Living Well With Kidney Disease and Effective Symptom Management: Consensus Conference Proceedings

Rhee, Connie M.; Edwards, Dawn; Ahdoot, Rebecca S.; Burton, James O.; Conway, Paul T.; Fishbane, Steven; Gallego, Daniel; Gallieni, Maurizio; Gedney, Nieltje; Hayashida, Glen; Ingelfinger, Julie R.; Kataoka‐Yahiro, Merle; Knight, Richard; Kopple, Joel D.; Kumarsawami, Latha; Lockwood, Mark B.; Murea, Mariana; Page, Victoria; Sánchez, JA; Szepietowski, Jacek; Lui, Siu‐Fai; Kalantar‐Zadeh, Kamyar

doi:10.1016/j.ekir.2022.06.015

Cited by 25 publications

(17 citation statements)

References 58 publications

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“…Spearman correlations were conducted to determine associations between diet quality and its food components, demographics, and health conditions with spice and herb frequency and variety consumption. Based on the number of participants identifying the various stages of CKD, sub-group analyses were conducted by stratifying to two groups: early stages of CKD (1-2) or later stages (3)(4)(5).…”

Section: Discussionmentioning

confidence: 99%

“…CKD is often undiagnosed in the earlier stages due to lack of symptoms [2,3]. However, as the disease progresses, symptoms such as fatigue, pruritis, and depression occur, which can impact an individual's quality of life by interfering with relationships, financial status, and mental health [4]. CKD affects about 9.1% of the worldwide population [5]and within the United States, 37 million individuals are diagnosed with this disease with one in three Americans being at risk for CKD [3].…”

Section: Introductionmentioning

confidence: 99%

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Associations between diet quality, demographics, health conditions and spice and herb intake of adults with chronic kidney disease

Hammer,

Acevedo,

Andrade

2024

PLoS ONE

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Scant literature has been able to demonstrate an association between dietary habits and spice and herb consumption, especially for those who have chronic kidney disease. The objectives of this study were to 1) determine the frequency and quantity of spices and herbs consumed and 2) determine the associations between diet quality and its food components, demographics, and health conditions with spice and herb frequency and variety consumption of adults with chronic kidney disease. A cross-sectional online study was conducted with adults with various stages of chronic kidney disease (n = 71). Participants responded to an online demographic, diet and spice and herb questionnaire on RedCap. Diet quality was determined through the diet questionnaire. Descriptives, frequencies and Spearman correlations were conducted using SPSS v28 with a significance of p<0.05. Most participants were in chronic kidney disease stage 3 (42.3%) with a majority (98.6%) self-identifying as non-Hispanic white. On average, participants consumed black pepper more than once daily (47.9%) with the spice quantity at 5 g. The median diet quality score was 38.5 (range 31.5–48.5). Positive associations were identified with overall diet quality scores and certain spices such as basil (r = 0.33; p<0.01) and cinnamon (r = 0.37; p<0.002). Further associations were seen with food groups, self-identifying as white and health conditions with spice frequency and variety of spices and herbs consumed. Overall, positive associations were observed with diet quality and spice and herb intake, in which higher diet quality scores would indicate higher consumption of spices and herbs. Further research should focus on diet quality and spice and herb consumption in reducing progression of this disease.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Associations between diet quality, demographics, health conditions and spice and herb intake of adults with chronic kidney disease

Hammer,

Acevedo,

Andrade

2024

PLoS ONE

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“…According to WHO, ‘Health Equity’ is defined as ‘absence of avoidable, unfair or remediable differences among groups of people due to their social, economic, demographic or geographic circumstances’ [28]. The concept of health equity advances the notion that most differences in health status and outcomes between groups are not the result of biological differences, rather they result from structural processes that create differences in access to health, including the entire spectrum of structural racism to overt racial and ethnic discriminations [29]. Whereas there is no ‘official’ definition of structural racism in medicine and public health, recently heightened discussions suggest that racism is not simply the result of private prejudices held by individuals, but is also created and reinforced by laws, rules, and practices, sanctioned and even implemented by various levels of government, and embedded in the economic system and in cultural and societal norms [30 ▪▪ ].…”

