Lived experience perspectives on reducing the duration of untreated psychosis: the impact of stigma on accessing treatment

Hardy, Kate; Dickens, Caroline; Roach, Erika L.; Harrison, Vicki; Desai, Aakash; Flynn, Laurie M.; Noordsy, Douglas L.; Dauberman, Judith; Adelsheim, Steven

doi:10.1080/17522439.2020.1754890

Cited by 3 publications

(6 citation statements)

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“…Third, it is possible that living alone may be synonymous with social isolation and stigma; therefore help-seeking may be delayed by people in such situation. The impact of stigma as a barrier to help-seeking has been established at individual level [47,48].This extends to stigma experienced at service level by people presenting acute general hospitals with mental health complaint [49]. The link between stigma, social isolation and psychosis is well established [50,51].…”

Section: Dup Pathways To Care and Indicators Of Social Isolationmentioning

confidence: 99%

Ethnic variations in duration of untreated psychosis: report from the CRIS-FEP study

Oduola

Craig

Morgan

2020

Soc Psychiatry Psychiatr Epidemiol

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Objectives There is inconsistent evidence on the influence of ethnicity on duration of untreated psychosis (DUP). We investigated ethnic differences in DUP in a large epidemiological dataset of first episode psychosis patients in an inner city area of south London, UK. Methods We analysed data on 558 first episode psychosis patients at the South London and Maudsley NHS Trust, between 2010 and 2012. We performed multivariable logistic regression to estimate the odds of a short DUP (≤ 6 months) by ethnic group, controlling for confounders. Results There was no evidence that ethnicity is associated with duration of untreated psychosis. However, we found evidence that a short DUP was strongly associated with age, living circumstances, and pathways to care variables (involuntary admission, out of office hour contact, accident and emergency referral, criminal justice agency referral and family involvement in help-seeking). Conversely, a long DUP was associated with report of social isolation, living alone, being single and General Practitioner referral. Conclusion Our findings suggest that indicators of social isolation were associated with long DUP. Our data also show that pathways into care characteristics play significant role in DUP. Thus, the challenge of tackling the issue of timely access to EI under the new Access and Waiting Time standard for psychosis requires a multilevel approach, including joint working with communities, public awareness of psychosis, less restrictive referral pathways and adequate resourcing of early intervention for psychosis services. These will go a long way in addressing patients' needs rather than be determined by service structures.

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Section: Dup Pathways To Care and Indicators Of Social Isolationmentioning

confidence: 99%

Ethnic variations in duration of untreated psychosis: report from the CRIS-FEP study

Oduola

Craig

Morgan

2020

Soc Psychiatry Psychiatr Epidemiol

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“…Author All 15 studies were conducted in the West (Table three): five in the United States (US) (Cabassa et al, 2018;Hardy et al, 2020;Judge et al, 2008;Kamens et al, 2018;Melton et al, 2020) three in the United Kingdom (UK) (Bogen-Johnston, 2019;Singh et al, 2013;Tanskanen et al, 2011), three in Denmark (Jansen et al, 2014;Jansen et al, 2015;Nordgaard et al, 2020), two in Canada (Ferrari et al, 2018;Macnaughton et al, 2015), one in Norway (Bay et al, 2016), and one in Northern Ireland (Spikol & Murphy, 2019). Most studies did not state an epistemological position; two studies claimed a social constructivist (Jansen et al, 2018;Melton et al, 2020) position and one a constructivist (Macnaughton et al, 2015) position.…”

Section: A Portion Of the Study Characteristics (See Appendix A For T...mentioning

confidence: 99%

“…Every study included was qualitative-only except for two mixed-method studies (Kamens et al, 2018;Singh et al, 2013). 10 studies included only first-person accounts of FEP and the remaining used both first-person FEP accounts and caregivers (Cabassa et al, 2018;Hardy et al, 2020;Melton et al, 2020;Singh et al, 2013;Tanskanen et al, 2011). Sample sizes varied, with the largest study including 193 participants (Hardy et al, 2020), and the smallest 8 (Bay et al, 2016).…”

