Living with a person with Alzheimer's disease: Experiences related to everyday occupations

Persson, Marit; Zingmark, Karin

doi:10.1080/11038120600691066

Cited by 27 publications

(74 citation statements)

References 31 publications

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“…De la Cuesta and Sandelowski (2005) Paun (2003), Persson and Zingmark (2006), Quinn et al (2008), Strang (2001), and Watts and Teitelman (2005) scored between 20 and 22 on CHOQAT.…”

Section: Resultsmentioning

confidence: 97%

The Human Occupational Impact of Partner and Close Family Caregiving in Dementia: A Meta-Synthesis of the Qualitative Research, Using a Bespoke Quality Appraisal Tool

Yong

Price

2014

British Journal of Occupational Therapy

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Family dementia caregiving, human occupation, qualitative meta-synthesis.Introduction: In 2009, the United Kingdom Department of Health identified the need to assist families so that people with dementia can remain living at home. Occupational therapists could support families and their loved ones at home by understanding the human occupational impact of caregiving. This impact includes how one is influenced by values and motivated to perform activities shaped by experiences and life roles. The purpose of this review was to synthesize qualitative research related to family dementia caregiving, extrapolating information about the human occupational impact on the caregiver. The aim was to inform occupational therapy practice.Method: A search was conducted across a range of electronic databases. A quality appraisal tool was specifically developed for the study appraisal and data extraction process. Data were extracted and analysed within the Model of Human Occupation framework.Findings: Twenty studies were included in this review. Five themes emerged: adapting to dementia; staying motivated and in control; preserving occupational balance and wellbeing; gaining meaning from the caregiver role; and losses and burden.Conclusion: The human occupational impact of caregiving affects the quality and decision-making of care for families. Occupational therapists are well placed to support families through the stages of dementia.Reference: Yong ASL, Price L (2014) The human occupational impact of partner and close family caregiving in dementia: a meta-synthesis of the qualitative research, using a bespoke quality appraisal tool.

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“…De la Cuesta and Sandelowski (2005) Paun (2003), Persson and Zingmark (2006), Quinn et al (2008), Strang (2001), and Watts and Teitelman (2005) scored between 20 and 22 on CHOQAT.…”

Section: Resultsmentioning

confidence: 97%

The Human Occupational Impact of Partner and Close Family Caregiving in Dementia: A Meta-Synthesis of the Qualitative Research, Using a Bespoke Quality Appraisal Tool

Yong

Price

2014

British Journal of Occupational Therapy

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“…The patient journey for many long-term neurological conditions can be difficult and has been well described [21,22]. People with HSP are no exception.…”

Section: Discussionmentioning

confidence: 98%

Service delivery for people with hereditary spastic paraparesis living in the South West of England

Grose

Freeman

Marsden

2013

Disability and Rehabilitation

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Rehabilitation and support for self-management is valued by those affected with HSP throughout the disease trajectory from diagnosis onwards. Key to this is the development of a partnership approach which includes carers. Single point, well-informed, gatekeepers may enhance the coordination and delivery of care in rural areas. These findings underline current guidance promoting a holistic approach for people with neurological conditions.

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“…Categorization also assists understanding the experience of balancing positive and negative aspects of doing and being. Experiential categorization highlights that the doing of spouses of people with Alzheimer's disease (Persson & Zingmark, 2006) is predominantly in relation to their carer role, which can negatively affect their individual sense of occupational wellbeing. However, traditional categorization might show good occupational balance as they engage in co-occupation with their spouses.…”

Section: Doing ↔ Beingmentioning

confidence: 99%

In the Footsteps of Wilcock, Part Two: The Interdependent Nature of Doing, Being, Becoming, and Belonging

Hitch

Pépin

Stagnitti

2014

Occupational Therapy In Health Care

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The four dimensions of occupation developed by Wilcock in the Occupational Perspective on Health-doing, being, becoming, and belonging-have evolved. Although the inter-relationships between the dimensions have been explored by clinicians and researchers to some degree, the reciprocal and multidimensional nature of these relationships are rarely explicitly addressed. This article will present a critical analysis of the relationships and interaction between doing, being, becoming, and belonging, initially in dyads and then in a multidimensional way. The article proposes provisional understandings of how they combine and influence each other in occupational engagement. Six observations are made on the dimensions of occupation, along with a discussion of the impact of their interrelationships on research and practice.

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Living with a person with Alzheimer's disease: Experiences related to everyday occupations

Cited by 27 publications

References 31 publications

The Human Occupational Impact of Partner and Close Family Caregiving in Dementia: A Meta-Synthesis of the Qualitative Research, Using a Bespoke Quality Appraisal Tool

The Human Occupational Impact of Partner and Close Family Caregiving in Dementia: A Meta-Synthesis of the Qualitative Research, Using a Bespoke Quality Appraisal Tool

Service delivery for people with hereditary spastic paraparesis living in the South West of England

In the Footsteps of Wilcock, Part Two: The Interdependent Nature of Doing, Being, Becoming, and Belonging

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