Lipomatous hypertrophy of the interatrial septum, an unusual tachycardia etiology in a hematopoietic stem cell transplanted patient

Illade, Laura; Fornieles, Mercedes Plaza; Ángulo, Blanca Molina; Martel, Amalia Tamariz; Pino, Miguel Ángel López; Díaz, Miguel Ángel; González‐Vicent, Marta

doi:10.1080/08880018.2017.1330376

Cited by 2 publications

(4 citation statements)

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“…We found that summary HRQoL indices were high for both samples. Overall indices suggested a somewhat lower HRQoL level in adolescent samples, particularly in girls, confirming previous observations (Abate et al, 2018 ; Jean & Syrjala, 2017 ; Pépin et al, 2017 ). As for differences across conditions, it was notable that older boys with PID reported a lower HRQoL than their counterparts with a history of ALL.…”

Section: Discussionsupporting

confidence: 87%

“…We administered the translated versions of the 16D and 17D to two clinical samples, one being treated for PID, the other having recovered from pediatric cancer (Acute Lymphoblastic Leukemia (ALL)). These samples are drawn from larger studies (Abate et al, 2018 ; Anestin et al, 2018 ; Boulet-Craig et al, 2018 ; Lamore et al, 2020 ; Marcoux et al, 2017 ; Pépin et al, 2017 ; Sultan et al, 2017 ). Full sample description data are available in Tables S4-S5.…”

Section: Methodsmentioning

confidence: 99%

“…Full sample description data are available in Tables S4-S5. Descriptions of participants’ flow are available in the original study reports (Abate et al, 2018 ; Anestin et al, 2018 ; Boulet-Craig et al, 2018 ; Lamore et al, 2020 ; Marcoux et al, 2017 ; Pépin et al, 2017 ; Sultan et al, 2017 ). As we did not have hypotheses we did not calculate the required samples size.…”

Section: Methodsmentioning

confidence: 99%

“…Participants were contacted by telephone by a research coordinator. Recruitment was organized at the long-term follow-up clinic of Sainte-Justine UHC as part of a larger study on late effects (Abate et al, 2018 ; Anestin et al, 2018 ; Boulet-Craig et al, 2018 ; Lamore et al, 2020 ; Marcoux et al, 2017 ; Pépin et al, 2017 ). During the child's research visit at the clinic, participants were asked to complete a questionnaire on site or, if not possible, at home and return it by mail.…”

Section: Methodsmentioning

confidence: 99%

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French-language adaptation of the 16D and 17D Quality of Life measures and score description in two Canadian pediatric samples

Rondeau

Desjardins

Laverdière

et al. 2021

Health Psychology and Behavioral Medicine

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Purpose: The Health state descriptive system includes standardized self-administered instruments for measuring Health-Related Quality of Life (HRQoL) respectively among adolescents, and children. The objectives of the current study were: (1) to translate and adapt the pediatric-adolescent version 16D and 17D from English into French (Canada), (2) to demonstrate their feasibility in pediatric conditions. Methods: The translation methodology combined forward and back translations, and cognitive debriefing with eight adolescents and eight children. Four bilingual translators were involved in the process. We administered the translated versions to two clinical samples, being treated for Primary immunodeficiency (PID, n = 48, aged 14.1 years, 20 girls), and having recovered from pediatric Acute Lymphoblastic Leukemia (ALL, n = 153, aged 14.7 years, 77 girls). Results: Cognitive debriefing indicated that that the instructions, items, and response options were clear, easy to understand, and easy to answer. Adjustments were made for clarity. Translated versions were highly usable (measurement completion >90%). HRQoL levels were high for both samples (range 0.85-0.96). Participants reported lower levels if they were adolescents, particularly if they were girls. Older boys with PID reported a lower HRQoL than their counterparts with a history of ALL. PID and ALL patients mainly reported issues with discomfort and pain, concentration/learning, physical appearance, and psychological distress and sleeping, although to a different degree. Conclusion:The French-language versions of the 16D and 17D are easy to administer and may be used to identify problematic domains. Greater availability of translated versions of short evaluation tools may facilitate broader uptake of screening practices in pediatric care.

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Section: Discussionsupporting

confidence: 87%