‘Like holding the axe on who should live or not’: adolescents’ and adults’ perceptions of valuing children’s health states using a standardised valuation protocol for the EQ-5D-Y-3L

Åström, Mimmi; Conte, Helen; Berg, Jenny; Burström, Kristina

doi:10.1007/s11136-022-03107-0

Cited by 10 publications

(3 citation statements)

References 42 publications

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“…adult vs. adolescent) and for whom (self vs. other, adult vs. child) values health states [ 42 ]. There is an increasing body of literature that suggests the feasibility of including adolescents in valuation of the EQ-5D-Y-3L [ 43 – 45 ]. This is also supported by evidence from valuation studies of other instruments, such as the CHU9D and vignette-based studies [ 46 , 47 ].…”

Section: Discussionmentioning

confidence: 99%

Value Set for the EQ-5D-Y-3L in Hungary

et al. 2022

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Background The Hungarian health technology assessment guidelines recommend the use of the EuroQol instrument family in quality-adjusted life-year calculations. However, no national value set exists for the EQ-5D-Y-3L or any other youth-specific instrument. Objective This study aims to develop a national value set of the EQ-5D-Y-3L for Hungary based on preferences of the general adult population. Methods This study followed the international valuation protocol for the EQ-5D-Y-3L. Two independent samples, representative of the Hungarian general adult population in terms of age and sex were recruited to complete online discrete choice experiment (DCE) tasks and composite time trade-off (cTTO) tasks by computer-assisted personal interviews. Adults valued hypothetical EQ-5D-Y-3L health states considering the health of a 10-year-old child. DCE data were modelled using a mixed logit model with random-correlated coefficients. Latent DCE utility estimates were mapped onto mean observed cTTO utilities using ordinary least squares regression. Results Overall, 996 and 200 respondents completed the DCE and cTTO surveys, respectively. For each domain, the value set resulted in larger utility decrements with more severe response levels. The relative importance of domains by level 3 coefficients was as follows: having pain or discomfort > feeling worried, sad or unhappy > mobility > doing usual activities > looking after myself. Overall, 12.3% of all health states had negative utilities in the value set, with the worst health state having the lowest predicted utility of − 0.485. Conclusion This study developed a national value set of the EQ-5D-Y-3L for Hungary. The value set enables to evaluate the cost utility of health technologies for children and adolescents based on societal preferences in Hungary. Supplementary Information The online version contains supplementary material available at 10.1007/s40273-022-01190-2.

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Section: Discussionmentioning

confidence: 99%

Value Set for the EQ-5D-Y-3L in Hungary

et al. 2022

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“…For example, children and adolescents are thought to be more flexible and can adapt more easily to health challenges than can adults, in part because they will be able to get support from their parents/caregivers and society. [29][30][31][32] This raises questions about the decision-making process participants go through when valuing paediatric HRQoL compared with adult HRQoL. This study will qualitatively explore how participants make decisions when completing valuation tasks.…”

Section: Open Accessmentioning

confidence: 99%

“…There is also evidence from the literature that adults think that adults and children have different coping abilities. For example, children and adolescents are thought to be more flexible and can adapt more easily to health challenges than can adults, in part because they will be able to get support from their parents/caregivers and society 29–32…”

Section: Introductionmentioning

confidence: 99%

Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol

Luo

Bahrampour

et al. 2023

BMJ Open

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IntroductionThere is evidence from previous studies that adults value paediatric health-related quality of life (HRQoL) and adult HRQoL differently. Less is known about how adolescents value paediatric HRQoL and whether their valuation and decision-making processes differ from those of adults. Discrete choice experiments (DCEs) are widely used to develop value sets for measures of HRQoL, but there is still much to understand about whether and how the methods choices in the implementation of DCE valuation tasks, such as format, presentation and perspective, affect the decision-making process of participants. This paper describes the protocol for a qualitative study that aims to explore the decision-making process of adults and adolescents when completing DCE valuation tasks. The study will also explore the impact of methodological choices in the design of DCE studies (including decisions about format and presentation) on participants’ thinking process.Methods and analysisAn interview protocol has been developed using DCE valuation tasks. Interviews will be conducted online via Zoom with both an adolescent and adult sample. In the interview, the participant will be asked to go through some DCE valuation tasks while ‘thinking aloud’. After completion of the survey, participants will then be asked some predetermined questions in relation to various aspects of the DCE tasks. Interviews will be recorded and transcribed and analysed using a thematic analysis approach.Ethics and disseminationEthics approval for this study has been received for the adult sample (UTS ETH20-9632) as well as the youth sample (UTS ETH22-6970) from the University of Technology Sydney Human Research Ethics Committee. Results from this study will inform the methods to be used in development of value sets for use in the health technology assessment of paediatric interventions and treatments. Findings from this study will also be disseminated through national/international conferences and peer-reviewed journals.

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Comparing heuristic valuation processes between health state valuation from child and adult perspectives

Lipman,

Reckers-Droog

2024

Eur J Health Econ

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Objectives Health state valuation assumes that respondents trade off between all aspects of choice tasks and maximize their utility. Yet, respondents may use heuristic valuation processes, i.e., strategies to simplify or avoid the trade-offs that are core to health state valuation. The objective of this study is to explore if heuristic valuation processes are more prevalent for valuation from a 10-year-old child’s perspective compared to the use of an adult perspective. Methods We reused existing data in which EQ-5D health states were valued from adult and child perspectives with composite time trade-off (cTTO) and discrete choice experiment (DCE) tasks. Our analyses focused on comparing completion time and responding patterns across both perspectives. We also explored how reflective of a set of heuristic strategies respondents’ choices were in both perspectives. Results We found no evidence for systematic differences in completion time across perspectives. Generally, we find different responding patterns in child perspectives, e.g., more speeding, dominance violations, and clustering of utilities at 1.0, 0.8, and 0. Very few heuristic strategies provide a coherent explanation for the observed DCE responses. Conclusion Our results provide some, albeit indirect, evidence for differences in heuristic valuation processes between perspectives, although not across all data sources. Potential effects of heuristic valuation processes, such as transfer of responsibility, may be identified through studying responding patterns in cTTO and DCE responses.

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‘Like holding the axe on who should live or not’: adolescents’ and adults’ perceptions of valuing children’s health states using a standardised valuation protocol for the EQ-5D-Y-3L

Cited by 10 publications

References 42 publications

Value Set for the EQ-5D-Y-3L in Hungary

Value Set for the EQ-5D-Y-3L in Hungary

Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol

Comparing heuristic valuation processes between health state valuation from child and adult perspectives

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