Living With a Long-term, Indwelling Urinary Catheter

Fowler, Sarah E.; Godfrey, Helen; Fader, Mandy; Timoney, Anthony G.; Long, Adele

doi:10.1097/won.0000000000000069

Cited by 33 publications

(52 citation statements)

References 14 publications

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“…Specific adjustments were identified during this period, including allowing extra time in the day for bladder management, changing the types of clothing to help hide the bag, modifying sleep habits (eg, protecting the mattress from unexpected indwelling catheter‐drainage bag disconnections, having an emergency trouble‐shooting kit for night‐time problems, and keeping the bag from pulling when they roll over) and discovering the challenges associated with travel and social activities. A problem‐solving mentality made this adjustment process easier . As part of the normalization process, participants described how an indwelling catheter became a part of them, and faded into the background to be ignored; the person became aware of it as an object when it did not work properly, or if it led to embarrassment or shame .…”

Section: Resultsmentioning

confidence: 99%

“…Problems include medical complications, problems arising from the catheter design, or an increase in the frequency of urinary infections; they are generally considered either an intermittent nuisance, or a defining aspect of bladder function. The importance of these complications may not be evident to healthcare workers; for example, one participant stated that “I wouldn't care if the house burnt down, but if that bloody [indwelling] catheter blocks up I am in real trouble.” The unpredictability of catheters was a frequent concern, and contributes to anxiety and rituals (such as frequently patting the leg bag of an indwelling catheter through clothing) . Not surprisingly, travel and social activities are redefined within the context of catheter management.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Bladder management experiences among people living with neurologic disease: A systematic review and meta‐synthesis of qualitative research

Welk

McGarry

Kennelly

et al. 2018

Neurourology and Urodynamics

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Aim To systematically review the qualitative literature on neurogenic bladder management to better understand the relevant psychosocial issues. Methods We used two reviewers to systematically review EMBASE, CINAHL, and PsycINFO for qualitative studies that included a neurogenic bladder patient population and were relevant to bladder management. We used a meta‐ethnography technique to summarize and synthesize the data. Results We found 13 studies that were relevant. When choosing a bladder management technique (three studies), there were two major themes (bladder management decision makers, and characteristics and risks) that impacted the process. For studies evaluating life with a urinary catheter (five about intermittent catheters, and five about indwelling catheters), relevant themes could be arranged into three consecutive periods: First, a changed life (the initial stage of selecting and using a catheter: coping, teaching and technical challenges, and control and independence). Second, learning to live with a catheter (the practical skill and knowledge that goes into using a catheter: knowledge, adjustments, and normalization). Third, a new life (the acceptance and integration of a catheter into a person's life: problems and benefits, unpredictability, travel and social activities, intimacy and relationships, and dealing with negative emotions). Themes were generally consistent across studies. Conclusions Several important themes were identified from the existing qualitative literature; these can provide insight into how neurogenic bladder patients select a bladder management method, and how physicians can optimize their counseling and the long‐term management of these patients.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Bladder management experiences among people living with neurologic disease: A systematic review and meta‐synthesis of qualitative research

Welk

McGarry

Kennelly

et al. 2018

Neurourology and Urodynamics

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“…While some persons might have received instruction about drinking a lot of fluids, such as those with spinal cord injuries who often learn this in rehabilitation (Fowler, Godfrey, Fader, Timoney, & Long, 2014), others may not have had much instruction. In one of our previous studies, catheter users said they knew they were to drink extra fluids, but they did not know how much to drink, nor were they given guidance on making behavior changes (Wilde & Dougherty, 2006).…”

Section: Discussionmentioning

confidence: 99%

Testing a Model of Self-Management of Fluid Intake in Community-Residing Long-term Indwelling Urinary Catheter Users

Wilde¹,

Crean²,

McMahon

et al. 2016

Nursing Research

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Background Urinary tract infection and blockage are serious and recurrent challenges for people with long-term indwelling catheters, and these catheter problems cause worry and anxiety when they disrupt normal daily activities. Objectives The goal was to determine whether urinary catheter-related self-management behaviors focusing on fluid intake would mediate fluid intake related self-efficacy toward decreasing catheter-associated urinary tract infection (CAUTI) and/or catheter blockage. Method The sample involved data collected from 180 adult community-living, long-term indwelling urinary catheter users. The authors tested a model of fluid intake self-management (F-SMG) related to fluid intake self-efficacy (F-SE) for key outcomes of CAUTI and blockage. To account for the large number of zeros in both outcomes, a zero inflated negative binomial (ZINB) structural equation model was tested. Results Structurally, F-SE was positively associated with F-SMG, suggesting that higher F-SE predicts more (higher) F-SMG; however, F-SMG was not associated with either the frequency of CAUTI’s or the presence or absence of CAUTI. F-SE was positively related to F-SMG and F-SMG predicted less frequency of catheter blockage, but neither F-SE nor F-SMG predicted the presence or absence of blockage. Discussion Further research is needed to better understand determinants of CAUTI in long-term catheter users and factors which might influence or prevent its occurrence. Increased confidence (self-efficacy) and self-management behaviors to promote fluid intake could be of value in long-term urinary catheter users to decrease catheter blockage.

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“…A catheter valve gives the patient the option of having no collection bag; which avoids the bulkiness and visibility of tubing and bags 18. Laboratory studies have additionally shown that valve use can increase time to catheter blockage,38 but clinical evidence is lacking and the devices are not suitable for all patients (box 4).…”

Section: Which Catheter and Drainage Solution To Choosementioning

confidence: 99%