Living with others with behaviours that challenge: experiences and perceptions of adults with intellectual disabilities

Gleeson, Gwen; Spies, Marelise; McDermott, Garret

doi:10.1080/09638288.2020.1867655

Cited by 3 publications

(2 citation statements)

References 27 publications

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“…A meta-analysis conducted in 2016 reported a global prevalence ranging from 0.05% to 1.55% [ 6 ]. Other literature highlights that approximately 10–20% of people with intellectual disability engage in challenging behaviours [ 7 ] that are likely to persist over long periods of time [ 8 ]. In mainland China, a national survey found that approximately 75 out of 1000 individuals have been diagnosed with intellectual disability, with a higher prevalence in rural areas (1.02%) compared to urban areas (0.04%) [ 9 ].…”

Section: Introductionmentioning

confidence: 99%

Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and Northern China

Low,

Kwong,

Wang

et al. 2024

IJERPH

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Background: While the literature has highlighted the immense challenges in caring for family members, it is still unclear what the needs of family carers of persons with intellectual disability and challenging behaviours are and what has worked for them. This study aims to examine 60 parents’ and siblings’ experiences in managing the challenging behaviours of their adult family member with intellectual disability whilst living at home. Methods: A qualitative grounded theory approach using semi-structured interviews will be adopted. Purposive sampling will be used to recruit family carers who live with adult persons with intellectual disability and use one community service in Hong Kong. Three special schools for persons with intellectual disability from northern China will be approached. Results: This study will aim to provide an in-depth understanding of the experiences of family carers and compare the different circumstances they face when managing the challenging behaviours of their adult relatives with intellectual disability in their family home. Conclusions: Although this study targets adults with intellectual disability, the findings will provide a point of reference for adolescents and younger persons who exhibit demanding and challenging behaviours and live with their families. Recommendations can guide the development of appropriate strategies to strengthen services for family carers.

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Section: Introductionmentioning

confidence: 99%

Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and Northern China

Low,

Kwong,

Wang

et al. 2024

IJERPH

View full text Add to dashboard Cite

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“…Challenging behaviours negatively affect an individual's quality of life [4], social participation [5] and functioning in daily life [6]. Challenging behaviours may also cause a high burden and reduced quality of life among relatives [7,8], peers [9] and professional caregivers [10].…”

Section: Introductionmentioning

confidence: 99%

Difficulties in Addressing Diagnostic, Treatment and Support Needs in Individuals with Intellectual Disability and Persistent Challenging Behaviours: A Descriptive File Study of Referrals to an Expertise Centre

Kuijper

Fokkema

Jansen³

et al. 2023

IJERPH

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Service providers may experience difficulties in providing appropriate care to optimize the functioning of individuals with intellectual disability and challenging behaviour. External consultation to identify and address the unmet support needs underlying the behaviour may be beneficial. Applying the multidimensional American Association Intellectual and Developmental Disabilities (AAIDD) model may facilitate this approach. We aimed to describe the content and outcomes of consultation for individuals with intellectual disability and challenging behaviour referred to the Dutch Centre for Consultation and Expertise in relation to the AAIDD model. Interventions were based on the clients’ diagnostic, treatment, and support needs and were categorized according to the five dimensions of the AAIDD model. Outcomes of the consultations were assessed based on reports in the file and rated as ‘clear improvement’, ‘improvement’ or ‘no improvement or deterioration’. In two-thirds of the 104 studied files, consultees were satisfied with the improvement in functioning. Interventions targeted the difficulties of the service providers in supporting their clients and were most often applied within the Health and Context dimensions of the AAIDD model. We may conclude that consultation of an expert team may be valuable to support the care providers, and the use of the AAIDD model may be helpful to address the unmet needs to improve the functioning of individuals with challenging behaviour.

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Emotional Reactions of Professionals to Challenging Behaviors in People with Intellectual and Developmental Disability

Reyes-Martín,

Simó-Pinatella,

Andrés

2024

Behavioral Sciences

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Professionals working with people with intellectual and developmental disability (IDD) can be exposed to challenging behaviors (CBs), which may result in professionals exhibiting emotional reactions that can impact their practices. This study examined these reactions and analyzed how they are influenced by the individual characteristics of people with IDD (gender, age, and level of IDD) and the variables related to CB (type of behavior and its frequency and behavioral function). A total of 125 professionals assessed 293 people with IDD who exhibited CBs. The professionals were asked to complete the Behavior Problems Inventory—Short Form, the Emotional Reactions to Challenging Behavior Scale, and the Questions About Behavior Function measure. It was revealed that positive emotional reactions predominated over negative ones. Significant results were found regarding the level of disability and the age of people with IDD. Emotional reactions were related to the severity of CBs, especially self-injurious and aggressive/destructive behavior, as well as certain behavioral functions. The severity of CBs and the age of people with IDD emerge as key predictors of the emotional reactions of professionals. In short, these reactions vary according to different variables, highlighting the importance of interventions that address professionals’ emotional needs.

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Living with others with behaviours that challenge: experiences and perceptions of adults with intellectual disabilities

Cited by 3 publications

References 27 publications

Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and Northern China

Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and Northern China

Difficulties in Addressing Diagnostic, Treatment and Support Needs in Individuals with Intellectual Disability and Persistent Challenging Behaviours: A Descriptive File Study of Referrals to an Expertise Centre

Emotional Reactions of Professionals to Challenging Behaviors in People with Intellectual and Developmental Disability

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