Living with Chronic Fatigue Syndrome during lockdown and a global pandemic

Brewer, Gayle; Stratton, Katie

doi:10.1080/21641846.2020.1827503

Cited by 19 publications

(18 citation statements)

References 49 publications

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“…During lockdown, the whole French population had to respect the rules of isolation: there were no more social differences, familial rhythms matched, and ultimately patients felt more integrated and supported by their loved ones. In a qualitative study on patients with chronic fatigue syndrome, similar results were reported, highlighting both the increase in social interactions thanks to social networks, a less demanding way of communicating with loved ones, and a lessened feeling of guilt for refusing or canceling invitations (Brewer and Stratton, 2020). The positive social experience of our patients allowed them to feel more connected with society and to finally feel "like everyone else."…”

Section: Discussionsupporting

confidence: 81%

Understanding Experiences of Fibromyalgia Patients Involved in the Fimouv Study During COVID-19 Lockdown

et al. 2021

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Introduction: The COVID-19 pandemic implied a period of lockdown for the general population, increasing the risk to develop some physical or mental disorders. In fibromyalgia patients, these disorders are part of the large clinical picture of the syndrome. Fibromyalgia management is especially based on a regular practice of physical activity. Lockdown imposed a break in rhythms, requiring a restructuring of scheduling. Thus, the present study aimed to investigate the experiences of fibromyalgia patients during COVID-19 lockdown using a qualitative analysis.Method: 19 patients (52 ± 9 years old) who completed a 3-month therapeutic education and/or supervised physical activity program were invited to participate (Fimouv study, Trial registration: ClinicalTrials.gov NCT04107948). A sociologist collected data by means of semi-structured interviews and analyzed them using thematic content analysis.Results: Lockdown exacerbated the main symptoms of fibromyalgia, but adjusting the rhythms of life to fluctuations of these symptoms allowed a better quality of life. Patients felt the lack of physical activity and 68% found alternatives to remain physically active. The reduction of social constraints allowed them to better contend with their pathology. Fibromyalgia stopped being a main priority.Conclusion: Lockdown was positively experienced by fibromyalgia patients. They linked the absence of physical activity with increased pain and fatigue. Nevertheless, reducing social constraints could be a key for fibromyalgia management, where symptoms seemed to take less space in everyday life.Clinical Trial Registration:www.ClinicalTrials.gov, identifier: NCT04107948.

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Section: Discussionsupporting

confidence: 81%

Understanding Experiences of Fibromyalgia Patients Involved in the Fimouv Study During COVID-19 Lockdown

et al. 2021

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“…These forums provide an online community where people can ask questions and share their lives with like-minded peers. Research has already analysed discussion forums to understand how pandemic relates to opioid use (Krawczyk et al, 2021 ), specific health (Brewer & Stratton, 2020 ) and mental health (Brewer et al, 2021 ) conditions, and intimate partner violence (Lyons & Brewer, 2021 ). In addition, discussion forums have been used in mental health research into experiences of a first episode of psychosis (Spikol & Murphy, 2019 ), and the use of language in psychosis (Lyons et al, 2018 ).…”

Section: Introductionmentioning

confidence: 99%

"COVID-19 spreads round the planet, and so do paranoid thoughts". A qualitative investigation into personal experiences of psychosis during the COVID-19 pandemic

et al. 2021

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The COVID-19 pandemic is likely to affect people who have had previous experiences of psychosis – either positively or negatively. A research gap exists in looking at qualitative experiences of the pandemic. In the present study, we address the research gap in those who self-identified as having psychosis via Reddit discussion forum posts, collecting data from a popular online community. Sixty-five posts were analysed using inductive thematic analysis. Five overarching themes were identifie; declining mental health, changed psychosis experiences, personal coping experiences, social connectedness and disconnectedness, and COVID-19 as a metaphor. The data show that there are varied experiences associated with the pandemic. People who have experiences of psychosis do not only have vulnerabilities but may also perceive themselves as having strengths that allow them to cope better.

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“…The unprecedented prolonged fight during a pandemic triggers a phenomenon known as pandemic fatigue which can negatively affect individual’s emotional well-being, leading to emotional burnout and fatigue. 3,4 Furthermore, To cope with the increasing strain of healthcare resources, government institutions and healthcare bodies have pre-emptively reduced elective caseloads to allow for diversion of manpower towards acute care. 5 As such, elective surgeries for non-acute orthopaedic conditions such as osteoarthritis or sports injuries were repeatedly postponed despite having significant debilitating effects on an individual’s quality of life.…”

Section: Introductionmentioning

confidence: 99%

A prolonged pandemic impacts the mental health of orthopaedic patients

Sim,

Heah,

Zhan

et al. 2023

Proceedings of Singapore Healthcare

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Background and aims Majority of elective orthopaedic operations are postponed to accommodate the reallocation of healthcare resources to combat the pandemic. The aim of this paper is to evaluate the mental state of orthopaedic patients amidst limited orthopaedic management options. The secondary aim of this paper is to identify areas of significant stressors and to provide avenues for improvements. Methods A survey was administered on patients in outpatient clinics within a tertiary institution from 31 May to 13 June 2021 where government interventions prevented elective orthopaedic surgeries from being performed. Individuals' fatigue level were assessed with Chalder fatigue scale (CFS) and they were surveyed on their areas of stressors. Results A total of 160 orthopaedic patients (67 males and 93 females) were surveyed with an average age of 48.3 years old (range 17–88). 65 out of 160 (40.6%) were deemed to be severely fatigued (CFS > 4) with a higher prevalence amongst females than males (47.3% vs 31.3% respectively.) The top three areas identified as stressors included transmitting to family/friends, travel restrictions/quarantine orders and limitation on recreational/social activities (67.5%, 45.6% and 57.5% respectively). 25.6% of the patients indicated that the increased difficulty in accessing healthcare was a stress factor. Discussion and conclusion There is a high proportion of severe fatigue amongst orthopaedic patients. Combined with postponement of orthopaedic care and treatment, the detrimental effects of a prolong pandemic can be more pronounced on orthopaedic patients. Identified areas of stressors provide avenues for improvements to safeguard the mental health of orthopaedic patients.

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Living with Chronic Fatigue Syndrome during lockdown and a global pandemic

Cited by 19 publications

References 49 publications

Understanding Experiences of Fibromyalgia Patients Involved in the Fimouv Study During COVID-19 Lockdown

Understanding Experiences of Fibromyalgia Patients Involved in the Fimouv Study During COVID-19 Lockdown

"COVID-19 spreads round the planet, and so do paranoid thoughts". A qualitative investigation into personal experiences of psychosis during the COVID-19 pandemic

A prolonged pandemic impacts the mental health of orthopaedic patients

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