Section: A Portion Of the Study Characteristics (See Appendix A For T...mentioning

confidence: 99%

“…An interpretive qualitative analysis was used for each study; Braun and Clarke's (2006) Thematic Analysis was used most (Bogen-Johnston et al, 2019;Ferrari et al, 2018;Hardy et al, 2020;Jansen et al, 2014;Jansen et al, 2015;Nordgaard et al, 2020;Singh et al, 2013;Tanskanen et al, 2011), followed by Grounded Theory for one study (Melton et al, 2020) and three studies combining grounded theory with case study methodology (Cabassa et al, 2018), content analysis (Judge et al, 2008), or narrative analysis (Kamens et al, 2018). Two studies used phenomenological analysis; one used Interpretive Phenomenological Analysis (IPA) (Spikol & Murphy, 2009) and the other Wertz's (2019) systematic phenomenological procedures (Kamens et al, 2018).…”

Section: A Portion Of the Study Characteristics (See Appendix A For T...mentioning

confidence: 99%

“…In total, 552 participants were included for review. It was not possible to summarize mean ages across all studies; 5 studies used median age intervals (Bay et al, 2016;Jansen et al, 2015;Jansen et al, 2014;Macnaughton et al, 2015;Spikol & Murphy, 2019), one study did not list age ranges (Hardy et al, 2020), and one study only listed age ranges and other demographic information (e.g. gender) for its quantitative sample, but not its qualitative (Singh et al, 2013).…”

Section: A Portion Of the Study Characteristics (See Appendix A For T...mentioning

confidence: 99%

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Spiritual understandings of psychosis: the perspectives of spiritual care staff

Taher

Fox

Wilson

2023

Journal of Spirituality in Mental Health

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This thesis is submitted by Reham Al Taher in partial fulfilment for the degree of Doctor in Clinical Psychology (DClinPsy) at the University of Birmingham. It contains three chapters.Chapter one of the thesis comprises a literature review: a meta-ethnography exploring personal accounts of the facilitators and barriers to seeking help for First-Episode Psychosis (FEP). The process of the meta-ethnography consisted of extracting, appraising, and synthesizing a total of 15 qualitative and mixed-method empirical studies. The second chapter is a qualitative study using Interpretive Phenomenological Analysis (IPA) to explore how spiritual care staff make sense of experiences otherwise termed as "psychosis". The third and final chapter presents a "press release" of both chapter one and two, outlining its main findings in a manner that is suitable and appropriate for public dissemination.No man is an island and this wouldn't have been possible without so many people's support, encouragement, and guidance. I would like to first thank Dr. Andy Fox -I cannot thank you enough for choosing to be my research supervisor and for taking an interest in this topic.You have been nothing but exceptional. To Carol Wilson, this project would not have gotten off the ground if it wasn't for all of your help, and I always enjoyed our conversations together about spiritual metaphysics. I would like to also express my gratitude to the participants who volunteered to take part in this research project -each and every one of you had so much passion and interest and it gave me the fuel I needed from the beginning to the end. I would like to thank Dr. Shazma Thabusom and Dr. Nick Zygouris for allowing me to pick your brain at the beginning when I was thinking about exploring spirituality and psychosis.You both not only encouraged me to speak to the University about turning this topic into a research project, but also let me know you believed this is worth exploring and that I was capable of doing it.To Dr. Michelle Fisher -you were a constant figure of strength over the past three years.From the day of the doctoral interview to now you have always made me feel emotionally safe and I'm forever grateful for that. To the University of Birmingham, thank you for accepting me onto your doctoral programme -it has been metamorphosizing (and that's putting it lightly!)To my trainee family -being around you felt like having a home away from home. In particular I want to thank Simone, Emily, and Nikita -I've lost track of the amount of times we went through similar experiences, experiences so difficult to articulate that can only be understood if you went through it. Not only did we have shared experiences, but our bond was also filled with support, warmth, and cheerleading each other the past 3 years.To Mama, Baba, Khaled, Ola, Hania, Saif, and Lara -I wouldn't be me without you. I love you and need you forever and I look forward to the day we're all together again. To Omar, Amanda, Barbara, and Sheila -you have always believed that I could do this and ...

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Exploring personal accounts of the facilitators and barriers to seeking help for first-episode psychosis (FEP): a meta-ethnography

Al Taher,

Fox

2023

Psychosis

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Lived experience perspectives on reducing the duration of untreated psychosis: the impact of stigma on accessing treatment

Cited by 3 publications

References 41 publications

Ethnic variations in duration of untreated psychosis: report from the CRIS-FEP study

Ethnic variations in duration of untreated psychosis: report from the CRIS-FEP study

Spiritual understandings of psychosis: the perspectives of spiritual care staff

Exploring personal accounts of the facilitators and barriers to seeking help for first-episode psychosis (FEP): a meta-ethnography

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