Living with Grief Following Removal of Infant Life Support: Parents' Perspectives

Armentrout, Debra

doi:10.1016/j.ccell.2009.01.003

Cited by 31 publications

(74 citation statements)

References 2 publications

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“…These include poor communication, especially shortly after the infant's/child's death and not feeling supported by their partner especially if one partner blames the other for the death. Having a close supportive relationship and being able to share their feelings shortly after the death of the infant/child were some of the factors that were helpful in minimizing marital discord (Armentrout, 2009;Kamm & Vandenburg, 2001;Lang et al, 1996). However, as most of the studies of bereaved parents' grief reaction were conducted more than 14 years ago, current research is also needed to determine if these older findings hold true, as gender Studies have shown that spirituality plays an important role in coping with stress.…”

Section: Discussionmentioning

confidence: 99%

“…As they begin to face the reality of their infant's/child's death, their grief is further intensified as they cannot imagine a life without their infant/child. Feelings of despair, loneliness and depression often occur (Armentrout, 2009;Laakso & Paunonen-Ilmonen, 2001). As bereaved parents become engulfed in their suffering, they spend a considerable amount of time talking about the deceased infant/child and keeping the deceased infant's/child's room unchanged (Bellali & Papadatou, 2006).…”

Section: Conceptual Frameworkmentioning

confidence: 99%

“…Bereaved fathers described keeping busy as ways of helping to cope with the pain associated with the loss; this included returning to work, doing household tasks or projects and getting on with their lives (Armentrout, 2009). …”

Section: Grief In Bereaved Parentsmentioning

confidence: 99%

“…They became more appreciative of life, felt stronger and a better person as a result of their terrible ordeal. As they emerged from this period of intense grief their priorities shifted and their perspective on life changed; they became more compassionate, less judgmental of others and connecting more with family and friends (Armentrout, 2009). …”

Section: Grief In Bereaved Parentsmentioning

confidence: 99%

“…Bereaved parents also reported (Armentrout, 2009) that not only were their lives changed but a void was created following the death which they filled by incorporating the presence of the deceased child into their everyday lives. This included having the deceased infant's framed footprints and pictures displayed with other family members'…”

Section: Grief In Bereaved Parentsmentioning

confidence: 99%

See 4 more Smart Citations

The Influence of Spirituality, Race/Ethnicity and Religion on Parent Grief and Mental Health at one month and three months after their Infant's/Child's death in the Neonatal or Pediatric Intensive Care Unit

Hawthorne¹

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Section: Discussionmentioning

confidence: 99%

Section: Conceptual Frameworkmentioning

confidence: 99%

Section: Grief In Bereaved Parentsmentioning

confidence: 99%

Section: Grief In Bereaved Parentsmentioning

confidence: 99%

Section: Grief In Bereaved Parentsmentioning

confidence: 99%

See 3 more Smart Citations

The Influence of Spirituality, Race/Ethnicity and Religion on Parent Grief and Mental Health at one month and three months after their Infant's/Child's death in the Neonatal or Pediatric Intensive Care Unit

Hawthorne¹

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Support for mothers, fathers and families after perinatal death

Koopmans

Wilson

Cacciatore

et al. 2013

Cochrane Database of Systematic Reviews

132

123

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Background Provision of an empathetic, sensitive, caring environment and strategies to support mothers, fathers and their families experiencing perinatal death are now an accepted part of maternity services in many countries. Interventions such as psychological support or counselling, or both, have been suggested to improve outcomes for parents and families a er perinatal death. Objectives To assess the e ect of any form of intervention (i.e. medical, nursing, midwifery, social work, psychology, counselling or community-based) on parents and families who experience perinatal death. Search methods We searched the Cochrane Pregnancy and Childbirth Group's Trials Register (28 January 2013) and article bibliographies. Selection criteria Randomised trials of any form of support aimed at encouraging acceptance of loss, bereavement counselling, or specialised psychotherapy or counselling for mothers, fathers and families experiencing perinatal death. Data collection and analysis Two review authors independently assessed eligibility of trials. Main results No trials were included. Authors' conclusions Primary healthcare interventions and a strong family and social support network are invaluable to parents and families around the time a baby dies. However, due to the lack of high-quality randomised trials conducted in this area, the true benefits of currently existing interventions aimed at providing support for mothers, fathers and families experiencing perinatal death is unclear. Further, the currently available evidence around the potential detrimental e ects of some interventions (e.g. seeing and holding a deceased baby) remains inconclusive at this point in time. However, some well-designed descriptive studies have shown that, under the right circumstances and guided by compassionate, sensitive, experienced sta , parents' experiences of seeing and holding their deceased baby is o en very positive. The sensitive nature of this topic and small sample sizes, make it di icult to develop rigorous clinical trials. Hence, other research Support for mothers, fathers and families a er perinatal death (Review)

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Use of spiritual coping strategies by gender, race/ethnicity, and religion at 1 and 3 months after infant's/child's intensive care unit death

Hawthorne

Youngblut

Brooten

2017

Journal of the American Association of Nurse Practitioners

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Background and purpose In the United States, 57,000 children (newborn to 18 years) die annually. Bereaved parents may rely on religious or spiritual beliefs in their grief. The study's purpose was to examine differences in parents’ use of spiritual and religious coping practices by gender, race/ethnicity, and religion at 1 and 3 months after infant/ICU death. Methods The sample consisted of 165 bereaved parents, 78% minority. The Spiritual Coping Strategies Scale was used to measure religious and spiritual coping practices, separately. One‐way ANOVAs indicated that Black non‐Hispanic mothers used significantly more religious coping practices at 3 months than White non‐Hispanic mothers. Protestant and Catholic parents used more religious coping practices than the “no” and “other” religion groups at 1 and 3 months. Within the 30 mother–father dyads (paired t‐tests), mothers reported significantly greater use of religious coping practices at 1 and 3 months and spiritual coping practices at 3 months than fathers. Conclusion Religious coping practices were most commonly used by Black mothers and Protestant and Catholic parents. Within dyads, mothers used more spiritual and religious coping practices than fathers. Implications for practice These findings are beneficial for healthcare personnel in providing support to bereaved parents of diverse races/ethnicities and religions.

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Living with Grief Following Removal of Infant Life Support: Parents' Perspectives

Cited by 31 publications

References 2 publications

The Influence of Spirituality, Race/Ethnicity and Religion on Parent Grief and Mental Health at one month and three months after their Infant's/Child's death in the Neonatal or Pediatric Intensive Care Unit

The Influence of Spirituality, Race/Ethnicity and Religion on Parent Grief and Mental Health at one month and three months after their Infant's/Child's death in the Neonatal or Pediatric Intensive Care Unit

Support for mothers, fathers and families after perinatal death

Use of spiritual coping strategies by gender, race/ethnicity, and religion at 1 and 3 months after infant's/child's intensive care unit death

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