Section: Racial Disparities In Involuntary Dischargesmentioning

confidence: 99%

Practicing health equity in involuntary discharges to overcome disparities in dialysis and kidney patient care

Edwards¹,

Kalantar‐Zadeh

Streja

et al. 2022

Current Opinion in Nephrology &Amp; Hypertension

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Purpose of review Potential causes and consequences of involuntary discharge (IVD) of patients from dialysis facilities are widely unknown. So, also are the extent of racial disparities in IVDs and their impact on health equity. Recent findings Under the current End-Stage Renal Disease (ESRD) program Conditions for Coverage (CFC), there are limited justifications for IVDs. The ESRD Networks oversee dialysis quality and safety including IVDs in US dialysis facilities, with support from the Agency for Healthcare Quality and Research (AHRQ) and other stakeholders. Whereas black Americans constitute a third of US dialysis patients, they are even more overrepresented in the planned and executed IVDs. Cultural gaps between patients and dialysis staff, psychosocial and regional factors, structural racism in kidney care, antiquated ESRD policies, unintended consequences of quality incentive programs, other perverse incentives, and failed patient–provider communications are among potential contributors to IVDs. Summary Practicing health equity in kidney care may be negatively impacted by IVDs. Accurate analyses of patterns and trends of involuntary discharges, along with insights from well designed AHRQ surveys and qualitative research with mixed method approaches are urgently needed. Pilot and feasibility programs should be designed and tested, to address the root causes of IVDs and related racial disparities.

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“…Moreover, the belief among patients that reporting their symptoms to healthcare professionals wastes their time exacerbates the challenge of assessing these symptoms (Schick-Makaroff et al, 2019). These complex symptoms’ burden remains underestimated and underrecognised (Rhee et al, 2022). Regular symptom screening is crucial for symptom identification and management in renal failure care and ensuring patients feel understood, especially given their life-limiting illness (Mehrotra et al, 2023).…”

Section: Introductionmentioning

confidence: 99%

Cross-cultural validation of the Portuguese version of the Dialysis Symptom Index for haemodialysis patients

Barros,

Fonseca,

Pinto

et al. 2024

Journal of Research in Nursing

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Background: Patients with end-stage renal disease (ESRD) undergoing haemodialysis (HD) are associated with low quality of life (QoL) and high disease-related symptoms. The patient self-report instruments can assess the burden of physical and psychological symptoms. The Dialysis Symptom Index (DSI) is a specific instrument to evaluate the multidimensional reported symptoms by patients undergoing HD. Aims: To translate, validate and assess the psychometric properties of the Portuguese version of the DSI. Methods: A cross-cultural adaptation process from English to Portuguese and a validation study ( n = 156) were conducted. Reliability, validity and responsiveness were assessed. Results: The patients’ most reported symptoms were, nausea ( n = 86, 55%), muscle cramps ( n = 92, 59%), feeling tired or lack of energy ( n = 92, 59%), bone or joint pain ( n = 88, 56%) and trouble staying asleep ( n = 95, 60%). Cronbach’s alpha of the DSI was 0.87, and intraclass correlation coefficient was 0.868 (95%CI 0.836–0.896). The smallest detectable change was 28.32. Conclusion: The Portuguese DSI demonstrates excellent psychometric properties for assessing HD patients’ reported symptoms. It highlights symptom severity and impact, providing valuable insights for healthcare practitioners. Nurses can use the DSI to tailor interventions and enhance patient-centred care.

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Living Well With Kidney Disease and Effective Symptom Management: Consensus Conference Proceedings

Cited by 25 publications

References 58 publications

Associations between diet quality, demographics, health conditions and spice and herb intake of adults with chronic kidney disease

Associations between diet quality, demographics, health conditions and spice and herb intake of adults with chronic kidney disease

Practicing health equity in involuntary discharges to overcome disparities in dialysis and kidney patient care

Cross-cultural validation of the Portuguese version of the Dialysis Symptom Index for haemodialysis patients

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