‘Listen, empower us and take action now!’: reflexive-collaborative exploration of support needs in bipolar disorder when ‘going up’ and ‘going down’

Billsborough, Julie; Mailey, Peter; Hicks, Alice; Sayers, Ruth; Smith, Roger W.; Clewett, Naomi; Griffiths, Christopher; Larsen, John

doi:10.3109/09638237.2013.815331

Cited by 16 publications

(25 citation statements)

References 16 publications

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“…The wishes of patients ''to be listened to non-judgmentally'' and ''to pay attention to the possible change in needs'' are also described in a study of Billsborough et al (2014) on support needs during periods of mania and depression for people with bipolar disorder. The desire of adults with ADHD for more accessible and continuous care, which includes treatments not typically offered for ADHD, have also been described in the UK in a study on patients' experiences of impairment, service provision and clinical management (Matheson et al, 2013).…”

Section: Discussionmentioning

confidence: 99%

Comparing patients’ perspectives of “good care” in Dutch outpatient psychiatric services with academic perspectives of patient-centred care

Maassen

Schrevel

Dedding

et al. 2016

Journal of Mental Health

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Background: Over the past six decades, the concept of patient-centred care (PCC) has been discussed in health research, policy and practice. However, research on PCC from a patients' perspective is sparse and particularly absent in outpatient psychiatric services. Aim: to gain insight into what patients with bipolar disorder and ADHD consider ''good care'' and what this implies for the conceptualisation of PCC. Method: A literature review on the different conceptualisations of PCC was complemented with qualitative explorative research on the experiences and needs of adults with ADHD and with bipolar disorder with mental healthcare in the Netherlands using focus group discussions and interviews.

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Section: Discussionmentioning

confidence: 99%

Comparing patients’ perspectives of “good care” in Dutch outpatient psychiatric services with academic perspectives of patient-centred care

Maassen

Schrevel

Dedding

et al. 2016

Journal of Mental Health

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“…These approaches are central components of clinical approaches frequently used by health professionals in the type of CMHC where this study was set. Service users shared similar experiences in earlier studies showing that explanations for and insight into mental health problems [32–34], learning coping mechanisms, changing thinking patterns, and dealing with stress and early signals of worsening are helpful [34–38]. Most of these comparable studies explored service users’ experiences between or after acute phases of illness, and the ways participants were recruited and the types of services used varied.…”

Section: Discussionmentioning

confidence: 78%

Experiences of support in working toward personal recovery goals: a collaborative, qualitative study

Biringer

Davidson

Sundfør³

et al. 2016

BMC Psychiatry

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BackgroundRecovery can be understood as a subjective process guided by personal expectations, goals and hopes. The aim of the study was to explore how persons using a Community Mental Health Centre (CMHC) experienced that their expectations for treatment, and goals and hopes for recovery were supported by the health professionals during treatment.MethodsEmploying a hermeneutic–phenomenological approach, eight service users were interviewed about their expectations for treatment and their goals and hopes for recovery at the start of their contact with health professionals at a CMHC. Two years later, they were re-interviewed about their experiences of treatment and support from the health professionals in their work towards these goals and hopes. A collaborative approach was adopted. A co-researcher with lived experience took part in all stages of the study. Data were analysed by means of a data-driven stepwise approach in line with thematic analysis.ResultsFive themes reflecting how participants experienced support from health professionals at the CMHC in their work towards their recovery goals were elicited, as follows: developing an understanding of oneself and one’s mental health problems; learning how to change feelings and behaviours; being ‘pushed’ into social arenas; finding helpful medication; and counselling in family, practical and financial issues. The participants’ expectations about counselling with regard to longer-term family, practical, and financial challenges were insufficiently met by the CMHC. In the experience of the service users, recovery occurred within the context of their everyday life with or without the support of their professional helpers.ConclusionsTo facilitate recovery, health professionals should acknowledge the service user’s personal goals and hopes and take a more comprehensive and longer-term approach to his or her needs and desires. Acknowledging and facilitating recovery goals by offering counselling with regard to family, practical and financial issues seems particularly important.Electronic supplementary materialThe online version of this article (doi:10.1186/s12888-016-1133-x) contains supplementary material, which is available to authorized users.

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“…This component also supports the person to establish a positive self‐identity and to begin to prepare for discharge (Billsborough et al . ; Mancini ; Rydon ; Walsh & Boyle ).…”

Section: Resultsmentioning

confidence: 99%

“…The literature highlights that recovery trajectories are consumer determined as their health improves and they begin their personal recovery journey (Alexander et al 2016;Bryant et al 2008;Green et al 2008;Rydon 2005). This component also supports the person to establish a positive self-identity and to begin to prepare for discharge (Billsborough et al 2014;Mancini 2007;Rydon 2005;Walsh & Boyle 2009).…”

Section: Eligibilitymentioning

confidence: 92%

“…It also enables the nurse to plan strategies with the consumer to Williams & Tufford 2012). 'Interact, don't react' creates an environment that allows the consumer a voice in their recovery journey and to be able to talk openly about their concerns, feelings, and needs (Aston & Coffey 2012;Billsborough et al 2014;Boardman & Roberts 2014;Hamann et al 2009;Happell 2008;McCloughen et al 2011;Young et al 2008). It establishes a healthy platform for the nurse to listen and to obtain a greater knowledge and understanding of the person's capabilities and strengths (Mancini 2007;Young et al 2008).…”

Section: Eligibilitymentioning

confidence: 99%

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Recovery‐focussed care: How it can be utilized to reduce aggression in the acute mental health setting

Lim

Wynaden

Heslop

2017

Int J Mental Health Nurs

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Consumer aggression is common in the acute mental health inpatient setting. Mental health nurses can utilize a range of interventions to prevent aggression or reduce its impact on the person and others who have witnessed the event. Incorporating recovery-focussed care into clinical practice is one intervention, as it fosters collaborative partnerships with consumers. It promotes their engagement in decisions about their care and encourages self-management of their presenting behaviours. It also allows the consumer to engage in their personal recovery as their mental health improve. Yet there is a paucity of literature on how nurses can utilize recovery-focussed care with consumers who are hospitalized and in the acute phase of their illness. In the present study, we report the findings of a scoping review of the literature to identify how recovery-focussed care can be utilized by nurses to reduce the risk of consumer aggression. Thirty-five papers met the inclusion criteria for review. Four components were identified as central to the use of recovery-focussed care with consumers at risk of becoming aggressive: (i) seeing the person and not just their presenting behaviour; (ii) interact, don't react; (iii) coproduction to achieve identified goals; and (iv) equipping the consumer as an active manager of their recovery. The components equip nurses with strategies to decrease the risk of aggression, while encouraging consumers to self-manage their challenging behaviours and embark on their personal recovery journey. Further research is required to evaluate the translation of these components clinically in the acute care setting.

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‘Listen, empower us and take action now!’: reflexive-collaborative exploration of support needs in bipolar disorder when ‘going up’ and ‘going down’

Abstract: Periods of depression or mania, and lesser 'ups' and 'downs', all require different support needs. Active listening and engagement, facilitating empowerment and appropriate early action are crucial elements of effective support.

Cited by 16 publications

References 16 publications

Comparing patients’ perspectives of “good care” in Dutch outpatient psychiatric services with academic perspectives of patient-centred care

Comparing patients’ perspectives of “good care” in Dutch outpatient psychiatric services with academic perspectives of patient-centred care

Experiences of support in working toward personal recovery goals: a collaborative, qualitative study

Recovery‐focussed care: How it can be utilized to reduce aggression in the acute mental health setting

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