Living With a Chronic Illness: A Measure of Social Functioning for Children and Adolescents

Adams, Christina D.; Streisand, Randi; Zawacki, Tricia; Joseph, Karen

doi:10.1093/jpepsy/27.7.593

Cited by 45 publications

(43 citation statements)

References 17 publications

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“…Researchers have found higher rates of social problems in children with epilepsy (Hoare 1993, Mitchell et al 1994, Wilde and Haslam 1996, Brantley et al 2002 and in children with mental retardation (Guralnick 1997). Our findings are consistent with previous studies suggesting that low IQ is associated with more social problems (Espie et al 1989, Sabaz et al 2001, Adams et al 2002. Sabaz et al (2001) reported that children with epilepsy and an IQ score below 70 experience problems in the areas of social interactions and social activities.…”

Section: Cbclsupporting

confidence: 93%

Behavior and mental health problems in children with epilepsy and low IQ

Buelow

Austin

Perkins

et al. 2003

Dev Med Child Neurol

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The purpose of this cross-sectional descriptive study was to describe the particular types of behavioral problems, self-concept, and symptoms of depression experienced by children with both low IQ and epilepsy. Three groups of children (83 males, 81 females; mean age 11 years 10 months, SD 1 year 10 months; age range 9 to 14 years) with epilepsy were compared: (Group 1) Low IQ (<85), n=48, 25 males, 23 females; (Group 2) Middle IQ (85 to 100), n=58, 24 males, 34 females; and (Group 3) High IQ (>100), n=58, 34 males, 24 females. The Child Behavior Checklist, Piers-Harris SelfConcept Scale, and Children's Depression Inventory were used to measure behavior, self-concept, and depression respectively. Results indicated that children in the Low IQ group had the most behavioral and mental health problems. Additionally, there were IQ group-by-sex interactions, with females in the Low IQ group being at the highest risk for poor self-concept. Findings suggest that children with both epilepsy and low IQ should be carefully assessed for mental health problems in the clinical setting.Children with chronic epilepsy and children with a low IQ have each been shown to be at increased risk for quality of life problems. Research studies focusing on children with epilepsy and normal IQ, or on children with mental retardation * who do not have epilepsy, show that mental retardation and epilepsy are each independently related to poor quality of life and psychosocial problems (Austin et al. 1994(Austin et al. ,1996Lewis et al. 2000;Sabaz et al. 2001). Because each disorder is associated with such problems it is probable that children with both disorders will experience even greater problems than those with just one of the disorders. Among children with epilepsy, 28 to 38% have some degree of mental retardation (Steffenburg et al. 1996). In addition, there is an unexpectedly high number of children with both epilepsy and low IQ (70 *Correspondence to second author at 1111 Middle Drive, NU 492, Indiana University School of Nursing, Indianapolis, Indiana 46202-5107, USA., joausti@iupui.edu. * UK usage: learning disability. NIH Public Access NIH-PA Author ManuscriptNIH-PA Author Manuscript NIH-PA Author Manuscript to 80) who do not fit the DSM-IV (American Psychiatric Association 1994) criteria for mental retardation (Dodson 2001). On average, the IQ in children with epilepsy is 10 points lower than that of their healthy, age-matched peers (Dodson 2001). Despite the strong relationship between epilepsy and low IQ, only a few studies have addressed the psychosocial and mental health problems of this population.Epidemiological studies of children with mental retardation and epilepsy have established that there are high rates of psychopathology. Rates of psychiatric disorders range from 50 to 59% in children with both epilepsy and mental retardation (Rutter 1989, Steffenburg et al. 1996. The most common psychiatric issues include psychoses, depression attention-deficithyperactivity disorder, socialization problems, aberrant behavior...

