Living with dementia in rural and remote Scotland: Diverse experiences of people with dementia and their carers

Blackstock, Kirsty; Innes, Anthea; Cox, Sylvia; Smith, Annetta; Mason, Anne

doi:10.1016/j.jrurstud.2005.08.007

Cited by 51 publications

(62 citation statements)

References 58 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Those living in the remote locations had fewer service options but referred to the strong sense of familiarity as impacting positively upon the type of care received as well as on their ability to access available services. This finding was congruent with other studies conducted in rural locations that describe the benefits of social capital and personal relationships with providers in facilitating service access and enhancing personalised care (Blackstock, Innes, Cox, Smith, & Mason, 2006;Davis & Bartlett, 2008;Orpin et al, 2014).…”

Section: Discussionsupporting

confidence: 89%

“…Facilitators include informal professional networks (Hansen et al, 2005) and close personal relationships that are a feature of small communities (Blackstock, Innes, Cox, Smith & Mason, 2006). In a systematic review on informal caregiving for dementia in rural settings, recommendations included increasing use of case management and greater integration of services (Innes, Morgan & Kostineuk 2011).…”

Section: Introduction (5304)mentioning

confidence: 99%

See 1 more Smart Citation

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Dawson

Gerace

Muir‐Cochrane

et al. 2015

Aging & Mental Health

View full text Add to dashboard Cite

(250) ObjectivesMental health care for older people is primarily delivered in the community and is largely dependent on informal carers. Mental health policy encourages partnerships between carers and service providers to facilitate service access, coordination and positive experience of care. However, carers often lack information and support from services, with the potential for carer burden, and negative impacts on their own health and capacity to fulfil caring tasks. This paper explores rural carers' experiences of accessing care from a range of services for older people with mental health problems. MethodsThe Pathways Interview Schedule was used to facilitate nine in-depth care journey interviews with eleven carers of older people with a mental health problem. Interviews explored their journeys to and through mental health, aged care, primary care and social care services.Framework analysis was used to explore carers' experiences and perceptions of care with a focus on access enablers and barriers. ResultsCarers had a significant role in navigating services and operationalising care for their relative.Enablers to accessing care included carer knowledge and workers actively involving carers in planning. Barriers included carer mental health literacy, consumer and carer readiness for services, and worker misinterpretation of confidentiality and privacy laws. ConclusionCarers should be considered key partners in mental health care planning that crosses service sectors. For this to occur changes are required at the worker level, including increased communication between mental health workers and carers, and the service level, involving training for staff in interpreting confidentiality and privacy policy.

show abstract

Section: Discussionsupporting

confidence: 89%

Section: Introduction (5304)mentioning

confidence: 99%

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Dawson

Gerace

Muir‐Cochrane

et al. 2015

Aging & Mental Health

View full text Add to dashboard Cite

show abstract

“…Bailey et al, 2013;Blackstock et al, 2006;Gilmour, Gibson & Campbell, 2003;Hansen et al, 2005;National Institute of Clinical Excellence Guidance, 2006;Szymczynska et al, 2011). This benefit is conferred as a result of other people having knowledge of the individual's past roles and positioning in the community, and through a collective will to support the continuation of some aspects of these roles.…”

Section: People and Placementioning

confidence: 99%

“…In social geography, it has long been recognised that a personal relationship to and understanding of place of dwelling, may have a significant impact on sense of identity and self sufficiency (see for example, Hubbard, Kitchin & Valentine, 2004;Kearns et al, 2000;Wylie 2009). For example, living with dementia in rural communities was studied by Blackstock et al (2006), illustrating the importance of place and person interactions in maintaining community connections and affirming sense of self. In particular, good social networks, a physical relationship with place and a sense of self-sufficiency were nurtured.…”

Section: People and Placementioning

confidence: 99%

Narrative citizenship, resilience and inclusion with dementia: On the inside or on the outside of physical and social places

Clarke

Bailey

2016

Dementia

View full text Add to dashboard Cite

There has been little research that addresses the importance of place in enabling resilience and citizenship -most to date focussing on these as a characteristic of the individual. This paper reports on findings from a qualitative study that aimed to explore the everyday experiences of living with dementia within rural and semi-urban communities. Data collection included a sequence of four research diaries and interviews with 13 families living at home with dementia and interviews with service providers and commissioners (a total of 57 diaries, 69 interviews with people living with dementia and 6 interviews with service providers and commissioners). Key themes identified included: Others Knowing and Responding; Socially Withdrawing and Feeling Excluded; Sustaining and Changing Activities;Belonging and Estrangement from Place; Engaging Services and Supports.The study found that familiarity with people and place can be supportive, and these factors support a narrative citizenship in which people can tell a story of inclusion and feeling on the inside. However, this familiarity with place may also create a social barrier and a sense of estrangement, or being on the outside. Narrative citizenship allows us to explore how people with dementia position themselves in relation to others and in so doing, negotiate their own and other's understandings of dementia. It also allows for people to tell stories about themselves in relation to their sense of belonging in a social and physical place, which augment the personal and political approaches to citizenship and thus offers an approach that enhances individualised yet collective understandings of living with dementia.

show abstract

“…More than a decade later Merkel (2004) as well as Blackstock, Innes, Cox, Smith and Mason (2006) arrive at similar results and claim that in general, more attention should be paid to the rural mental health, because the shortage in rural communities is dramatic due to cultural economic and geographical reasons. Our study confirms these findings: Treatment of patients with mental health problems in the examined community is reduced to minimal interventions without including further parties involved.…”

Section: Discussionmentioning

confidence: 81%

The Care Situation, Stigmatization and Requirements of People with Mental Health Problems in Rural Areas

Jenull¹,

Salem²,

Mir³

2012

AASoci

View full text Add to dashboard Cite

With a lifetime prevalence of about 27% mental disorders are amongst the most common diseases. They typically are of chronic course, thus affecting not only the respective people, but also the social surroundings. In order to provide mental health care in best possible proximity to their homes, transparency of the services offered and a rapid access are needed. The present study aims at defining the problems and requirements of rural mental health in a Carinthian region (Austria). The users (n = 46) and the family members (n = 37) were surveyed regarding their individual situation, the current strains and the level of social support. Additionally, expert interviews (n = 44) were conducted and analysed by using qualitative content analysis. Findings revealed that much of mental health care is delivered by primary care physicians and is too often limited to medication. As far as mobile psychosocial offers and expert staff are concerned, all of our interviewed people locate serious flaws and need for action. The present study concludes that there is urgent need to improve the care situation in rural areas. Case and care management and initiatives to reduce stigmatization are of paramount importance.

show abstract

Living with dementia in rural and remote Scotland: Diverse experiences of people with dementia and their carers

Cited by 51 publications

References 58 publications

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Narrative citizenship, resilience and inclusion with dementia: On the inside or on the outside of physical and social places

The Care Situation, Stigmatization and Requirements of People with Mental Health Problems in Rural Areas

Contact Info

Product

Resources

About