Living with a pituitary tumour: A narrative analysis

Simpson, Jane; Heath, James E.; Wall, Gemma

doi:10.1080/08870446.2013.840784

Cited by 13 publications

(20 citation statements)

References 31 publications

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“…The work of Frank (1995) has become ubiquitous in the study of chronic illness and has been used to interpret experiences of cancer (Simpson, Heath & Wall, 2014), stroke (France, Hunt, Dow, & Wyke, 2013), spinal cord injury (Smith & Sparkes, 2005) and HIV (Ezzy, 2000), amongst numerous other bodily conditions. This narrative approach has also been successfully applied to the study of mental illness (see Carless, 2008;Gold, 2007), although not the study of eating disorders.…”

Section: Narrative and Illnessmentioning

confidence: 99%

Family experiences of living with an eating disorder: A narrative analysis

2015

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Families are considered important in the management and treatment of eating disorders. Yet, rarely has research focused on family experiences of living with an eating disorder. Addressing this gap, this study explores the experiences of an elite 21-year-old triathlete with an eating disorder in conjunction with the experiences of her parents. Family members attended interviews individually on three separate occasions over the course of a year. In line with the narrative approach adopted, whereby stories are considered the primary means to construct experience, interviews encouraged storytelling through an open-ended, participant-led structure. Narrative analysis involved repeated readings of the transcripts, sensitising towards issues of narrative content (key themes) and structure (overarching plot). Family difficulties arose when personal experiences strayed from culturally dominant narrative forms and when family members held contrasting narrative preferences. Suggestions are forwarded as to how an appreciation of eating disorder illness narratives might inform treatment and support

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Section: Narrative and Illnessmentioning

confidence: 99%

Family experiences of living with an eating disorder: A narrative analysis

2015

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“…These culturally available types of narratives act as guidelines that people adapt or combine to tell their own story ( Frank, 1995 ; Nosek, Kennedy, & Gudmundsdottir, 2012 ). Narrative types also share common components: narrators, plots, scenes, settings, and characters ( Gubrium & Holstein, 2009 ; Simpson, Heath, & Wall, 2014 ).…”

Section: Illness Narrativesmentioning

confidence: 99%

The Narrated, Nonnarrated, and the Disnarrated

Vindrola‐Padros

Johnson

2014

Qual Health Res

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While analyzing the narratives of children receiving pediatric oncology treatment and their parents, we encountered three ways to look at their narratives: what was narrated, nonnarrated, and disnarrated. The narrated refers to the actors (characters) and events (scenes) individuals decided to include in the narration of their experiences, the nonnarrated are everything not included in narration, and the disnarrated are elements that are narrated in the story but did not actually take place. We use our reflection to illustrate how an integrative analysis of these different forms of narration can allow us to produce a holistic interpretation of people’s experiences of illness. This approach is still in the early stages of development, but we hope this article can promote a debate in the field and lead to the refinement of an important tool for narrative analysis.

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“…Research on patients with pituitary tumours has mainly focused on the consequences of hypopituitarism and cardiovascular health as well as the efficacy and safety of hormonal replacement. However, an important dimension in the overall care of patients with pituitary tumours is the patient’s situation in daily life, which consists of multiple symptoms, issues of fear and difficulties in receiving proper support (15, 16). Surgery can be perceived as a curative treatment without an awareness of the continued need for treatment and monitoring, and patients may struggle with how to understand the origin of their symptoms and signs post surgery (17).…”

Section: Introductionmentioning

confidence: 99%

The pre- and postoperative illness trajectory in patients with pituitary tumours

Ung

Olofsson

Björkman

et al. 2019

Endocrine Connections

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Objective Experiences and need of support during surgery and start of replacement therapy in patients with pituitary tumours are highly unknown. This study aimed at exploring patient experiences during pre- and postoperative care and recovery after pituitary surgery in patients with a pituitary tumour. Methods Within a qualitative study design, 16 consecutive patients who underwent surgery for pituitary tumours were repeatedly interviewed. In total, 42 interviews were performed before and after surgery. Analysis was performed using qualitative interpretation. Results Suffering a pituitary tumour was overwhelming for many patients and struggling with existential issues was common. Patients expressed loneliness and vulnerability before and after surgery. How professionals handled information in connection with diagnosis greatly affected the patients. Other patients with the same diagnosis were experienced as the greatest support. Normalisation of bodily symptoms and relationships with others were reported during postoperative recovery. However, a fear that the tumour would return was present. Conclusions Patients with pituitary tumours need structured support, including peer support, which acknowledges physical, cognitive as well as emotional and existential concerns. Information related to diagnosis and surgery should be adapted in relation to the loneliness and the existential seriousness of the situation. Care and support for patients with pituitary tumours should preferably be organised based on continuity and an unbroken care pathway from the first pre-operative evaluation through to postoperative care and the start of a life-long endocrine treatment and tumour surveillance.

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Living with a pituitary tumour: A narrative analysis

Cited by 13 publications

References 31 publications

Family experiences of living with an eating disorder: A narrative analysis

Family experiences of living with an eating disorder: A narrative analysis

The Narrated, Nonnarrated, and the Disnarrated

The pre- and postoperative illness trajectory in patients with pituitary tumours

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