Living with Long term condition Scale: A pilot validation study of a new person centred tool in the UK

Abstract

Aim To cross‐culturally adapt and determine the preliminary psychometric properties of the English version of the LwLTC Scale in people living with long‐term conditions in the UK. Design Cross‐cultural adaptation and cross‐sectional study. Methods Forty‐nine patients with five long‐term conditions were included in the pilot study. Patients completed the English version of the LwLTC Scale and a bespoke questionnaire related to the scale. Feasibility/acceptability, internal consistency and construct validity were analysed. Results 59.2% of participants were female, with an average age of 65.9 (SD = 12.30). Cronbach's alpha coefficient ranged between 0.50 and 0.84. Content validity showed that the English version of the LwLTC Scale was useful even negative items were identified. Conclusion These preliminary psychometric properties are satisfactory and promising. Further psychometric analyses are needed to verify them in a larger and more representative sample size during the main validation study, which is now in process.

Living with Chronic Illness Scale: International validation through the classic test theory and Rasch analysis among Spanish‐speaking populations with long‐term conditions

“…This could be equally applied to research projects. At present, a cross‐culturally adapted version of the scale has been produced in the United Kingdom (called the living with long‐term condition scale) 59 and full validation study is ongoing, which would allow health and social care professionals to implement person‐centred care pathways and referral processes.…”

Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK

“…The Living with Chronic Illness Scale is the only available tool in clinical practice and research to measure how people live with an LTC holistically, focusing on the person and not the disease 19. It is a 26-item scale with five domains: (1) acceptance (four items), (2) coping (seven items), (3) self-management (four items), (4) integration (five items) and (5) adjustment (six items).…”

“…The LwLTCs scale was originally developed for Spanish-speaking population (in Spanish: Escala de convivenvia con un proceso crónico EC-PC) and was developed based on empirical16 18 and conceptual10 studies carried out by international experts in the field of LTCs. Prior to this validation study, the scale was translated and cross-culturally adapted from the original LwLTCs scale (Spanish-language) to make it suitable for an English-speaking population 19. The translation and cross-cultural adaptation process was conducted by a panel of four native English speaker experts.…”

“…The translation and cross-cultural adaptation process was conducted by a panel of four native English speaker experts. In addition, approval of the English version was sought from the original author of the LwLTC Scale in Spanish language 19…”

“…To cover this need, the LwLTCs scale was developed within an international Spanish-speaking population 18. Currently, the scale has been translated and piloted in English-speaking population LwLTCs naming the scale LwLTCs scale 19. Preliminary results are waiting to confirm the satisfactory and promising results identified in the pilot study 19.…”