dimension, (2) the existential dimension, and (3) the values dimension. Religion is prominent in all these dimensions. Patients' experiences of spirituality are determined by the specifically Indian context, which leads to particular ethical issues.Significance of results:Since spiritual well-being greatly impacts quality of life, and because of the substantial presence of people of Indian origin living outside the subcontinent, the findings of our review have international relevance. Moreover, our review illustrates that spirituality can be an ethical challenge and that more ethical reflection on provision of spiritual care is needed.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Spirituality as an ethical challenge in Indian palliative care: A systematic review

2015

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“…Therefore, a separate family support system is needed for mothers of children with disabilities because children with disabilities need continuous help and the mothers carry a tremendous amount of psychological burden with them. Family support programmes that are known to reduce effectively the parenting stress of mothers (Brodin, ) such as ‘self‐help for parent’(Bennett, DeLuca, & Allen, ; Biegel & Yamatani, ; David, Roul, & Kuruvilla, ; Diehl, Moffitt, & Wade, ) or ‘parent to parent’ that connects parents of these children together which as a result reduced parenting stress by creating a bond among them (Beckman & Bell, ; Ireys, Chernoff, Stein, DeVet, & Silver, ; Santelli, Turnbull, Marquis, & Lerner, ; Santelli, Poyadue, & Young, ; Santelli, Turnbull, Marquis, & Lerner, ). According to Thoits (), not all social support will help reduce the stress of the household.…”

Section: Discussionmentioning

confidence: 99%

A Path Analysis of the Variables Related to the Quality of Life of Mothers with Disabled Children in Korea

Cho

Hong

2012

Stress and Health

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This study examines how different variables affect the quality of life of mothers of children with disabilities. We attempted to identify the relationship between child variables (age and whether the child has single or multiple disabilities), economic variables (monthly income and average monthly treatment cost), mother-related variables (parenting stress) and social variables (social support) as predictors of the quality of life of mothers of children with disabilities, and the path along which these variables affect their quality of life. The dataset comprised 160 mothers of children with disabilities, who resided in Seoul city and Gyeonggi province. The participants answered questions related to their general information, quality of life, social support and parenting stress. The data were analysed using SPSS 17.0 and AMOS 16.0. We found that social support not only influences the quality of life through parenting stress but also is a direct factor. We also found that both whether a child had single or multiple disabilities and the average monthly treatment cost were significant factors that influenced the parent's quality of life indirectly through parenting stress. Moreover, we concluded that whereas the age of children with disabilities is only a direct impact on the mother's quality of life, monthly income has a direct influence on both parenting stress and quality of life separately, but it does not directly influence quality of life through parenting stress. In our opinion, this is the first study that has conducted a holistic analysis of the quality of life of Korean mothers of children with disabilities by considering a range of variables.

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