Life with a urostomy: A phenomenological study

A literature review about self‐care on ostomy patients and their caregivers

“…3 Evidence reports that the negative consequences of permanent ostomy formation occur regardless of the type of ostomy or the reason for ostomy creation. 3,5,6,[17][18][19][20] In a qualitative study, published in Villa et al, 1 Despite the best efforts of an increasing number of stoma therapists and corresponding advances in stoma appliance technology, levels of maladjustment have changed little over the years. 3,5,6,[17][18][19][20] In a qualitative study, published in Villa et al, 1 Despite the best efforts of an increasing number of stoma therapists and corresponding advances in stoma appliance technology, levels of maladjustment have changed little over the years.…”

“…1 Factors influencing self-care include experience, skill, motivation, culture, confidence, habits, functions, cognition, support from others and access to care.…”

“…In chronic illness, higher social support, most commonly measured as the amount of practical and emotional support that patients perceive, has been linked with improved self-management behaviour, improved disease control and lower mortality risk 33 In literature many authors evidence that social support acts as a positive input to improve adjustment and to grow the patient's empowerment. 1 Some patients mentioned that education provided by the hospital was limited. Some felt nervous and were worried about caring for the stoma; some were even afraid that they were doing it wrong.…”

“…The aetiology of the disease will normally determine whether the stoma is temporary or permanent. 1,9 Bladder cancer (BC) is the seventh most commonly diagnosed cancer in the men population worldwide; in the European Union, the age-standardized incidence rate (per 100 000 person/years) is 19.1 for men and 4.0 for women. 8 On the other side, radical cystectomy is the standard treatment for localized muscle-invasive and metastatic bladder cancer (MIBC) in most countries.…”

“…4 is the third most frequent cancer in the 27 countries of the European Union, after breast and prostate, and after lung cancer, it is also the second most frequent cause of death. 1,9,10 Nevertheless, many authors suggest that, regardless of the specific diagnosis that may have led to the creation of an ostomy, these patients all share similar consequences, so they can be considered as part of the same population. 1,9 Bladder cancer (BC) is the seventh most commonly diagnosed cancer in the men population worldwide; in the European Union, the age-standardized incidence rate (per 100 000 person/years) is 19.1 for men and 4.0 for women.…”