Living with loss: a cognitive approach to prolonged grief disorder – incorporating complicated, enduring and traumatic grief

Duffy, Michael; Wild, Jennifer

doi:10.1017/s1352465822000674

Cited by 10 publications

(2 citation statements)

References 78 publications

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“…Care partners experience burdens in every area of their lives-emotional, physical, social, spiritual, and financial [2,4,5]. The death of someone with a serious illness (as well as the events leading up to it) also brings hardship, including stress related to loneliness, grief, trauma, role recognition, and self-identity [6][7][8][9]. Social isolation and grief are strongly correlated with subsequent depression and related symptoms in bereaved spouses, including sadness, appetite loss, and lower quality of life [5,10].…”

Section: Introductionmentioning

confidence: 99%

A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study

O’Donnell,

Van Citters,

Khayal

et al. 2024

JMIR Hum Factors

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Background Care partners of people with serious illness experience significant challenges and unmet needs during the patient’s treatment period and after their death. Learning from others with shared experiences can be valuable, but opportunities are not consistently available. Objective This study aims to design and prototype a regional, facilitated, and web-based peer support network to help active and bereaved care partners of persons with serious illness be better prepared to cope with the surprises that arise during serious illness and in bereavement. Methods An 18-member co-design team included active care partners and those in bereavement, people who had experienced serious illness, regional health care and support partners, and clinicians. It was guided by facilitators and peer network subject-matter experts. We conducted design exercises to identify the functions and specifications of a peer support network. Co-design members independently prioritized network specifications, which were incorporated into an early iteration of the web-based network. Results The team prioritized two functions: (1) connecting care partners to information and (2) facilitating emotional support. The design process generated 24 potential network specifications to support these functions. The highest priorities included providing a supportive and respectful community; connecting people to trusted resources; reducing barriers to asking for help; and providing frequently asked questions and responses. The network platform had to be simple and intuitive, provide technical support for users, protect member privacy, provide publicly available information and a private discussion forum, and be easily accessible. It was feasible to enroll members in the ConnectShareCare web-based network over a 3-month period. Conclusions A co-design process supported the identification of critical features of a peer support network for care partners of people with serious illnesses in a rural setting, as well as initial testing and use. Further testing is underway to assess the long-term viability and impact of the network.

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Section: Introductionmentioning

confidence: 99%

A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study

O’Donnell,

Van Citters,

Khayal

et al. 2024

JMIR Hum Factors

View full text Add to dashboard Cite

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“…The journals have also been at the forefront of working with psychosis, and Tony Morrison’s article (Morrison et al, 2023) advances the field by consideration of the priorities of service users in trials of CBT for psychosis. Bringing together complexity and compassion, Michael Duffy (Duffy and Wild, 2023) describes the cognitive approach to prolonged grief.…”

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confidence: 99%

CBT 50 years on: a celebration of empirically grounded and evidence-based psychological therapy

Salkovskis,

Thwaites

2023

Behav. Cogn. Psychother.

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The protective role of positive mental health on prolonged grief disorder, anxiety and depression among bereaved refugees: cross-sectional mediation models

Dababneh,

Margraf,

Zhang

et al. 2024

Curr Psychol

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Grief is a common reaction to loss; however, its persistence is subject to specific mechanisms related to the context of death, comorbidities with other mental health disorders, and individual coping status. The current study aimed to investigate the cross-sectional link between refugees’ positive mental health (PMH) and reduced prolonged grief disorder (PGD) mediated by changes in anxiety and depression and, conversely, between PMH and reduced anxiety and depression symptoms mediated by changes in prolonged grief symptoms. The present cross-sectional study involved 385 bereaved adult Arabic-speaking refugees. Data were collected via an online survey. All participants experienced prolonged grief symptoms a minimum of 6 months from the death event. The parallel mediation model showed that PMH is indirectly linked to PGD, and the significant mediation of anxiety and depression could explain this relationship. Furthermore, two simple mediation models showed that PMH is indirectly linked to anxiety and depression, and the significant mediating effect of PGD could explain this relationship. The current results confirm the role of PMH as a predisposed coping status that could reduce the risk for PGD. Increasing the level of PMH can be considered a protective factor against challenging life events such as persistent grief and related disorders.

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Living with loss: a cognitive approach to prolonged grief disorder – incorporating complicated, enduring and traumatic grief

Cited by 10 publications

References 78 publications

A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study

A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study

CBT 50 years on: a celebration of empirically grounded and evidence-based psychological therapy

The protective role of positive mental health on prolonged grief disorder, anxiety and depression among bereaved refugees: cross-sectional mediation models

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