2021
DOI: 10.21203/rs.3.rs-338629/v1
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Living with Distal Renal Tubular Acidosis: Qualitative Research with Nephrologists, Patients, and Caregivers

Abstract: Rationale & Objective: Clinical consequences of distal renal tubular acidosis (dRTA) may include profound dehydration, failure to thrive, growth delay, rickets, hearing impairment/loss, nephrocalcinosis, and nephrolithiasis. Little has been published about patients’ and caregivers’ lived experiences with this rare disease. This study provides context and understanding of patients’ and caregivers’ perspectives as well as the nephrologists’ experiences managing the patient with dRTA.Study Design: Descriptive… Show more

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