Living with memory loss: A program for people with early stage dementia and their carers: A case study

Aarons, Sallyanne

doi:10.1080/13284200410001707513

Cited by 3 publications

(3 citation statements)

References 4 publications

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“…Reports of group therapy interventions, including support groups and a range of psychotherapy interventions are at least as common as descriptions of individual interventions (Cheston, 1998) or couple psychotherapy (Auclair, 2009). This includes small scale evaluations of group interventions from a wide range of countries including Denmark (Sørensen et al, 2008), Australia (Aarons, 2003), Italy (Fabris, 2006), Japan (Ishizaki et al, 2000) and Germany (Scheurich et al, 2008;Scheuerich and Fellgiebel, 2009). However, probably the most comprehensive evaluation of group therapy to date comes from the USA.…”

Section: Introductionmentioning

confidence: 99%

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

Marshall

Spreadbury

Cheston

et al. 2014

Aging & Mental Health

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(2015) A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a "Living Well with Dementia" group compared to waiting-list control. Aging and Mental Health, 19 (6 Disclaimer UWE has obtained warranties from all depositors as to their title in the material deposited and as to their right to deposit such material. UWE makes no representation or warranties of commercial utility, title, or fitness for a particular purpose or any other warranty, express or implied in respect of any material deposited.UWE makes no representation that the use of the materials will not infringe any patent, copyright, trademark or other property or proprietary rights. UWE accepts no liability for any infringement of intellectual property rights in any material deposited but will remove such material from public view pending investigation in the event of an allegation of any such infringement. PLEASE SCROLL DOWN FOR TEXT.Living well with dementia groups: a pilot RCT Living well with dementia groups: a pilot RCT 3 AbstractObjective. The aim of this paper is to report a pilot study in which participants who had recently received a diagnosis of dementia were randomised to either a 10 week group intervention or to a waiting list control.Method. Memory Clinic staff with limited previous experience of group therapy were trained to lead a ten week group therapy intervention called "Living Well with Dementia". Fifty-eight participants, all of whom had received a diagnosis of Alzheimer's disease, Vascular or Lewy body dementia within the previous 18 months, were randomised to receive either the intervention or treatment as usual (waiting list control). Data collection occurred at baseline, within two weeks of the intervention finishing and at 10 week follow-up.Results. The study met its recruitment targets, with a relatively low attrition rate for the intervention arm. The acceptability of the intervention and research methods were examined qualitatively and are reported on elsewhere. For the primary outcome measure of quality of life (Qol-AD) and secondary outcome, self-esteem there was some evidence of improvement in the intervention group compared to the control group. There was, also, evidence of a reduction in cognitive functioning in the treatment group compared to the control. Such reported differences should be treated with caution because they are obtained from a pilot and not a definitive studyConclusions. This pilot study succeeded in collect data to inform a future definitive cost effectiveness clinical trial of Living Well with Dementia Group Therapy.

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Section: Introductionmentioning

confidence: 99%

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

Marshall

Spreadbury

Cheston

et al. 2014

Aging & Mental Health

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“…2004) as a means of providing such isolated carers with peer support. Also, the success of ‘psych‐education’ programmes (Aarons 2003; Perry 2002) suggests that these may also be beneficial to carers of adults with Down’s syndrome and dementia. This type of programme would enable carers to meet other carers in similar situations and would provide a forum for local support information to be given whilst allowing carers the opportunity to discuss their experiences in a safe environment.…”

Section: Discussionmentioning

confidence: 99%

“…2004). The early diagnosis of dementia has been identified as an important factor in the on‐going care of dementia sufferers as it allows prompt access to services (Watchman 2003a) and can improve the relationship between the carer and the adult with dementia (Aarons 2003). However, there is a dearth of literature and research studies which focus on the carers of people with learning disabilities.…”

Section: Introductionmentioning

confidence: 99%

‘It’s all changed:’ carers’ experiences of caring for adults who have Down’s syndrome and dementia

McLaughlin¹,

Jones²

2011

Brit J Learn Disabil

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Accessible summary• People who care for someone with Down's syndrome and dementia were asked about what it was like being a carer. Four of the carers were brothers or sisters of the person who had dementia, and two were paid carers not family members. • All carers say that they want more information about some of the health and social problems that come with having dementia. • Carers said that they want to know more information and meet other carers and other people who have dementia. SummaryA qualitative interview study was undertaken to determine the information and support needs of carers of adults who have Down's syndrome and dementia. The data were analysed thematically. Carers' information and support needs were seen to change at pre-diagnosis, diagnosis and post-diagnosis. Helping carers to manage the changing nature of the adult with dementia is seen to be an essential part of the health professional's role.

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Psychotherapy Interventions with People Affected by Dementia

Cheston

2016

Mental Health and Older People

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Living with memory loss: A program for people with early stage dementia and their carers: A case study

Cited by 3 publications

References 4 publications

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

A pilot randomised controlled trial to compare changes in quality of life for participants with early diagnosis dementia who attend a ‘Living Well with Dementia’ group compared to waiting-list control

‘It’s all changed:’ carers’ experiences of caring for adults who have Down’s syndrome and dementia

Psychotherapy Interventions with People Affected by Dementia

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