Lifestyle modifications and complementary treatments for hidradenitis suppurativa

De, Devea R.; Rick, Jonathan W.; Shih, Terri; Alavi, Afsáneh; Hsiao, Jennifer L.; Shi, Vivian Y.

doi:10.1002/der2.117

Dermatological Reviews

2022

DOI: 10.1002/der2.117

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Lifestyle modifications and complementary treatments for hidradenitis suppurativa

Devea R. De

Jonathan W. Rick

Terri Shih

et al.

Abstract: Background: Hidradenitis suppurativa (HS) is a chronic inflammatory dermatosis with recurrent painful nodules and abscesses affecting the intertriginous areas.Patients often experience a significant negative impact on quality of life from associated pain, discharge, odor, scarring, and social stigma. Even with complex medical regimens, patients may report inadequate disease control. Lifestyle changes and complementary and alternative medicines (CAM) are used by a majority of HS patients. Conventional medicines… Show more

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“…2 They may also experience isolation due to fear of stigmatization with pain, scaring, and odor. 3,4 HS support groups serve as a resource to support mental health for HS patients. Learning about specific preferences from patients may help tailor support group recommendations.…”

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confidence: 99%

Support Group Utilization and Perspectives Among Hidradenitis Suppurativa Patients

Shih

Atluri

et al. 2022

J of Skin

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Introduction: Hidradenitis suppurativa (HS) is a chronic inflammatory dermatosis associated with significant psychosocial burden. HS patients are more likely to experience mental health comorbidities such as depression and anxiety. They may also experience isolation due to fear of stigmatization as HS lesions are often associated with pain, scarring, and odor. This study investigates the perspectives of HS patients on HS support groups and the usage of this resource among this population. Methods: An anonymous Redcap survey was utilized via online social media HS support groups between 10/2021-1/2022 to collect demographic, usage, and perspective data. Comparative statistics were conducted and p-value of <0.05 was considered significant. Results: Of the 166 respondents, 78% respondents were part of an HS support group however, only 12% of respondents were recommended to join by their main HS healthcare provider and most (68%) learned about support groups through their own internet searches. Most respondents were daily (42%) and weekly (38%) support group users. Virtual meetings were preferred by the majority compared to in person meetings (50% vs 13%). The top reasons respondents reported attending support groups were to better understand HS, increasing their knowledge of HS resources, and access to treatment/care tips. Respondents without dermatologists as their main HCP and skin of color (SOC) respondents were more likely to report that support groups improved their care of HS (4.29 vs 3.90, p=0.031). Conclusion: Our findings highlight the preferential format of virtual support groups and that support groups may be an underutilized resource by healthcare providers for their patients. Support groups may help to narrow gaps in education when patients are unable to access or have delays in obtaining dermatological care, especially in SOC patients who have historically experienced higher rates of healthcare disparities.

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Support Group Utilization and Perspectives Among Hidradenitis Suppurativa Patients

Shih

Atluri

et al. 2022

J of Skin

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The Impact of Diet on Hidradenitis Suppurativa Severity: A Cross-Sectional Case–Control Study

Kesik,

Dogan-Gunaydin,

Fisunoglu

2024

Medicina

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Background and Objectives: Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease primarily affecting hair follicles, characterized by painful nodules, abscesses, and sinus tract formation. Recent evidence suggests that weight management and nutritional factors may influence HS symptoms. This cross-sectional case–control study aimed to assess the impact of body composition and nutritional factors on HS severity. Materials and Methods: We included 50 patients with HS and 50 matched controls comparable in body mass index (BMI), sex, and age. The data collected included 3-day food records, a food frequency questionnaire, 24 h physical activity records, Mediterranean Diet Adherence Screener (MEDAS) scores, body composition, and anthropometric measurements. The macronutrient and micronutrient intake, as well as dietary glycemic index (GI), were analyzed. HS severity was assessed using the Hurley staging system and the International Hidradenitis Suppurativa Severity Score System (IHS4). Results: HS patients exhibited significantly lower adherence to the Mediterranean diet and a higher dietary GI compared to controls. Their micronutrient intake was also reduced, while the consumption of junk food, dairy products, and nightshade vegetables was more frequent. The MEDAS scores and physical activity levels were negatively correlated with the IHS4 scores, while higher anthropometric measurements, dietary energy, protein, total fat, and GI showed positive correlations. The Hurley stage was negatively correlated with the MEDAS scores and positively correlated with the GI and visceral fat. In multiple regression analysis, the MEDAS score emerged as the primary variable associated with disease severity. Conclusions: These findings suggest that an increased adherence to the Mediterranean diet, intake of food with a lower GI, and maintaining an ideal body weight may positively affect HS management. Long-term studies are warranted to corroborate our findings.

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Lifestyle modifications and complementary treatments for hidradenitis suppurativa

Cited by 2 publications

References 102 publications

Support Group Utilization and Perspectives Among Hidradenitis Suppurativa Patients

Support Group Utilization and Perspectives Among Hidradenitis Suppurativa Patients

The Impact of Diet on Hidradenitis Suppurativa Severity: A Cross-Sectional Case–Control Study

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