2004
DOI: 10.1046/j.1365-2648.2003.02953.x
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Living with a terminal illness: patients’ priorities

Abstract: The findings suggest that the way in which health professionals manage patients' involvement in matters such as symptom relief can impact on existential areas of concern. Understanding patients' perspectives in relation to each theme may assist health professionals to develop management strategies appropriate to their needs. The findings challenge some aspects of traditional 'expert-defined' outcome measures. As this was an exploratory study, further work is needed to test and develop the model presented.

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Cited by 83 publications
(87 citation statements)
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References 45 publications
(58 reference statements)
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“…The projects (reading newspapers, moving to the balcony) could have prolonged his spatial frames and connectedness to some kind of commonplaceness. It can also be interpreted as an attempt to take control over the situation (Carter et al, 2004) or a will to participate in the care (Clover et al, 2004). McNamara (2004), p. 933) states that care in the imminence of death must be ''as close to the circumstances the person would have chosen''.…”
Section: Reflectionsmentioning
confidence: 99%
See 1 more Smart Citation
“…The projects (reading newspapers, moving to the balcony) could have prolonged his spatial frames and connectedness to some kind of commonplaceness. It can also be interpreted as an attempt to take control over the situation (Carter et al, 2004) or a will to participate in the care (Clover et al, 2004). McNamara (2004), p. 933) states that care in the imminence of death must be ''as close to the circumstances the person would have chosen''.…”
Section: Reflectionsmentioning
confidence: 99%
“…Thus, discrepancies in the communicative pattern occurred. Of significance is the involvement of the patient in the health process, such as in the vital role of taking charge and control over the situation (Carter, MacLeod, Brander & McPherson, 2004) and in decision-making related to different aspects of the disease (Clover, Browne, McErlain & Vandenberg, 2004;Jefford & Tattersall, 2002;Koedoot et al, 2003;Sanders & Skevington, 2004).…”
Section: Introductionmentioning
confidence: 99%
“…[8][9][10][11][12][13] The idea of control associated with autonomy influences a person's sense of dignity, represents a source of hope, and helps relieve suffering and improve quality of life. 10,[14][15][16] Expressing and respecting autonomy are undeniably important factors in promoting the well-being of people near the end of life.…”
Section: The Importance Of Autonomy In Palliative Carementioning
confidence: 99%
“…21 To compensate for these incapacities, sick people have to solicit and accept help from others (family, friends, and caregivers) to meet their ever-growing needs. 11,21 Roles and relationships with a spouse, family, and friends are often altered, and the person can feel they are becoming a ''burden'' for loved ones. 13,20,21 In addition, this dependency on others for daily activities and, for the most personal of tasks, can lead to a feeling of powerlessness and inability to control one's life, 21 along with a loss of pride and dignity.…”
Section: Consequences Related To Loss Of Autonomymentioning
confidence: 99%
“…Por terem introjetado o significado de morte para o câncer, estes profissionais contribuem para que o imaginário da coletividade a respeito da doença não seja modificado, mesmo perante os avanços científicos nas áreas de diagnóstico e tratamento em oncologia (91,121) . (122) , viver com uma doença terminal não leva necessariamente o indivíduo a querer pensar e discutir apenas a respeito da própria morte, mas sim a preocupar-se em continuar vivendo até que a mesma aconteça. As mesmas autoras (123) evidenciam que a literatura suporta a idéia de que a risada é capaz de produzir efeitos benéficos no organismo das pessoas, tanto fisiológicos quanto emocionais.…”
Section: C) Evitam Falar Sobre a Doença E A Morteunclassified