Life events as correlates of problem behavior and mental health in a residential population of adults with developmental disabilities

Owen, Dawn M.; Hastings, Richard P.; Noone, Stephen J.; Chinn, Joanna; Harman, Kattie; Roberts, J. Scott; Taylor, Kelly

doi:10.1016/j.ridd.2004.01.003

Cited by 70 publications

(78 citation statements)

References 23 publications

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“…If informant ratings of stress are to be adopted in the future for individuals with a broader range of disabilities, then we need to study informant ratings of more severely impaired individuals. It may be that some stressors from the Lifestress Inventory are less relevant to individuals with more severe disabilities, and that indices such as the Stress Survey Schedule (Groden et al, 2000) or the Life Events List (Owen et al, 2004) may be more appropriate.…”

Section: Discussionmentioning

confidence: 99%

“…One recent study (Hastings, Hatton, Taylor, & Maddison, 2004) summarized information on 17 major life events for 1155 individuals with ID according to informants, using the PAS-ADD checklist (Moss et al, 1998) and reported a relationship between significant life events and psychopathology, particularly in the affective domain. Another recent study (Owen et al, 2004) on 93 individuals with ID in an institutional setting used the Life Events List (LEL), a 20-item informant completed list of negative life events thought to be particularly relevant to individuals with ID in a long term residential setting. This study reported that the most common stressful life events experienced were staffing and residence changes, conflict, family bereavements and relationships and illness or injury, and individuals exposed to such life events were rated as displaying more aggression and at higher risk for affective disorders.…”

Section: Introductionmentioning

confidence: 99%

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A preliminary study of perceived stress in adults with intellectual disabilities according to self‐report and informant ratings

Lunsky

Bramston

2006

Journal of Intellectual & Developmental Disability

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Background. Stress is a major risk factor for mental health problems in individuals with intellectual disabilities, but few studies on stress have been conducted that take both the perspective of the person with the disability and the caregiver into account. The present study evaluated an informant version of the Lifestress Inventory, and compared it to the self-report version.. Method. Seventy pairs of individuals with intellectual disability and their caregivers completed the Lifestress Inventory, the Inventory of Negative Social Interactions and the Birleson Depression Scale. Results. Informant and self-report ratings on the Lifestress Inventory were internally reliable, showed modest agreement with each other and correlated with the negative Social Interactions and Depression measures. The most troublesome stressors reported by informants and self-reports differed, however, and families tended to agree more with self-reports than staff informants. Conclusions. The informant version of the Lifestress Inventory is a suitable parallel instrument but not a replacement for self reports.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A preliminary study of perceived stress in adults with intellectual disabilities according to self‐report and informant ratings

Lunsky

Bramston

2006

Journal of Intellectual & Developmental Disability

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“…Data sets from five different regions of the world were collated (Within USA: Rojahn et al, 2010;Rojahn, Rowe, Kasdan, Moore, & van Ingen, 2011;Zaja, Moore, van Ingen, & Rojahn, 2011;Outside of USA: Hastings, Beck, & Hill, 2005;Mircea, Rojahn, & Esbensen, 2010;Owen et al, 2004). Participants were selected to be part of the sample studied if they had a total score greater than 0 on the Behavior Problem Inventory (Rojahn et al, 2001).…”

Section: Participants and Data Collectionmentioning

confidence: 99%

Stereotyped behaviors predicting self-injurious behavior in individuals with intellectual disabilities

Barnard‐Brak

Rojahn

Richman

et al. 2015

Research in Developmental Disabilities

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“…72 Similarly, people with ID experience psychological and behavioral disturbance in reaction to significant life events. [73][74][75][76] In children, the literature suggests that the best predictors of good outcome are those that shield against secondary loss: a good relationship with a surviving parent who is competent in parenting bereaved children [77][78][79][80] and a stable family environment promoted by strong family organization, cohesion, communication, and role differentiation. 8,81 It seems reasonable to infer that maintaining stability in the home is critical for the well-being of bereaved individuals with ID.…”

Section: Secondary Loss and Coping With Griefmentioning

confidence: 99%

Grief and its Complications in Individuals with Intellectual Disability

Brickell¹,

Münir²

2008

Harvard Review of Psychiatry

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Bereavement and loss have significant impact on the lives of individuals with intellectual disability (ID). Although there is a growing impetus to define the symptoms of grief that predict long-term functional impairment, little is known about maladaptive grieving among individuals with ID. We examine the literature concerning the phenomenology of traumatic grief (TG) in the general population, along with what is known about the manifestations of grief in individuals with ID. We then apply modern theories of grief and grief resolution to individuals with ID in order to highlight potential areas of vulnerability in this population and to lay the groundwork for interventions that will facilitate their adaptation to loss. We provide a theoretical framework for the proposition that individuals (including children and adults) with ID are more susceptible to TG, based on an increased risk of secondary loss, barriers to communicating about the loss, and difficulty finding meaning in the loss. We conclude that individuals with ID should be considered as potential candidates for targeted bereavement interventions. Further research is required, however, in order to develop population-appropriate measurement scales for testing these hypotheses. Keywords grief; bereavement; intellectual disabilityEarly psychodynamic theories of grief suggest that only those who are capable of understanding the finality of death, and who are able to perform the arduous psychological task of withdrawing emotion from the deceased, will be capable of mourning. [1][2][3][4] Even without a cognitive understanding of death, however, it is possible to notice the absence of a loved one and to react emotionally to that loss. In his formulation of attachment theory, John Bowlby 5-7 provided the first theoretical framework for the proposition that even young children can grieve following the loss of an attachment figure. Since then, studies have confirmed that children react with grief, sadness, and despair to the death of loved ones. 8 Individuals with intellectual disability (ID) have long been considered incapable of griefjust as young children once were. It has been suggested that individuals with ID * do not possess either the necessary capacity to form meaningful relationships 9,10 or the necessary

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Life events as correlates of problem behavior and mental health in a residential population of adults with developmental disabilities

Cited by 70 publications

References 23 publications

A preliminary study of perceived stress in adults with intellectual disabilities according to self‐report and informant ratings

A preliminary study of perceived stress in adults with intellectual disabilities according to self‐report and informant ratings

Stereotyped behaviors predicting self-injurious behavior in individuals with intellectual disabilities

Grief and its Complications in Individuals with Intellectual Disability

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