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Section: Cbclsupporting

confidence: 93%

Behavior and mental health problems in children with epilepsy and low IQ

Buelow

Austin

Perkins

et al. 2003

Dev Med Child Neurol

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“…Inclusion criteria for participation in the present study were as follows: the child (1) had a diagnosis of a JRD, (2) was between the ages of 9 and 17 years, and (3) the duration of the child's disease symptoms had been at least 6 months. Exclusion criteria for participants were as follows: the child had (1) comorbid cognitive deficits (e.g., mental retardation) that precluded him/her from understanding the protocol tasks and (2) a comorbid chronic illness.…”

Section: Participantsmentioning

confidence: 99%

“…The chronic episodic nature of these illnesses creates particular challenges for children to engage in pleasurable and valued activities as well as ordinary daily self-care and presents potential social challenges similar to those experienced by children with other chronic illnesses (e.g., Ref. [2]). Efforts to carry out normal and desired activities are also impacted by the high degree of functional disability often experienced throughout the disease course.…”

Section: Introductionmentioning

confidence: 99%

Learned helplessness in children and adolescents with juvenile rheumatic disease

Hommel

Chaney

Wagner

et al. 2006

Journal of Psychosomatic Research

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“…There are many different and complex psychosocial factors affecting all individuals with HIV infection [26]. Selected key points are highlighted, namelya) Paediatric patients experience stages and stresses similar to other paediatric chronic conditions b) Stigma affects all aspects of caring for these children and adolescents and especially during the disclosure and acceptance period c) Death and bereavement must be openly discussed for the children and the families d) Orphans, vulnerable groups and young girls are at an increased risk of contracting sexually transmitted infections and may receive less support and education than their peers e) And adolescents remain a unique population who can be described as having a pivotal role in the future of the HIV pandemic in developed and developing countries.…”

Section: Psychosocial Issues and Practical Points Of Carementioning

confidence: 99%

Growing Up With HIV in Southern Africa-HIV-Infected Children and Adolescents

Morobadi¹

2014

JHVRV

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In South Africa according to the 2013 mid-year population estimates the overall HIV prevalence is 10% with the total number of people living with HIV-infection estimated at approximately 5.26 million. Thus Southern Africa has been declaring a long war against the HIV epidemic and South Africa is still bearing the brunt of this epidemic. In sub-Sharan Africa, where there is ongoing prevention-of-mother-tochild transmission (PMTCT) of HIV infection and disease, there remains an expanding number of young individuals who will spend the rest of their lifetime coping with the reality of HIV infection, being managed with a chronic disease and expected to remain on lifetime chronic antiretroviral medication. The effects on HIV infected children and adolescents are multi-faceted and complex, but emerging problems such as HIV drug resistance and transition programme difficulties with distant and perhaps unknown goals need to be tackled. In addition, as children are growing and maturing with HIVinfection and being treated with long-term antiretroviral medication and regimens, more clinical complications, other than death, and complications of their medications are observed, including cardiac diseases, malignancies, growth failure, a wide range of skin diseases, renal and bone complications, neurocognitive problems, co-infections, neuropsychiatric co-morbidities, dyslipidaemias and earlier lung conditions. Practical issues regarding disclosure to young HIV-infected individuals, transitioning care and HIV-infection in the adolescent years will be addressed and this article will highlight certain considerations, including caring and monitoring of children and adolescents living with HIV, exposing vulnerable populations, establishing research interests and identifying some challenges between resource-rich and resource-poor settings.

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Living With a Chronic Illness: A Measure of Social Functioning for Children and Adolescents

Abstract: These findings support the initial psychometric properties and clinical utility of the LCI scores. We discuss strengths and limitations of this study, as well as potential clinical applications for the LCI questionnaire.

Cited by 45 publications

References 17 publications

Behavior and mental health problems in children with epilepsy and low IQ

Behavior and mental health problems in children with epilepsy and low IQ

Learned helplessness in children and adolescents with juvenile rheumatic disease

Growing Up With HIV in Southern Africa-HIV-Infected Children and Adolescents

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