Life after a lung transplant: a balance of joy and challenges

Graarup, Jytte; Mogensen, Elin Lindberg; Missel, Malene; Berg, Selina Kikkenborg

doi:10.1111/jocn.13724

Cited by 8 publications

(12 citation statements)

References 27 publications

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“…Therefore, it to be expected that they are constantly mindful of their new, transplanted organ. Existing studies indicate that, for a patient who is newly transplanted, life was usually described with a sense of hope, freedom, rebirth, and optimism (Graarup et al, 2017;Rosenberger, Dew, DiMartini, DeVito Dabbs, & Yusen, 2012). Nonetheless, this study further highlights that the road to recovery, QOL, and normalcy among liver transplant recipients who continue to survive is not straight forward.…”

Section: Original Articlementioning

confidence: 70%

“…Building on the research published in 2016 (Wainwright et al, 2016), it is clear that postliver-transplantation recovery extends well beyond returning home. Existing research indicates that, although transplant recipients are typically discharged from hospital three to five weeks post-surgery and undergo intensive follow-up treatment in outpatient clinics for four to six months, support of patients through the post-transplant process is complex and multifaceted (Graarup, Mogensen, Missel, & Berg, 2017). It often takes years for patients, families, and relatives to fully adjust to their new lives and some research has described the first post-surgery phase as a period of naiveté as recipients tend to feel immune to transplant-related complications (De Vito Dabbs et al, 2004).…”

Section: Qualitative Researchmentioning

confidence: 99%

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Quality of life of living with a transplanted liver :The issue of returning to normalcy

Wainwright

Waring

Jülich

et al. 2018

ANZSWJ

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INTRODUCTION: Advanced technology in medical and pharmacology has increased surgical survival rates for transplant recipients. Therefore, post-transplant care is critical and tightly connected with key focuses on the recipient’s quality of life (QOL). Post-transplant QOL is multifaceted, encompassing morbidity and personal, social, familial and environmental support for recipients. Post-liver transplantation recovery extends well beyond returning home.METHOD: Building on Wainwright’s research (Wainwright, 2011a, 2011b; Wainwright, Jülich, Waring, Yeung, Green, 2016), herself a liver transplant recipient, this article reports transplant recipients’ perceptions and experiences after the first three years and discusses how they re-established function in everyday life as they adapted to their new normal to achieve QOL. The research employed interpretive description to interview transcripts and field-notes of 17 liver transplant recipients. Data were evaluated according to inductive thematic analysis. Eschewing the health-related QOL measure for its rigidity and lack of qualitative data, this research captured the lived experiences of liver transplant recipients unlike clinically focused studies.FINDINGS: The results showed that, although transplantation can make positive changes in their lives, recipients continued to be influenced subtly by illness which can alter their re-conceptualisation and re-definition of QOL and normalcy. The success of a liver transplant does not depend only on the physical care given; to the recipients as the spectre of future ill health and transplant failure continue to be perceived as a constant risks. Ongoing support from family, friends, and healthcare professionals are none-the-less fundamental in the post-transplantation journey.

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Section: Original Articlementioning

confidence: 70%

Section: Qualitative Researchmentioning

confidence: 99%

Quality of life of living with a transplanted liver :The issue of returning to normalcy

Wainwright

Waring

Jülich

et al. 2018

ANZSWJ

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“…Given the progressive nature of advanced lung disease, transplant candidates often experience declining quality of life (QOL) as they wait for transplant. [1][2][3] Posttransplant patients typically experience a temporary improvement in their physical symptoms and overall QOL 2,4,5 ; yet, their psychological health remains below the population norm, including increased incidence of anxiety and depression in the first posttransplant year. 2 Posttransplant patients also encounter new challenges such as the fear of organ rejection, dependency on the health-care team, and the experience of immunosuppressant side effects, such as tremors, muscle weakness, and hirsutism.…”

Section: Introductionmentioning

confidence: 99%

“…2 Posttransplant patients also encounter new challenges such as the fear of organ rejection, dependency on the health-care team, and the experience of immunosuppressant side effects, such as tremors, muscle weakness, and hirsutism. 2,4,5 Given the many challenges encountered before and after lung transplantation, patients may benefit from the integration of palliative care in their ongoing care. Palliative care is an interdisciplinary approach for addressing the needs of patients with life-limiting illnesses.…”

Section: Introductionmentioning

confidence: 99%

An Integrative Review of the Role of Palliative Care in Lung Transplantation

et al. 2020

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Background: Lung transplant patients experience significant physical symptoms and psychological stress that affect their quality of life. Palliative care is an interdisciplinary specialty associated with improved symptom management and enhanced quality of life. Little, however, is known about the palliative care needs of lung transplant patients and the role it plays in their care. Aim: The aim of this integrative review was to synthesize the literature describing the palliative care needs, the current role, and factors influencing the integration of palliative care in the care of lung transplant patients. Design/Data Sources: We searched PubMed, Scopus, CINAHL, and Embase to identify English-language, primary studies focused on palliative care in adult lung transplantation. Study quality was evaluated using Strengthening the Report of Observational studies in Epidemiology and Consolidated Criteria for Reporting Qualitative Research criteria. Results: Seven articles were included in the review. Most were single-center, descriptive studies. Two studies used qualitative and 5 used quantitative methodologies. Collectively, these studies suggest that palliative care is typically consulted for physical and psychological symptom management, although consultation is uncommon and often occurs late in the lung transplant process. We found no studies that systematically assessed palliative needs. Misperceptions about palliative care, communication challenges, and unrealistic patient/family expectations are identified barriers to the integration. While limited, evidence suggests that palliative care can be successfully integrated into lung transplant patient management. Conclusions: Empirical literature about palliative care in lung transplantation is sparse. Further research is needed to define the needs and opportunities for integration into the care of these patients.

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“…The procedure has been successful at extending many lives. However, despite improvements in physical functioning and overall quality of life among most recipients the prevalence of post‐transplant health complications remains high …”

Section: Introductionmentioning

confidence: 99%